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Cluster Headache Help and Support >> Cluster Headache Specific >> What does your CH pain "look" like?
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Message started by Jeannie on Dec 17th, 2008 at 4:38pm

Title: What does your CH pain "look" like?
Post by Jeannie on Dec 17th, 2008 at 4:38pm
Sorry I have been starting so many threads lately.   I just have a lot of thoughts rolling around in my usually empty head!  This'll be the last one for a while... I promise!

Ever since I was a little girl, I have kind of visualized what my pain would look like to others if it could be physically seen.

I would have a spike coming out of the top of my head...just to the right a little bit. It would go all the way down past my eye and to my cheek, right at my sinus.  There would be an ice pick stuck up my nose and in my ear.  There would be nails nailed into my teeth on the right side of my mouth.  

I am just curious what your pain would look like?

Jeannie


Title: Re: What does your CH pain "look" like?
Post by Just Plain Carl on Dec 17th, 2008 at 5:11pm
Big giant ugly red thing

Title: Re: What does your CH pain "look" like?
Post by wagwoman on Dec 17th, 2008 at 5:15pm
An electric bolt of lightning, sticking straight out of my right eye.

Title: Re: What does your CH pain "look" like?
Post by CH-HELL on Dec 17th, 2008 at 8:02pm
 A huge hook going in my left eye and coming out my left check near my teeth,  and the hook is conected to an electric fence.

Title: Re: What does your CH pain "look" like?
Post by Ray on Dec 17th, 2008 at 8:15pm
Like a red hot metal bar, dipped in acid, pushing out my right eye...


Ray

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Edited to add CH Demon drawing -- Not mine!

Title: Re: What does your CH pain "look" like?
Post by Batch on Dec 17th, 2008 at 8:58pm
I don't mean to be crude, but I prefer to visualize the beast's harry ass falling into the Grand Canyon like Wile E. Coyote being followed by a very large bottle of oxygen.

If you’re not hyperventilating on oxygen to abort your attacks, you’re not doing it right…

My little friends feel the same way.

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Title: Re: What does your CH pain "look" like?
Post by RichardN on Dec 17th, 2008 at 10:18pm
Great pic Batch . . . got a smile out of my wife as well

 Richard

Title: Re: What does your CH pain "look" like?
Post by Pixie-elf on Dec 17th, 2008 at 10:22pm
During the shadow phase? A gigantic shadow. It doesn't really have a form in my mind. Right before an attack, it's a little shadow-man sitting on my shoulder, pressing his hands on my left side of my face...

When the attack starts, he turns into a gigantic monster, his teeth tearing down, through my eye, or from the top of my head down. His mouth is wrapped around the left side of my head. He's squeezing my neck and shoulder with one hand, and I dance to try to fling him off.

Title: Re: What does your CH pain "look" like?
Post by thebbz on Dec 17th, 2008 at 10:24pm
Hell

Title: Re: What does your CH pain "look" like?
Post by Bob P on Dec 18th, 2008 at 6:50am

Quote:
If you’re not hyperventilating on oxygen to abort your attacks, you’re not doing it right…

Well don't that just figure!  Didn't do the shrooms right and now I'm not doing O2 right!
At least the O2 works even though I don't do it right!

Title: Re: What does your CH pain "look" like?
Post by Racer1_NC on Dec 18th, 2008 at 11:35am
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Title: Re: What does your CH pain "look" like?
Post by Jimi on Dec 18th, 2008 at 11:40am

Quote:
At least the O2 works even though I don't do it right!


Yep Bob, I guess we are the lucky ones. I never used a rebreather mask, just a regular one with no bag. Set the regulator to 8lpm and aborted in 10 minutes most times, sometime 15.

Title: Re: What does your CH pain "look" like?
Post by seasonalboomer on Dec 18th, 2008 at 11:42am
My favorite



awjeeznotthissheetagain15we.jpg (Attachment deleted)

Title: Re: What does your CH pain "look" like?
Post by Jeannie on Dec 18th, 2008 at 11:45am
So why does 02 work for some and not for others?  Are there any scientific reasons?

