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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> finally got o2 today...
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Message started by go away on Feb 13th, 2009 at 10:42pm

Title: finally got o2 today...
Post by go away on Feb 13th, 2009 at 10:42pm
no mask today.Its coming ups tommorrow.All I got 2nite is a nose canula.Maybe it will work.I have to say have gotten way more info about the o2 on here than from the Dr. or the med supply co.This website is a blessing.

Title: Re: finally got o2 today...
Post by on my knees on Feb 13th, 2009 at 11:03pm
make sure you have at least a 15lpm regulator and get a non-rebreather mask, it has a bag attached. also i drink a coffee energy drink just before and chug it. other use red bull or rockstar.
good for you getting th o2 rx thats the first step 8-)

Title: Re: finally got o2 today...
Post by kevmd on Feb 13th, 2009 at 11:05pm
You will soon come to love those green tanks.  But you will love it more when you no longer have to use it.  good job getting o2

Title: Re: finally got o2 today...
Post by Guiseppi on Feb 14th, 2009 at 1:37am
Take a 1 gallon ziploc bag........poke a little hole in the bottom, run the nasal canula tube into it and tape it up air tight. Bunch the top up with your hand, turn on the 02. You now have a "non re breather mask!"

As the bag fills, suck out the pure 02, close it back up, exhale, stick your mouth at the opening and inhale again. The trick to making 02 work is getting pure 02 to the lungs, no outside air, no exhaled air. Once you understand that principle, get creative!!

Joe

Title: Re: finally got o2 today...
Post by coach_bill on Feb 14th, 2009 at 9:40am
Great news, The 02 is a God send for many with CH.



                            Challening, More assertive... Coach Bill

Title: Re: finally got o2 today...
Post by Totka2 on Feb 14th, 2009 at 9:51am

Guiseppi wrote on Feb 14th, 2009 at 1:37am:
Take a 1 gallon ziploc bag........poke a little hole in the bottom, run the nasal canula tube into it and tape it up air tight. Bunch the top up with your hand, turn on the 02. You now have a "non re breather mask!"


Mr.Happy's "temp mask" with a 1" plastic tube as mouthpiece

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Title: Re: finally got o2 today...
Post by barry_sword on Feb 14th, 2009 at 10:19am
100% o2 with at least a 15 LPM regulator and get on it at the very first sign of an on-coming hit. No outside air! I do not know about where you live but I can walk into my o2 supplier (medical) and buy as many non-rebreather masks that I want. They are about $7.00 each.

Nice home made non-rebreather mask [smiley=thumbsup.gif]

Title: Re: finally got o2 today...
Post by Deborah C on Feb 14th, 2009 at 10:29am
Hey, were in the same boat. I finally got my O2 yesterday too. I only have the nasal connection, but am awaiting a mask, thanks to Linda here in CH. I cruised through the "how to use O2" section and found it very informative. THANK YOU ALL !! But unfortunetly, I still have a million questions, but Ive decided 1 day @ a time because I am so overwhelmed by this whole THING.
My neuro. (who will not see me anymore, my case is too much for HER, LOL) wrote 4 lpm (is that the right jargon?).
Did nothing for me. Thats when I went to the O2 page to see what the hell Im doing. I cranked her up and started to feel a little better, my ears popped, throbbing subsided, a little.
Now I understand why you have to have a mask/bag. I could not breath it fast enough and did not want to over do it. I feel like I was wasting it and after all I went through 2 get it it's like GOLD now.
The size tank they gave me, E. Does not seem realistic to help me more than a few times. Any advice out there??
Also I am Terrified of having this O2 in the very small Apt. we have.
Im wondering about how it can ignite, smokers etc. For now it's in my closet, LOL. More advice Please??
Anyhow, us newbies gotta stick together, so let me know ho UR managing.
GOD BLESS =Debbie [smiley=heart.gif]

Title: Re: finally got o2 today...
Post by DennisM1045 on Feb 14th, 2009 at 10:47am
Hi Deb,

A single e-tank doesn't hold much.  That why I keep 7 e-tanks on hand plus one m-tank.  

I can usually get two hits aborted with a single e-tank @ 25lpm.  They are very useful when you are out and about.

Talk to your O2 supplier and get more delivered.

