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Message started by Rolomatic on Nov 23rd, 2008 at 2:13pm

Title: What are your triggers?
Post by Rolomatic on Nov 23rd, 2008 at 2:13pm
Triggers I know of (for me) in order of severity:

1, MSG
2. Fresh strawberries
3, Beer
4, Mountain Dew, cola, and root beer
5, Anger (always get hit after a spat with the wife) I call it Eves revenge!
6, Quick changes in atmospheric pressure and weather.

Rolo….. :)

Title: Re: What are your triggers?
Post by gizmo on Nov 23rd, 2008 at 2:17pm
1. Aspartam
2. MSG
3. the transition from high to low atmospheric pressure
4. hunger

Oliver

Title: Re: What are your triggers?
Post by Lenny on Nov 23rd, 2008 at 2:53pm
1) humidity

2) sometime's bright light's

3) diesel fuel

4) small breast's

Title: Re: What are your triggers?
Post by Skyhawk5 on Nov 23rd, 2008 at 5:28pm
1. Alcohol

2. MSG

3. Smells; Gasoline, hair dye, solvents, etc.

4. Hunger, missed meals.

5. Loud noises.

6. Bright lights.

Title: Re: What are your triggers?
Post by Melissa on Nov 23rd, 2008 at 5:32pm
Barometric pressure
Alcohol
MSG
Smell of gasoline & certain colognes

Title: Re: What are your triggers?
Post by Ppattya on Nov 23rd, 2008 at 5:40pm
1. bright lights
2. Strong smells, even good ones
3. Loud sounds
4. MSG
5. Wine, Beer, wiskey ect.
6. Dreaming????

Title: Re: What are your triggers?
Post by Ppattya on Nov 23rd, 2008 at 5:42pm
Oh, and I have to add  PLANES PLANES PLANES at least the flying kind

Weather changes
My brother's face!  LOL

Title: Re: What are your triggers?
Post by Rolomatic on Nov 23rd, 2008 at 5:44pm
Skyhawk, Sound and light were horrible for me until I started on lithium.  ;)

Title: Re: What are your triggers?
Post by Ray on Nov 23rd, 2008 at 7:25pm
Triggers are:

Looking at something that is back-lit
Flashing/strobing lights (Like when the police pull you over at night!)
Strong Odors, including:
    gasoline
    exhaust fumes
    floral perfumes (I'll avoid the perfume counter in dept. stores)
    organic solvents (ie. eg. toluene, acetone, etc.)
alcohol, but I rarely touch the stuff...
marijuana, don't do it any more...
going from heat to cold or cold to heat (like in winter, going out to a cold car and cranking the heat up, then going outside.  In summer, going from air conditioning to hot outside and back again)

I'll probably think of some more later.

Wishing you well,

Ray   8-)

Edited to add the following triggers:

Artificial cinnamon scent used around this time of year to add smell to decorative brooms (not yours Helen).

I avoid the scents in the detergent aisle in stores too.

Title: Re: What are your triggers?
Post by FramCire on Nov 23rd, 2008 at 8:32pm
Chocolate.

Title: Re: What are your triggers?
Post by MITYRARE on Nov 23rd, 2008 at 9:02pm
chocolate
air/wind blowing on my face
bright sunlight
smell of pinesol
weather changes
air con

Title: Re: What are your triggers?
Post by MrsT on Nov 23rd, 2008 at 9:26pm
1. direct sunlight
2. alcohol
3. heat including exercise, cooking, showers, and baths
4. LOW humidity coupled with heat (Santa Ana)
5. stress and anxiety
6. unspecified bad air
7. crying
8. maybe hunger
...............and of course REM sleep is very high on the list  :'(.

Title: Re: What are your triggers?
Post by Rolomatic on Nov 23rd, 2008 at 9:31pm

Lenny wrote on Nov 23rd, 2008 at 2:53pm:
4) small breast's


I’m sure there’s a few women who have small sausages on their list! ;D

Title: Re: What are your triggers?
Post by CH-HELL on Nov 23rd, 2008 at 9:40pm
Red wine
flashing lights
strong odors
weather
sleep :(
too many other things that I aviod like msg, cashews, ect....

Title: Re: What are your triggers?
Post by Racer1_NC on Nov 23rd, 2008 at 10:08pm
That cheap "old lady's" perfume.......will set me off everytime.