Thanks,
Jeannie

Title: Re: What does your CH pain "look" like?
Post by Jimi on Dec 18th, 2008 at 11:54am
.....or why does 02 work for most clusters and not migraines? Whereas Imetrix works for both?  I don't know.

Title: Re: What does your CH pain "look" like?
Post by gizmo on Dec 18th, 2008 at 12:03pm

Jeannie wrote on Dec 18th, 2008 at 11:45am:
So why does 02 work for some and not for others?  Are there any scientific reasons?


They don't even know for sure what causes it (the hypothalamus thing is only a theory), so ...

Oliver

Title: Re: What does your CH pain "look" like?
Post by seasonalboomer on Dec 18th, 2008 at 12:07pm

Jeannie wrote on Dec 18th, 2008 at 11:45am:
So why does 02 work for some and not for others?  Are there any scientific reasons?

Thanks,
Jeannie


As per the "god's wrath" theory, those that O2 works for have only committed "venial" sins, while non-O2 effective CH was caused by "mortal" sins.

(Please know that I'm kidding but couldn't help myself)

Title: Re: What does your CH pain "look" like?
Post by Artonio on Dec 18th, 2008 at 12:09pm
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with warm regards,
Tony

Title: Re: What does your CH pain "look" like?
Post by Jimi on Dec 18th, 2008 at 12:09pm
boomer, boomer, boomer...... ;D

Title: Re: What does your CH pain "look" like?
Post by Jimi on Dec 18th, 2008 at 12:11pm
And the Oscar goes to.........Tony.

Title: Re: What does your CH pain "look" like?
Post by Jeannie on Dec 18th, 2008 at 12:34pm

seasonalboomer wrote on Dec 18th, 2008 at 12:07pm:

Jeannie wrote on Dec 18th, 2008 at 11:45am:
So why does 02 work for some and not for others?  Are there any scientific reasons?

Thanks,
Jeannie


As per the "god's wrath" theory, those that O2 works for have only committed "venial" sins, while non-O2 effective CH was caused by "mortal" sins.

(Please know that I'm kidding but couldn't help myself)

I have often wondered what I could have done for God to give me such pain... in my "why me" moments.  

Title: Re: What does your CH pain "look" like?
Post by gizmo on Dec 18th, 2008 at 12:38pm

Quote:
I have often wondered what I could have done for God to give me such pain... in my "why me" moments.  


I prefer to think that we clusterheads are too kind / gentle / strong / ... (fill in whatever is appropriate) and that this is the reason we've got this "present"  ;)

Oliver

Title: Re: What does your CH pain "look" like?
Post by starlight on Dec 18th, 2008 at 1:27pm
Along those lines, they say "God only gives you what you can handle".  Well, not trying to brag, but if anyone else in my family had CH for even a week, never mind 20 years, I truly believe they would not be able to "handle" it.  But why anyone at all has to get it, that part I don't know.

Title: Re: What does your CH pain "look" like?
Post by Jeannie on Dec 18th, 2008 at 1:44pm
"God only gives you what you can handle".

 I wish God wouldn't give me so much credit!

Title: Re: What does your CH pain "look" like?
Post by UnderTheRadar on Dec 18th, 2008 at 2:36pm
BWAHAHAAAA!! Boomer, do you realize I've had that picture as my avatar for a week??  hehehe

"Great minds think alike...and fools seldom differ."

Title: Re: What does your CH pain "look" like?
Post by UnderTheRadar on Dec 18th, 2008 at 2:47pm
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Title: Re: What does your CH pain "look" like?
Post by BlueDog on Dec 18th, 2008 at 3:44pm
OUCH!  :o  Bluedog

Title: Re: What does your CH pain "look" like?
Post by Nicholas on Dec 18th, 2008 at 3:59pm
like a razor sharp electrified harp string pressing against the back of my eye, plucked  by some infernal madman squatting in my head  :D

Title: Re: What does your CH pain "look" like?
Post by Rolomatic on Dec 18th, 2008 at 4:30pm
Like Chucks video... Feels like a hot soldering iron in the back of my eye!