-Dennis-

Title: Re: finally got o2 today...
Post by Deborah C on Feb 14th, 2009 at 11:15am
Hi dennis !!

OMG the tank etc. cost $60.00. I live in N.Y. LOL this is sapposed to be a 1 month supply!!!!!!!!!!!!! :D

Deb

Title: Re: finally got o2 today...
Post by Linda_Howell on Feb 14th, 2009 at 11:48am
Deb,

Did the supply place tell you that this is a one-time set-up charge for the rental of the tank and reg.?    It should be.  Swapping the tank out for a filled one, shouldn't cost anywhere near that.

Your package is in the mail.   Call that supplier and ask that question.  What are replacement tanks going to cost you.  I pay 10.00.  Others pay a little more and some pay less...but an e-tank replacement should NOT be 60.00

This is one of my major pet peeves.  The hoops and complications we have to jump through to get a Dr. to prescribe it in the first place and then the ignorace of everyone else involved with getting us what we need.  I am angry for all of you having to go through this.

Linda

Title: Re: finally got o2 today...
Post by vietvet2tours on Feb 14th, 2009 at 12:50pm

Linda_Howell wrote on Feb 14th, 2009 at 11:48am:
Deb,

Did the supply place tell you that this is a one-time set-up charge for the rental of the tank and reg.?    It should be.  Swapping the tank out for a filled one, shouldn't cost anywhere near that.

Your package is in the mail.   Call that supplier and ask that question.  What are replacement tanks going to cost you.  I pay 10.00.  Others pay a little more and some pay less...but an e-tank replacement should NOT be 60.00

This is one of my major pet peeves.  The hoops and complications we have to jump through to get a Dr. to prescribe it in the first place and then the ignorace of everyone else involved with getting us what we need.  I am angry for all of you having to go through this.

Linda


Or you can LEASE a welders oxygen tank.  My lease was 200 bucks lifetime.  I can sell or give the tank to anyone as I please.  If the tank needs any repairs it's on their dime.

      Kinder gentler Potter

Title: Re: finally got o2 today...
Post by kevmd on Feb 14th, 2009 at 11:36pm
where is that imfamous Mr Happy

Title: Re: finally got o2 today...
Post by Balanchine on Feb 15th, 2009 at 11:01am
I went out and bought a welder's tank, 80 cubic feet, and a regulator. Whole rig cost me about 300 bucks and fills are maybe 20 with tax. Think the capacity is somewhere between 2-3 E type medical tanks. Plus if I get bored between cycles, I can always weld*!

David

*especially on Tuesdays.

Title: Re: finally got o2 today...
Post by Skyhawk5 on Feb 15th, 2009 at 8:22pm
Deborah,

Oxygen is not a bomb. It is dangerous but the danger is that it will add to a fire of a flammable object. O2 itself is a non-flammable gas, and this is a commonly misunderstood fact. Most Doctors have little training or true understanding of some of these facts.

The biggest danger to yourself is if the O2 soaks into your sweater or clothing and the spark from a ciggarette were to contact it and cause a fire. NO SMOKING while using O2 is a must. And allowing a minute a two for any possible build up on your clothes to disapate before smoking will keep you safe.

Reading from my oxygen patient instructions handbook. " Oxygen will not explode or burn, but it will increase the flammability of objects near the concentrated oxygen. It will also cause anything that is burning to burn hotter and faster." It also says to avoid smoking in the same room and to stay at least 10 feet from any open flame such as a ciggarette.

Don

Title: Re: finally got o2 today...
Post by Deborah C on Feb 15th, 2009 at 9:56pm
Don,

Thank U 4 explaining the ignition of oxygen. Neither the Dr. or the supply place gave me ANY INFORMATION.
I also made the "ziplock" breather mask. LOL what a piss, but WHAT A DIFFERENCE, WOW !
I also went to the O2 page & printed out the suggested RX.

ALL OF U CHer's, R TRULY AMAZING PEOPLE. From the bottom of my heart I want to thank everyone who has helped/responded to my to
my questions. I was so lost without y'all. ;D ;D

Title: Re: finally got o2 today...
Post by Skyhawk5 on Feb 27th, 2009 at 1:58am
Deb,
You are more than welcome. I'm bumping this thread so others may read it.
Don

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