Title: Re: What are your triggers?
Post by on my knees on Nov 23rd, 2008 at 10:17pm
alcohol
dark chocolate
flashing lights
msg
strong cheap perfume
jet fuel (and i work at an airport go figuare)
stress and anxiety
anger
hunger
dropping altitude in a plane
heat

no specific order  they all suck

Title: Re: What are your triggers?
Post by mezza on Nov 23rd, 2008 at 10:33pm
only while in cycle:

magic marker smell ( sharpies and the like)
orange juice
cold juice boxes (capri sun etc)
cleaning sprays
hot hot baths
alcohol- beer wine etc

nothing else that I can clearly make a connection to.

kelly

Title: Re: What are your triggers?
Post by Rolomatic on Nov 23rd, 2008 at 11:03pm
I watched a documentary on DSC on how chocolate is made and they ferment the coco beans as part of the process. I suspect there is some residual chemical compound that is the culprit and the same thing with the beer. Only Kit-Kat bars have flaged me, the rest is OK.

Rolo.. ;)

Title: Re: What are your triggers?
Post by maalstroom on Nov 24th, 2008 at 6:15am
The ones I am absolutely sure off, and only while in cycle, are:

Daylight/sunlight
Alcohol
Strong smells such as:
perfumes
dissolvents
deodorants
cleaning materials

spicy foods like Lebanese, Greek, Turkish, Israelian, Arabian
sleep

Have been on the look out for others, but still not sure about those

Greetings, Pascal.

Title: Re: What are your triggers?
Post by Perediablo on Nov 24th, 2008 at 12:47pm
Alcohol
Cheap perfumes/cologne
sleep
hunger
heat (internally overheated...exercise, working, etc)

to a lesser degree:
bad music
stupidity
work

Title: Re: What are your triggers?
Post by starlight on Nov 24th, 2008 at 6:30pm
In cycle
1.  laying down
2.  fluorescent lights (sometimes)
3.  wine

Out of cycle
1.nothing

Title: Re: What are your triggers?
Post by BMoneeTheMoneeMan on Nov 25th, 2008 at 1:11am
1. High heat like sauna or hot tub.
2. Flying
3. Changing sleep pattern
4. Change in altitude such as going to high desert in N AZ or central OR
5. Alcohol
6. The ex-wife, formerly known as wife.


Title: Re: What are your triggers?
Post by Pixie-elf on Nov 25th, 2008 at 3:56am
Gasoline.
Heat.
Steam.
Smoke, be it pot or cigarette, the only thing that hasn't set me off was incense.
Not eating/fasting. (unfortunately,that's a little out of my control...)
Dehydration
Change in altitude / sea level.

Title: Re: What are your triggers?
Post by darknight on Nov 25th, 2008 at 8:43am
I love reading these to see other triggers!!!
My triggers are as follows:-

(1) Extreme heat within an office
(2) Certain Perfumes my wife used to use that contained pomegranate.
(3) Dramatic changes in the weather.
(4) Fragranced Candles and oils
(5) Hot baths
(6) Eye strain (sitting too far from tv)

Title: Re: What are your triggers?
Post by Marc on Nov 25th, 2008 at 9:24am

After almost 12 years of being chronic I know that I have only one:

Sleep or any other kind of relaxation.


Title: Re: What are your triggers?
Post by Guiseppi on Nov 25th, 2008 at 9:51am
Off cycle, nothing, on cycle:

1: Alcohol
2: Messing with my sleep cycles
3: Sustained levels of stress
4: Getting really really hungry

Smells never seem to be a problem. Wishing pain free thanksgiving days for all.

Guiseppi

Title: Re: What are your triggers?
Post by MaxPayne on Nov 27th, 2008 at 4:22am
In cycle:

1. REM sleep.
2. Running after our two year old in the shoppingmall.
3. Alcohol, especially redwine.
4. Relaxation after working out, or doing some sort of labour, changing tires have set off a nasty k9 one time.

Out of cycle, present. Not a damn thing  ;D

Title: Re: What are your triggers?
Post by Balanchine on Nov 28th, 2008 at 12:28pm
My personal top ten list:

1. Hot baths, which I unfortunately love

2. Alcohol, ditto alas

3. 1. and 2. combined is deadly

4. Quick changes in barometric pressure, discovered just this past summer during a couple of mountain climbing trips

5. Oversleeping or a nap that goes on too long

6. Lemurs, especially the ring-tailed ones (although they ARE adorable)

7. Reading Albanian poetry to longshoremen

8. The exasperating non-phoneticism of the name "Geoffrey"

9. The fact that people from Moscow are Muscovites, those from Michigan Michiganders, and Liverpool natives Liverpudlians

10. That I'll never be able to afford that dream vacation in the Isles of Langerhans

Title: Re: What are your triggers?
Post by chris420 on Nov 28th, 2008 at 1:09pm
out of a cycle, nothing. NO HA.
in a cycle:
1. odors
2. heat
3. getting hungry
4. bright lights
5. sodium nitrate
6. MSG
7. irregular sleep
8. changes in barometric pressure, like rain storms, hurricaines, fronts
9. stuffy nose
or i can be just walking around and BOOM! im crying like a baby, holding my head and all. ive had a few hits since my remission, or what i thought was, is strange. i get these kip 5's all day, they bother me and the pain is annoying. NOTHING compared to the kip 10's i get 95% of the time. i thought it was over, because thats how the cycles are, they stop suddenly. i wish this cycle would just end, today, NOW.