Roland. ;)

Title: Re: What does your CH pain "look" like?
Post by UnderTheRadar on Dec 18th, 2008 at 4:58pm
You know, I told my doc it's like Charles Mingus playing "C Boogie" on my optic nerve, and god bless'er, she got it!!  ;D

Title: Re: What does your CH pain "look" like?
Post by thebbz on Dec 18th, 2008 at 6:29pm

Quote:
(the hypothalamus thing is only a theory),

Abnormal grey matter growth in the hypthalamus has been confirmed with PET scans of cluster patients and is not a theory.
the bb


Quote:
Classified as a trigeminal autonomic cephalalgia, cluster headache is characterized by recurrent short-lived excruciating pain attacks, which are concurrent with autonomic signs. These clinical features have led to the assumption that cluster headache's pathophysiology involves central nervous system structures, including the hypothalamus. In the past decade, neuroimaging studies have confirmed such clinically derived theory by uncovering in vivo neuronal changes located in the inferior posterior hypothalamus. Using a variety of neuro-imaging techniques (functional , biochemical , and structural ) in patients with cluster headache, we are making improvements in our understanding of the role of the brain in this disorder. This article summarizes neuroimaging findings in cluster headache patients, describing neuronal changes that occur during attacks and remission, as well as during hypothalamic stimulation.

Title: Re: What does your CH pain "look" like?
Post by CH-HELL on Dec 18th, 2008 at 8:58pm

Ray wrote on Dec 17th, 2008 at 8:15pm:
Like a red hot metal bar, dipped in acid, pushing out my right eye...


Ray

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Edited to add CH Demon drawing -- Not mine!

 I have a tattoo very similar too this picture.

Title: Re: What does your CH pain "look" like?
Post by starlight on Dec 18th, 2008 at 9:21pm
Jeannie,

I'm right with you on that one!  

Title: Re: What does your CH pain "look" like?
Post by DonnaH_again on Dec 18th, 2008 at 9:32pm
That picture of the devil with his fist in the sufferers eye was drawn by one of our members by the name of Fletcher (sp?)  It is copywritten.

Dr. Goadsby has confirmed that the hypothalamus of a ch sufferer is larger than those who don't have ch.  Please use the menu to the left to find articles and archieved threads in regard to it's action and importance in the cause of cluster headache.

My headaches started with a blow torch which got hotter and hotter until it melted my skull on the headache side including my eye, the bone surrounding my eye and nose.

Title: Re: What does your CH pain "look" like?
Post by lwkreu on Dec 18th, 2008 at 11:51pm
Red hot crowbar thrust in through the base of my skull and scraping the back of my eyeball. Or, amateur brain surgery without anesthesia. Maybe, slow death by being struck in the head by a ball peen hammer for months on end.

Title: Re: What does your CH pain "look" like?
Post by lwkreu on Dec 18th, 2008 at 11:53pm
Nice visual.

Title: Re: What does your CH pain "look" like?
Post by Rolomatic on Dec 19th, 2008 at 12:11am

lwkreu wrote on Dec 18th, 2008 at 11:51pm:
Red hot crowbar thrust in through the base of my skull and scraping the back of my eyeball. Or, amateur brain surgery without anesthesia. Maybe, slow death by being struck in the head by a ball peen hammer for months on end.


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Jesus, I start crying just watching it every time I see it! It takes a lot of balls to do a video like that and post it for all to see. :'(

EDIT TOO ADD: For up to an hour at a time whenever the interrogator pleases... :-X

Title: Re: What does your CH pain "look" like?
Post by gizmo on Dec 19th, 2008 at 2:25am

wrote on Dec 18th, 2008 at 6:29pm:

Quote:
(the hypothalamus thing is only a theory),

Abnormal grey matter growth in the hypthalamus has been confirmed with PET scans of cluster patients and is not a theory.
the bb

True, but it isn't clear if this is the reason or a symptom.

