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Cluster Headache Help and Support >> Cluster Headache Specific >> no night clusters http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1231605873 Message started by Fenton on Jan 10th, 2009 at 11:44am |
Title: no night clusters Post by Fenton on Jan 10th, 2009 at 11:44am all my headachs are in the day time now except 1 or 2 week they come around the same time every day around 1030 115 330 645 almost everyday.... they used to be like that at night just as regular. now they are during the day .. some times i get one and the after effects last all day anybody else had theirs change from nite to days like that? |
Title: Re: no night clusters Post by Melissa on Jan 10th, 2009 at 12:01pm
Yes, there was a time mine went from during the night to during the day, but it only happened when I'd screw with my preventatives.
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Title: Re: no night clusters Post by Bob_Johnson on Jan 10th, 2009 at 12:44pm
It's unfortunate that the notion that CH are fixed in time and presentation has become so fixed in our thinking! The reality is that time, location, quality of pain, etc. shifts over months and years for many folks.
I've rarely seen medical materials spend time 0discussing the question and then with a notable absence of concern. |
Title: Re: no night clusters Post by Guiseppi on Jan 11th, 2009 at 1:16am
First 20 years I NEVER had a night hit. Once I fell asleep I was safe. Hit my 40's and they went all over the board! You'll see this a lot, the only cosistent thing about the beast is his ability to morph!
Joe |
Title: Re: no night clusters Post by kika on Jan 12th, 2009 at 6:46pm
Mine have never hit at night ( going on 9 years episodic now), but come like clockwork within an hour of waking up. My very limited understanding of them is that it's related to your sleep/wake cycle, possibly originating in the hypothalamus. I would be PISSED if they woke me up and feel so badly for all of you to whom that happens.
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Title: Re: no night clusters Post by Nyteguardyan on Jan 12th, 2009 at 7:31pm
Mine are only during the day as well, and USUALLY only once a day, Between 1430-1700hrs. Had been PF for 2 weeks. Had a "regular" headache yesterday evening. I was awakened rather rudely by the beast this morning. Started minor and then exploded like a new star coming to life. YAY! And no imitrex. :'(
But alas...here we go again. But at least I'm armed for the next one. |
Title: Re: no night clusters Post by Jeannie on Jan 13th, 2009 at 1:43pm
Mine used to be all day time hits OR upon waking up in the morning. Two years ago they switched to mostly nights with some during the day. Now they are switching again.... getting hit after being stressed and then going to sleep. I don't think this is a TRUE cycle though. We'll see what Spring has to offer.
Jeannie |
Title: Re: no night clusters Post by PollyPocket on Jan 13th, 2009 at 2:18pm
The first 10 years episodic, they came day and night. My night hits stopped, for whatever blessed reason, in '96. I've been counting that blessing for 13 years :)
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Title: Re: no night clusters Post by sandie99 on Jan 13th, 2009 at 2:25pm
During my first few cycles I had no idea what night time hits were. After being a chronic for a while and then in remission, things changed. Now they can come day and night, whatever the beast chooses.
Sanna |
Title: Re: no night clusters Post by Fenton on Jan 13th, 2009 at 2:50pm
yep mine were nite an day continueously for severle years
now just days for the last year and 1 maybe 2 at night a week |
Title: Re: no night clusters Post by Chris Morrow on Jan 13th, 2009 at 4:00pm
The first four years, I only had them in the daylight, and only July-August. Then it changed, and, now, I mostly get hit during the night and in the months of November-March.
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Title: Re: no night clusters Post by on my knees on Jan 14th, 2009 at 8:36pm
all mine were daytime and pretty much still are, but every few days i get popped at night a time or two, only thing predictable about ch is the unpredictable.
oddly enough you times are almost exactly the same times i get hit during the day, things that make you go hmmm!! |
Title: Re: no night clusters Post by cyberone on Jan 15th, 2009 at 8:01am
i fear sleep more than anything when im in cycle...always the worst of worst hits....
by the time i wake up its already started an a little too late to do much.... |
Title: Re: no night clusters Post by George on Jan 15th, 2009 at 9:37am
Years ago, I used to get occasional daytime hits, particularly in mid-cycle. Nowadays I get hit almost exclusively at night--during REM sleep.
Needless to say, I get a little gunshy about sleeping. No rhyme or reason to this thing, is there? It's striking how many differences we have--and how many similarities. Best wishes, George |
Title: Re: no night clusters Post by Guiseppi on Jan 15th, 2009 at 11:09am
CYBERONE.............
If no one has suggested it you sound like a good candidate for Melatonin. An over the counter supplement available at health food and vitamin stores. Take 6-9 mg 30 minutes before going to bed. Many have found they can avoid or at least reduce the night time terrors that way. Good luck...I can't stand the thought of dreading sleep. Joe |
Title: Re: no night clusters Post by Blue_eyes on Jan 15th, 2009 at 6:39pm
I only got hit at night when I was episodic now I am chronic I get hit both day and night.
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Title: Re: no night clusters Post by MorDog on Jan 18th, 2009 at 10:22pm
I get a mixed bag. Hits during the day or night. More so at night though. Sleep is my #1 trigger.
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Title: Re: no night clusters Post by Just Plain Carl on Jan 19th, 2009 at 12:43pm
Years ago, I used to get occasional daytime hits, particularly in mid-cycle. Nowadays I get hit almost exclusively at night--during REM sleep
same for me. It was pretty rare to get a day hit with my last cycle. No sleep was a huge pain. Made me a zombie all day. PFD's JPC |
Title: Re: no night clusters Post by Marc on Jan 19th, 2009 at 8:57pm
Twelve years of chronic, always had day and night hits.
The night hits are always worse because I don't hit the O2 fast enough because I'm asleep. I've become a very light sleeper just that reason. |
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