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Message started by Mark M on Dec 26th, 2008 at 6:51pm

Title: Message Board virgin and clusterhead
Post by Mark M on Dec 26th, 2008 at 6:51pm
Let me start this by saying that this is my first post on any message board....ever.  I'm not even sure I did it right.  With that said...I'm going to break down and post something for the first time.  I'm a CLUSTERHEAD and it SUCKS.  I'm 35 and been a CH since I was 17.  I've been pain free for 5 years and actually thought the demon was gone for good until Christmas Eve when it hit me at 11:00 PM when my wife and I were putting presents under the tree.  They were BACK....out of nowhere....they were back like a bear awakening from hibernation.  It was surreal and for the past 2 nights I've been doing the dance for over 2 hours at a clip.  In the past, I punched a punching bag until by knuckles bled but this time I just prayed that none of my three boys inherit this weight..this burden.  I've visited this website for years....not registering because I thought somehow I'd be giving in to the beast.  Well....I'm in now....and am regretfully grateful that you guys are out there.

Title: Re: Message Board virgin and clusterhead
Post by Jonny on Dec 26th, 2008 at 6:57pm
Welcome home!.....sorry you have to be here!

Title: Re: Message Board virgin and clusterhead
Post by AussieBrian on Dec 26th, 2008 at 7:02pm
And welcome home. Pull up a chair, get comfortable, and there's no need to explain yourself. You're amonst friends now who really do understand what you're going through, from the inside.




Title: Re: Message Board virgin and clusterhead
Post by UnderTheRadar on Dec 26th, 2008 at 8:55pm
...and no one HERE will tell you to take aspirin, or go lie down, or meditate, or that it's all in your head!!!  :D

Title: Re: Message Board virgin and clusterhead
Post by [johnny] on Dec 27th, 2008 at 2:40am
glad you decided to post mark. my cycles are spread out over a few years too and last year they were at christmas time. instead of drinking hot chocolate by the fire enjoying some warm conversation with family and friends i was hanging out in my cold van, screaming and huffing o2.  

Title: Re: Message Board virgin and clusterhead
Post by seasonalboomer on Dec 27th, 2008 at 9:22am
Welcome Mark.

I too got the special holiday visitor. It's been a nice light cycle so far though.

You got your abortives all lined up yet? If it's been that long I'm guessing you're under-weaponized.

Get that call into the doc right away for a prescirption of O2.
It would have good chance of cutting that 2 hours into less than 10-15 minutes.

Best regards - and hang in there.

Scott

Title: Re: Message Board virgin and clusterhead
Post by Mark M on Dec 27th, 2008 at 10:15am
Way under weaponized.  I've been scrounging through the cabinets only to find some Amerge that expired in '05.  That never really worked anyway.  I'm going to the Cowboy/Eagles game tomorrow with some freinds tomorrow.....they are in for a rude awakening at the hotel unless I can get a hold of my doc.  Believe it or not, I never went the O2 route.  Definitely going to now.

Title: Re: Message Board virgin and clusterhead
Post by Rolomatic on Dec 27th, 2008 at 10:23am
Mark,

As an intractable daily chronic I can tell you that high flow O2 therapy has been my savior. Read the O2 threads, they are a wealth of info.

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Best,

Roland. ;)

Title: Re: Message Board virgin and clusterhead
Post by david martin on Dec 27th, 2008 at 11:15am
Hello! I too use 02. It works for me. It has cut the Imitrex injections way down. Its got to be 100% 02, no nose thing and at least 10 to 15 litters.

Title: Re: Message Board virgin and clusterhead
Post by [johnny] on Dec 27th, 2008 at 1:52pm

Mark M wrote on Dec 27th, 2008 at 10:15am:
Way under weaponized.  I've been scrounging through the cabinets only to find some Amerge that expired in '05.  That never really worked anyway.  I'm going to the Cowboy/Eagles game tomorrow with some freinds tomorrow.....they are in for a rude awakening at the hotel unless I can get a hold of my doc.  Believe it or not, I never went the O2 route.  Definitely going to now.


be firm with your doctor about the o2. don't leave his office with out a prescription. twist his arm around his back and make him say "uncle" if you have too.

Title: Re: Message Board virgin and clusterhead
Post by Just Plain Carl on Dec 27th, 2008 at 3:59pm
welcome Mark

Sorry the MF had to come back to visit you.

good luck with the O2.   Worked for me.

                            PFD's
                             JPC

Title: Re: Message Board virgin and clusterhead
Post by Guiseppi on Dec 27th, 2008 at 4:22pm
Another strong vote for the 02 here. Additionally, you may want to ask about a preventative medication. One you take daily, while on cycle, to reduce the number and intensity of your hits. I use lithium, other popular prevents are verapamil and topomax. Might help cut down the number of hits you're suffering.

Welcome home, sorry he found your adddress again.

Joe

Title: Re: Message Board virgin and clusterhead
Post by Mark M on Dec 27th, 2008 at 10:40pm
Doc porked me.  I haven't seen him in 5 years and he's itching for a visit & $.  That and he thought I was hunting for narcotics even though I told him I just wanted triptans.  All I got out of him was some Maxalt dissolves.....they used to work but only if I catch it at the first glimpse.  He's down with the O2 but I have to go see him to give him my schpeal and justify the script.....plus he wants the $ for the visit.  We'll see.....


Title: Re: Message Board virgin and clusterhead
Post by AussieBrian on Dec 27th, 2008 at 10:54pm
There's still alternatives:

a.) A complete O2 rig can be built from welders' gear. Details available here.

b.) Take his children hostage.

Title: Re: Message Board virgin and clusterhead
Post by BarbaraD on Dec 28th, 2008 at 6:19am
Another vote for the O2.  

Oh and welcome to Clusterville.

Load up on Red Bull (at the first sign of a hit) and Melatonin at night (to keep the demon away so ya can get some sleep).

Hope this is a short cycle and you get another 5 years without him..

Hugs BD

PS - I'm a die-hard "Cowboy's" fan, so you know who I'll be rooting for today... ;)

Title: Re: Message Board virgin and clusterhead
Post by Balanchine on Dec 28th, 2008 at 12:29pm
Mark, sorry you're back but glad you found us. The same thing happened to me last spring after a more or less 4 year remission.

I have a few generic Canadian Imitrex tabs left from my last cycle and I'll be happy to send you some, don't have many left but until you can get your oxygen going it might just get you through a night or two.

If you're interested, PM me with your address and I'll send them.

Hang in there.
David

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