The hypothalamus theory sounds valid but I yet have to see a proof.
Until then it is only a theory - at least to me.

Oliver

Title: Re: What does your CH pain "look" like?
Post by George on Dec 19th, 2008 at 2:52am
A little of this:

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And a little of this:

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And a little of that:

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Best,

George


Title: Re: What does your CH pain "look" like?
Post by Jeannie on Dec 19th, 2008 at 10:41am

wrote on Dec 19th, 2008 at 12:11am:

lwkreu wrote on Dec 18th, 2008 at 11:51pm:
Red hot crowbar thrust in through the base of my skull and scraping the back of my eyeball. Or, amateur brain surgery without anesthesia. Maybe, slow death by being struck in the head by a ball peen hammer for months on end.


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Jesus, I start crying just watching it every time I see it! It takes a lot of balls to do a video like that and post it for all to see. :'(

EDIT TOO ADD: For up to an hour at a time whenever the interrogator pleases... :-X



I too cry when I see Chuck's video.  Then when I read his posts and see what a remarkable attitude he has it moves me even more.  He is an inspiration to me...really you all are, but Chuck especially.  When I compare my battle for just four or six months a year to his daily battle,  I have it really easy.  I am so looking forward to meeting him in Jan!

Jeannie

George,  Ya know how people will sometimes say, " I had a CH once"?

Well... I had a boulder fall on my car like that....once!  LOL!

Title: Re: What does your CH pain "look" like?
Post by starlight on Dec 19th, 2008 at 2:31pm
Oliver,

I too believe it is a valid theory.  However, I am curious just what one should infer from this knowledge (abnormal cells in hypothalamus).  How does this specifically cause the cluster headaches?  
In my opinion, and it has become quite a humble one :) after being here (probably a good thing) I think that CH bears many unexplored similarities to bipolar illness, for which, to the best of my knowledge that illness is not blamed on abnormal brain structure.  A primary thing that needs to be looked at (again in my very humble opinion) is why the illness is seasonal (so to speak) and in between the person returns to normal functioning (in the majority of cases--believe me I know not all do)--but to uncover what is causing CH that "phenomenon" needs to be looked at VERY carefully.  

Title: Re: What does your CH pain "look" like?
Post by gizmo on Dec 19th, 2008 at 2:48pm
In my opinion clusters are the result of different circumstances one of them being a messed up hypothalamus (leading to wrong timing of hormone disposal and the like).

The hypothalamus would at least explain the seasoning for the episodics.
I'm chronic myself and even in my episodic past I never had clusters bound to seasons - well at least not obvious ones (season in this case isn't necessarily in an annual context).

Side note: I also believe that Cluster Headache as a diagnose itself isn't the whole truth. There are far too many different forms of clusters (which respond or don't respond to different treatments) to be a singular, well defined and distinguished disease.

Oliver

Title: Re: What does your CH pain "look" like?
Post by Nyteguardyan on Dec 19th, 2008 at 3:05pm
The pain is like a supernova exploding behind my right eye. The white hot fire of the sun compressed into my brain. The pressure on the back of my eye feels equal to the pressure the jaws of life pushing a door away from the frame of a car. >:(

Title: Re: What does your CH pain "look" like?
Post by Jeannie on Dec 19th, 2008 at 3:15pm
I wish I could remember where I read this... most likely here somewhere, but I have read that some feel that CH is more like a seizure disorder than a HA disorder.  In our cases we experience pain rather than convulsions.  I thought that this was an interesting concept.  

I personally believe that if my seretonin weren't all messed up, I'd be in good shape.  It seems that most of my medical issues have to do with hormones.   I have had CH since I was ten...  have had issues with depression since I was a teen.... as an adult I was Dxed with Fibromyalgia.  If we could just fix my seretonin... I'd be perfect! ;)

Jeannie

Title: Re: What does your CH pain "look" like?
Post by DonnaH_again on Dec 19th, 2008 at 3:23pm
For those of you doubting "theories", please click and read...........

