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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Cluster Headache Specific >> Advice-Im new here http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1228997792 Message started by vanbogelenm on Dec 11^th, 2008 at 7:16am

Title: Advice-Im new here
Post by vanbogelenm on Dec 11^th, 2008 at 7:16am

Hi im new to this site but not to ch. Ive been getting ch for the last 12 years and just recently found this site and only just recently started getting help for ch as i havent had health insurance til now. Just had a quick question though... i want to start using o2 and just wanted any and all information i could get. Do i need a prescription or can i do it on my own? Advice for where and what to buy? I know nothing about it so if someone could let me know, i would really appreciate it. This site is awesome by the way!

Title: Re: Advice-Im new here
Post by Jackie on Dec 11^th, 2008 at 7:23am

Good Morning and welcome to CH.com. There is a wealth of information here as well as support.

You will need a prescription for medical 02.

Check out the information on the 'medication, treatment, therapies' board. There are two threads at the very top of the board with tons of informaton on 02 use and equipment....pictures included. Also check out the 'oxygen info' tab on the left.

Others will be along shortly to answer questions for you.

Again....welcome,
Jackie

edited for typo >:(

Title: Re: Advice-Im new here
Post by Guiseppi on Dec 11^th, 2008 at 10:52am

Welcome to the board, so glad you found us. You will need a prescription, oxygen is a controlled substance! It should read something along the lines of:

Oxygen, at a flow rate of at least 15LPM, using a NON RE BREATHER MASK, (Cap'd for emphasis, very important. Rebreather masks and nasal canulas are worthless) as needed.

For 02 to work your lungs must get only oxygen. No outside air and no exhaled air.

Go to the medications and treatments page and read the following 2 links, Oxygen Terms Explained and Help in Getting oxygen. Chuck has done an awesome job including full color pics to show you examples of set ups.

Keep asking questions, knowledge is power!

Joe

Title: Re: Advice-Im new here
Post by Marc on Dec 11^th, 2008 at 10:57am

Jackie wrote on Dec 11^th, 2008 at 7:23am:

..............

...... Also check out the 'oxygen info' tab on the left...........
Again....welcome,
Jackie

The "oxygen info" tab on the left seem to be mostly advertising for the products that LifeGas sells as opposed to Oxygen Info.

Chuck's threads have the real info.

Marc

Title: Re: Advice-Im new here
Post by Balanchine on Dec 11^th, 2008 at 11:00am

I add my welcome. I'd also mention that, should you have any trouble scoring medical oxygen through your doctor/insurance company, the O2 used in welding is perfectly safe to breathe and is in fact the same gas from the same sources. Many here, including myself, use it regularly.

Let us know if you need more info on this.

Good luck!
David

Title: Re: Advice-Im new here
Post by Balanchine on Dec 11^th, 2008 at 11:02am

Marc wrote on Dec 11^th, 2008 at 10:57am:

Jackie wrote on Dec 11^th, 2008 at 7:23am:

..............

...... Also check out the 'oxygen info' tab on the left...........
Again....welcome,
Jackie

The "oxygen info" tab on the left seem to be mostly advertising for the products that LifeGas sells as opposed to Oxygen Info.

Chuck's threads have the real info.

Marc

Yeah Marc, I noticed that as well. Verrrrry strange...

Title: Re: Advice-Im new here
Post by Marc on Dec 11^th, 2008 at 11:18am

I'm sure that it helps support the cost of running this site.

Title: Re: Advice-Im new here
Post by Just Plain Carl on Dec 11^th, 2008 at 12:44pm

Welcome Van..........
Looks like you have gotten some good advice so far.

I got hooked with oxygen this time around and it worked wonders. All thanks to the good people on this site

PFD's
JPC

Title: Re: Advice-Im new here
Post by Balanchine on Dec 13^th, 2008 at 2:16pm

Marc wrote on Dec 11^th, 2008 at 11:18am:

I'm sure that it helps support the cost of running this site.

Yes, Marc, no doubt. And for that I support its presence without question. Although perhaps there might be some other options on the link? Or maybe a second link, one for general info and another for where to go to purchase. Anyway just an idea.

Title: Re: Advice-Im new here
Post by Jimi on Dec 13^th, 2008 at 2:28pm

There is. Go out of this thread and go to Medications, Treatments and Therapies. Look up at the top and you will see 2 different threads on 02 by Cluster Chuck. They are stickied. Everything you need to know about 02 is there.

Title: Re: Advice-Im new here
Post by Linda_Howell on Dec 13^th, 2008 at 4:23pm

Welcome Van,

Oxygen is a wonderful abortive during an attack but will not help you to prevent one, so you should have a plan of action in place to prevent them. Here is a link to several preventatives you should read and discuss with your Dr.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE

Knowledge really is power when it comes to this condition so read, read, read and ask questions. That is what we're here for. As Guiseppi has said here many times...if you go to your Dr. sit down and say "fix me" your results will be very poor. This condition of ours is so rare and Dr.s get so little training in them that WE must be our own advocate. It truly is important.

Now don't be afraid to ask questions, o.k.?

Linda

Title: Re: Advice-Im new here
Post by Balanchine on Dec 13^th, 2008 at 8:17pm

Jimi wrote on Dec 13^th, 2008 at 2:28pm:

That's good to know, Jimi, and thanks.... but perhaps someone new to the site would find it more expedient to look at the sidebar and click there, in the same way he or she could find information about Imitrex or water. Just a thought.