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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Cluster Headache Specific >> OMG, it's back http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1233079613 Message started by Tophurious on Jan 27^th, 2009 at 1:06pm

Title: OMG, it's back
Post by Tophurious on Jan 27^th, 2009 at 1:06pm

So I thought I was done with my cycle. The last one I had was wednesday evening.

Today, I was sitting in a meeting at work and OMG it came back. My cycles only last around 30 days, which was why I was convinced I was done on wed (it had been 33 days).

I'd rank it around a 6-7. I'm calling my neuro now to get some O2 prescribed, this is ridiculous

Title: Re: OMG, it's back
Post by Melissa on Jan 27^th, 2009 at 1:26pm

Hey Tophur, I'm very sorry to hear that. Good you're going to get hooked up with the O2 though!

~mel

Title: Re: OMG, it's back
Post by UnderTheRadar on Jan 27^th, 2009 at 1:53pm

I hate that crap. Sorry man. :-/

Title: Re: OMG, it's back
Post by Guiseppi on Jan 27^th, 2009 at 3:30pm

It's been said a million times on this board, the only thing predictable about the damned beast is his unpredicvatbility. Hoping it's just a rogue hit and your cycle doesn't extend.

Joe

Title: Re: OMG, it's back
Post by brian trudeau on Jan 28^th, 2009 at 6:06am

Same thing for me, thought I was done after about a 2 month cycle ( usually only a month) Last hit was a week ago today (Wed) got 3 days off thinking the cycle had ended and then they came back Sunday and been daily hits since.
Sorry yours are back as well. Sucks Big Time.
BT

Title: Re: OMG, it's back
Post by Just Plain Carl on Jan 28^th, 2009 at 9:30am

Hello Tophur,

Yeah that sucks. My cycles usually lasted about 30-45 days. Six years remission and got hit for about 3 months.

How ya makin out with the O2. Worked wonders for me.

PFD's
JPC

Title: Re: OMG, it's back
Post by Artonio on Jan 28^th, 2009 at 2:10pm

Keep your chin up... getting the O2 is a great move... I hope this is just a fluke for you and they go away soon.

with warm regards,
Tony

Title: Re: OMG, it's back
Post by Tophurious on Jan 28^th, 2009 at 4:21pm

If it was a fluke, it "fluked" two days in a row. My O2 was delivered last night, unfortunately the driver didn't have a high flow for the small tank so I had to deal with 8 lpm for today's attack (I have the high flow on the big tank at home), but it did help just didn't seem like the experience everyone on here talks about. It didn't wipe out the pain entirely, but it did shorten it and make it less intense afterward.

Title: Re: OMG, it's back
Post by Guiseppi on Jan 28^th, 2009 at 8:32pm

Bummer, hopefully the high flow reg will be the knockout punch you need.

Joe

Title: Re: OMG, it's back
Post by Tophurious on Jan 30^th, 2009 at 7:49pm

So definitely not a "Rogue Hit". Yesterday I had shadows all day (1-3) off and on, and then at 11pm, it hit me HARD. Took a maxalt and a half hour on oxygen to clean it out. And today I went through two E tanks for two different headaches and I think another one is still coming.