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If you go to our left margin and click on the OUCH button, you are in for a great education about cluster headaches.

Title: Re: What does your CH pain "look" like?
Post by Jeannie on Dec 19th, 2008 at 3:45pm
Hey Donna, Thank you for the the info.   I have read SO many times here, that people with CH are not light and sound sensitive.  I was glad to read differently!  I am actually afraid sometimes to admit some of my symptoms for fear of others here thinking that I don't really have CH.  I am so sensitive to sound during a hit that the sound of my husband softly breathing while he sleeps even bothers me.  During a cycle, driving in a car when the sun flickers from behind trees that I am passing will trigger a hit.

I was talking with Jackie and she mentioned that Blake has shadows even when not in cycle.  I do too.  I'm just glad to know that I'm not alone in all my symptoms that don't conform to " classic" CH.  

Thanks again.  BTW, I don't doubt the theories.  I'm so glad that someone out there is taking the time to come up with some!  Someday they'll lead to a cure!

Jeannie

Title: Re: What does your CH pain "look" like?
Post by gizmo on Dec 19th, 2008 at 3:47pm

Quote:
May et al.: PET and MRA findings in cluster headache and MRA in experimental pain Neurology 2000;55

Using the advanced method of voxel-based morphometry, it has been suggested that there is a correlation between the brain area activated specifically in acute cluster headache--the posterior hypothalamic grey matter--and an increase in grey matter in the same region.



Quote:
Goadsby PJ., Pathophysiology of cluster headache: a trigeminal autonomic cephalgia. Lancet Neurol. (2002)

Observations of circadian biological changes and neuroendocrine disturbances have suggested a pivotal role for the hypothalamus in cluster headache.


"Suggested" doesn't sound like a proof to me.

Title: Re: What does your CH pain "look" like?
Post by Rolomatic on Dec 19th, 2008 at 3:56pm
Donna & Jeannie,

Before I started lithium I was horribly light and sound sensitive. I hid like a vampire in a quiet casket all the time…

Roland. [smiley=twocents.gif]

Title: Re: What does your CH pain "look" like?
Post by UnderTheRadar on Dec 19th, 2008 at 5:11pm
I have a strong hunch that this has to do with the Affective Spectrum Disorders, of which I have about half...and they are all sometimes treatable with the same meds...but it's gonna be eons before they really understand any of this.

Title: Re: What does your CH pain "look" like?
Post by thebbz on Dec 19th, 2008 at 7:20pm

Quote:
"Suggested" doesn't sound like a proof to me.


If you have something better, bring it to light.
the bb

Title: Re: What does your CH pain "look" like?
Post by pubgirl on Dec 19th, 2008 at 7:34pm

gizmo wrote on Dec 19th, 2008 at 3:47pm:

Quote:
May et al.: PET and MRA findings in cluster headache and MRA in experimental pain Neurology 2000;55

Using the advanced method of voxel-based morphometry, it has been suggested that there is a correlation between the brain area activated specifically in acute cluster headache--the posterior hypothalamic grey matter--and an increase in grey matter in the same region.


[quote]
Goadsby PJ., Pathophysiology of cluster headache: a trigeminal autonomic cephalgia. Lancet Neurol. (2002)

Observations of circadian biological changes and neuroendocrine disturbances have suggested a pivotal role for the hypothalamus in cluster headache.


"Suggested" doesn't sound like a proof to me.[/quote]

Suggest you look at more recent research. Goadsby hasn't actually been asleep since 2002

W

Title: Re: What does your CH pain "look" like?
Post by [johnny] on Dec 19th, 2008 at 10:50pm
anybody ever seen the movie "american warewolf in london"  when hes in that nurses appartment and all the sudden his face gets all streched out and his fingers grow and he rips off his clothes and within a few short minutes hes a beast.  one minute your sitting there watching tv relaxing and 2 or 3 minutes later your a completely different animal. then after your hair shrinks back to normal and your claws turn back to fingernails, you wake up naked in a zoo and kids are poking you with a stick. ;D
something else i've thought about is those peta videos when they skin a live animal, then throw him down in the dirt with all his nerves exposed and he just lies there confused and terrified.

