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Cluster Headache Help and Support >> Cluster Headache Specific >> Help http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1233933047 Message started by Jimdog on Feb 6th, 2009 at 10:10am |
Title: Help Post by Jimdog on Feb 6th, 2009 at 10:10am
Hello, This is my first post here so please fogive me if I make a faux paus (sp). I have suffered with cluster headaches for 10 years. I saw some doctors , had a million tests , scans , etc and for all the effort and cost that I spent the tests all showed that yes I have cluster headaches. Not exactly sure why I needed to do that other than to satisfy my doctor that I wasn't completely nuts.
I now live in Florida and for the past six months I have been in one long cycle that just wont stop. Sure I can take Imatrex and 20 mins to the second later the headache is gone but I am just wasted , out of energy and feel hungover. Imatrex and Ice were the only tricks in my Doctors black bag. I really need to see another doctor but I just can't afford to visit one after another trying to find one that has a proven track record. I am sure they all mean well but in my experience (I have had 8 major back and neck opperations) there are some doctors that have the magic and some do not. So the reason for the post is to ask if anyone can direct me to a doctor that has proven to be capable of being able to deal with a patient like myself. I live in Deltona Florida (near Daytona on the east and Orlando on the west. I would greatly appreciate any help that anyone can offer. Again Thanks in advance for your help. JIm |
Title: Re: Help Post by Just Plain Carl on Feb 6th, 2009 at 11:53am
Hello Jim,
Welcome to the looney bin. If you haven't tried it yet, get some oxygen. Check out the "oxygen info" link on the left side of your screen. It works for a whle bunch of us. Good luck finding a good Doc. PFD's JPC |
Title: Re: Help Post by Guiseppi on Feb 6th, 2009 at 6:02pm
I know the initial diagnosis can be a pain in the butt but it's so important to first eliminate all the bad scary stuff, then get the correct diagnosis for your headache. Meds that are beneficial for some types are worthless or even harmful for others.
Great link by Bob to locate a decent neuro, hopefully some people near you can chime in with docs they've had good luck with. In all likelyhood you're still probably going to need to educate your doc. Read everything on the board, and develop a collaborative partnership with your doc to treat these things. And do push for oxygen. 30 years of fighting the beast it's still my first and most effective abortive. 6-8 minutes and I'm pain free, with no "Imitrex hangover!" Welcome to the board, now get reading! ;) Joe |
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