Title: Re: What does your CH pain "look" like?
Post by CH-HELL on Dec 19th, 2008 at 11:19pm

-johnny- wrote on Dec 19th, 2008 at 10:50pm:
anybody ever seen the movie "american warewolf in london"  when hes in that nurses appartment and all the sudden his face gets all streched out and his fingers grow and he rips off his clothes and within a few short minutes hes a beast.  one minute your sitting there watching tv relaxing and 2 or 3 minutes later your a completely different animal. then after your hair shrinks back to normal and your claws turn back to fingernails, you wake up naked in a zoo and kids are poking you with a stick. ;D
something else i've thought about is those peta videos when they skin a live animal, then throw him down in the dirt with all his nerves exposed and he just lies there confused and terrified.


 Thats a good one Jonny,  has anyone seen the show True Blood?  If you havn't its on HBO and it about vampires and the vamps tears are blood,  now when I get hit hard my left eye waters and I always think its got to be blood coming out of my eye.  Anyone who has there eye water during a hit watch the intro to that show and tell me what you think.
           Phil 8-)

Title: Re: What does your CH pain "look" like?
Post by AussieBrian on Dec 19th, 2008 at 11:27pm
My big regret since becoming a victim of ch.com is that I never kept a copy of every poem written on the subject. As a collection it would make a very telling story.

Title: Re: What does your CH pain "look" like?
Post by gizmo on Dec 20th, 2008 at 6:48am

pubgirl wrote on Dec 19th, 2008 at 7:34pm:
Suggest you look at more recent research. Goadsby hasn't actually been asleep since 2002



Quote:
CLUSTER Headache: The Journal of Head and Face Pain
Volume 45, Issue 3, Date: March 2005, Pages: 266-267

Positron emission tomography and functional MRI studies have shown that the ipsilateral posterior hypothalamus is activated during cluster headache attacks and is structurally asymmetric in these patients. These changes are highly specific for the condition and suggest that the cluster headache generator may be located in that brain area


Again: I don't say that the hypothalamus theory doesn't sound valid. I only say it isn't proven.

Title: Re: What does your CH pain "look" like?
Post by gizmo on Dec 20th, 2008 at 7:52am

Quote:
If you have something better, bring it to light.

If I had something better I'd be rich.  ;D

Title: Re: What does your CH pain "look" like?
Post by barry_sword on Dec 20th, 2008 at 9:47am
This is me with a "after hit pic" before I got my o2 setup!

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Title: Re: What does your CH pain "look" like?
Post by DonnaH_again on Dec 20th, 2008 at 11:43am
Check out Bob Johnsons thread "Brain scan research" just down this page a bit.  

Much newer studies and not just suggesting facts.

Title: Re: What does your CH pain "look" like?
Post by gizmo on Dec 20th, 2008 at 11:49am
I've already read it.
The activation of the hypothalamus is a known fact, what is not known is if this is the cause or the result.

Title: Re: What does your CH pain "look" like?
Post by CH-HELL on Dec 20th, 2008 at 12:39pm

wrote on Dec 18th, 2008 at 9:32pm:
That picture of the devil with his fist in the sufferers eye was drawn by one of our members by the name of Fletcher (sp?)  It is copywritten.


 Oh shit copywritten! START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE
Does that mean I have to have this removed.  LOL  I drew this myself.

 Phil 8-)

Title: Re: What does your CH pain "look" like?
Post by CH-HELL on Dec 20th, 2008 at 12:56pm
 Sorry the pic is huge and looks bad! :P

Title: Re: What does your CH pain "look" like?
Post by UnderTheRadar on Dec 20th, 2008 at 9:46pm
HAHAHAAA.....that's awesome, man!!  

That gets me thinking- how about a tattoo of an O2 "hookup" thingie?  You know what I mean... ;D

Title: Re: What does your CH pain "look" like?
Post by starlight on Dec 20th, 2008 at 10:24pm
I agree with all of that that there are similarities with SAD, seizure disorder, and there is definitely something not right with the serotonin!
It IS like you are waking up and having some kind of seizure except it is pain.  Maybe some kind of brain seizure?  Or at least something that feels like one.

Title: Re: What does your CH pain "look" like?
Post by starlight on Dec 20th, 2008 at 10:38pm
If anyone is interested here is an interesting article on comorbidity of epilepsy and migraine, good article (not sure if they are including cluster headache under the "umbrella" of migraine)
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Title: Re: What does your CH pain "look" like?
Post by Pixie-elf on Dec 22nd, 2008 at 9:58pm
[quote author=6A6D786B75707E716D190 link=1229549930/63#63 date=1229830682]If anyone is interested here is an interesting article on comorbidity of epilepsy and migraine, good article (not sure if they are including cluster headache under the "umbrella" of migraine)
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One of my neuro's told me that it was believed that migraines set off in a similar manner in the brain, as a seizure. This was back when I was having them, so...about 8-10 years ago. Dunno if it still holds true or not.

My Mom has mentioned tht watching me go through the attack, and after, reminds her of when I had seizures. She said I get the same 'blank' look when the attack starts, and afterwards, I sometimes look dazed and confused. She thought at first it was my seizures resurging after all this time without them.

I don't know if it's because they're connected somehow, or what. I do know, both drain you mentally and physically. Neither is easy to recover from. It could just be due to the fact that the brain is having it's own issues that they seem similar.

Title: Re: What does your CH pain "look" like?
Post by Jeannie on Dec 23rd, 2008 at 3:12pm
Thank you all for responding to this post.  It has been very interesting to me to read how you "see" your pain.  It has also made me sad for each of you.  There really is no one who can understand our pain like another sufferer can.  It almost makes me ashamed of myself that I find comfort in that there are others who know my pain.  

My wish and prayer for all of us is that we someday are cured of this thing we all have in common.  

Thank you to every supporter that visits this site.  You not only support your sufferer.. you support us here as well.  You are angels.

Much love,

Jeannie

Title: Re: What does your CH pain "look" like?
Post by Snapper21 on Dec 23rd, 2008 at 7:16pm

Bob P wrote on Dec 18th, 2008 at 6:50am:

Quote:
If you’re not hyperventilating on oxygen to abort your attacks, you’re not doing it right…

Well don't that just figure!  Didn't do the shrooms right and now I'm not doing O2 right!
At least the O2 works even though I don't do it right!


Don't you just eat them???? Man life is tough.

Atilla the hun jamming a lightning bolt right through my eye and coming out my chin.

Title: Re: What does your CH pain "look" like?
Post by Kirk on Dec 23rd, 2008 at 8:41pm
  Sort of like the deck crane hook going through my eye and out the top of my head, and a lead line attached to my teeth, while being hoisted into the air and jerked around for what seems like forever.
  While the crab in the hold clack their claws in applause.

[smiley=smokin.gif]

Title: Re: What does your CH pain "look" like?
Post by Ray on Dec 23rd, 2008 at 11:29pm
Kirk:

That's quite the picture....

[smiley=smokin.gif]

Ray

Title: Re: What does your CH pain "look" like?
Post by UnderTheRadar on Dec 24th, 2008 at 5:14pm
Here's  a tattoo for ya!  (I did it 2 days ago, but I'm lazy about uploading  ;) )

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O2 4 LIFE, yo!

Title: Re: What does your CH pain "look" like?
Post by Rolomatic on Dec 24th, 2008 at 5:44pm

UnderTheRadar wrote on Dec 24th, 2008 at 5:14pm:
Here's  a tattoo for ya!  (I did it 2 days ago, but I'm lazy about uploading  ;) )
O2 4 LIFE, yo!


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Beautiful tat, and the recipient’s pretty good lookin too!!!

Title: Re: What does your CH pain "look" like?
Post by UnderTheRadar on Dec 25th, 2008 at 1:17am
BWAHAHAAHAA!!  Oh boy, I should have been more clear- I photoshopped that picture....I WISH I looked like her right now!!  But I've been fightin' the beast for 6 months now, and he trashed my ass!!!  ;D

I took a stock photo of a model and a picture of an oxygen tank, and made the "O2 4 LIFE" banner and slapped it together.  But thank you- I must have done a pretty good job if anyone thought it was real!

Title: Re: What does your CH pain "look" like?
Post by Rolomatic on Dec 25th, 2008 at 1:39am
Kind of looks a lot like this:

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Video of K10 attack:
YouTube - Scanners (1981) Head Explosion Shot

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This pretty much conveys the essence IMHO; in an equally graphic manor.
I’m expounding on Tony’s answer and adding the whole video clip to it…

Rolo… :D

Title: Re: What does your CH pain "look" like?
Post by midwestbeth on Dec 27th, 2008 at 7:29pm
Pure white hot pain.

Title: Re: What does your CH pain "look" like?
Post by Jonny on Dec 27th, 2008 at 7:47pm
You cant "Look" at CH pain.....sorry!

Title: Re: What does your CH pain "look" like?
Post by seasonalboomer on Dec 27th, 2008 at 10:23pm

Jeannie wrote on Dec 23rd, 2008 at 3:12pm:
 It has also made me sad for each of you.


Don't feel sad. Half the responses you have on this thread are from soldiers in this battle who have found a way to integrate humor into this subject. If you can laugh at it, it hasn't won.

Title: Re: What does your CH pain "look" like?
Post by AussieBrian on Dec 28th, 2008 at 4:06am

wrote on Dec 27th, 2008 at 7:47pm:
You cant "Look" at CH pain.....sorry!

Is this a statement of fact, Jonny, or your personal opinion?

I can certainly "Look" at my CH pain. I can feel it, smell it, touch and taste it.

Perhaps you meant that you, personally, can't "Look" at CH pain but that doesn't make the rest of us wrong.



Title: Re: What does your CH pain "look" like?
Post by Jeannie on Dec 28th, 2008 at 8:04pm
I realize you can't REALLY look at it.  I was just wondering what a visualization of your pain would look like.

Jeannie

Title: Re: What does your CH pain "look" like?
Post by brian trudeau on Jan 1st, 2009 at 2:10pm
Here was me for the holidays
clusterhead1.jpg (Attachment deleted)

Title: Re: What does your CH pain "look" like?
Post by Fenton on Jan 2nd, 2009 at 12:42am
if i could see my pain it would be a 10lb large mouth bass i fought for 20min with the grotesstly looking lures treble hook ripping out the top of his neck and pulling his eye inward threw his body as it explodes and hes still fighting for all hes worth!!!!!!!!!!!!!!!!!!!!

Title: Re: What does your CH pain "look" like?
Post by [joHnny]w_ an_h on Mar 4th, 2009 at 4:28pm

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;D

Title: Re: What does your CH pain "look" like?
Post by RaceAce on Mar 4th, 2009 at 5:35pm
Here is my pain !

The biggest ugliest troll you have ever seen in a Harry Potter film, just pounding away at my head !

Hiding in the shadows waiting to strike, well one day i will strike back  >:(

Title: Re: What does your CH pain "look" like?
Post by black on Mar 4th, 2009 at 7:24pm
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thats exactly what happens during crisis in my head

Title: Re: What does your CH pain "look" like?
Post by [joHnny]w_ an_h on Mar 5th, 2009 at 12:13am

black wrote on Mar 4th, 2009 at 7:24pm:
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thats exactly what happens during crisis in my head


sometimes it feels like that doesn't it ;D

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