Title: Re: What are your triggers?
Post by Ade on Nov 28th, 2008 at 2:00pm
1) The merest whiff of alcohol;
2) Sudden increase in body temperature;
3) Caffeine, esp. on an empty stomach.
4) Random stuff I haven't got a handle on yet.

"... I wish this cycle would end NOW"  - amen to that, my friend.  :-/


Title: Re: What are your triggers?
Post by [johnny] on Nov 29th, 2008 at 2:28am
beer
pot smoke
diesel smoke
sleep
laying down flat
perfume
driving
my wifes nagging
headlights
burning oil
wood burning stoves
dry air
hot air
hot dogs
sausage
chocolate
relaxation
watching tv
popcorn
chicago traffic
and that one friend that my wife has with the screetchy voice. it's like driving nailsin your ears. man :'(

Title: Re: What are your triggers?
Post by Morse on Dec 4th, 2008 at 5:21pm
Haven't been posting since my initial introduction some many months back. Going through another cycle right now. Just started seeing a neurologist. I'm on Depakote(sp) and imatrix(sp) nasal. Will probably go to injection after last night... one of the worst headaches in a while.

Triggers
1- Sleep
2- Naps
3- Fatigue
4- I hope to god not chocolate.

Title: Re: What are your triggers?
Post by MorDog on Dec 7th, 2008 at 10:55am
No triggers out of cycle!

Triggers in cycle

Sleep - (either rem sleep or if I just try to take a nap during the day)

Alcohol

Hunger

Title: Re: What are your triggers?
Post by BarbaraD on Dec 7th, 2008 at 1:15pm
Barometric pressure dropping

Smoke (outdoor burning)

Mostly relaxation (stay stress - NEVER relax)

Hugs BD

Title: Re: What are your triggers?
Post by Callico on Dec 7th, 2008 at 11:48pm
Perfumes
Scented Candles
Solvents
relaxation
Spray Paint (regular oil or latex ok NOT Kilz!)
Markers
To many nitrites and nitrates
Aspartame

Jerry

Title: Re: What are your triggers?
Post by LadyRadiator on Dec 8th, 2008 at 12:20am
-Alcohol
-Humidity
-Cigarettes
-Sleeping
-Changes in the weather

Title: Re: What are your triggers?
Post by Klaus on Dec 9th, 2008 at 9:08pm
Alcohol in general (half beer is enough)

Relaxing (as long I am in full speed, everything fine)

Sleep of course (1,5 hrs after I fall asleep) But usually only one attack doing the night.

Pressure changes when on a flight (could be the vine and cognac as well)

Title: Re: What are your triggers?
Post by ccbiggsoo7 on Dec 23rd, 2008 at 4:36am
gummy vitamins liked to killed me, beer, barometric changes.

Title: Re: What are your triggers?
Post by uncle-cluster on Dec 23rd, 2008 at 5:52am
I only know of  red wine
thanks for this thread  .. I will be checking MSG

Title: Re: What are your triggers?
Post by Snapper21 on Dec 23rd, 2008 at 7:20pm
Not enough water
Too many pepsi's
Hunger
Pressure treated wood in confined areas
Mildew smell in the woods from rain and leaves
Too much sawdust intake
Small breasts

Title: Re: What are your triggers?
Post by primetime on Dec 26th, 2008 at 3:31pm
Lack of sleep is the biggest for me. Since my wife and I brought our little one home 3 months ago, it has been a fight everyday.  Fortunately, I've only had one full blown cycle and mostly shadows.

Lack of sleep is numero uno, combine that with a few beers or glass of wine and I'm done.

Title: Re: What are your triggers?
Post by thebbz on Dec 28th, 2008 at 2:36pm

Quote:
4) small breast's
[smiley=girlflash.gif] [smiley=girlflash.gif] [smiley=girlflash.gif]
Does it everytime. ;D
the bb

Title: Re: What are your triggers?
Post by UnderTheRadar on Dec 28th, 2008 at 7:32pm
my most noticeable triggers:
-barometric changes
-alcohol
-reading (on page or on a screen)
-bright lights or glare (ESPECIALLY my computer screen)
-synthetic perfumes
-smoke-from cigs, incense, a wood fire, anything
-that high-pitched "whine" from electronics devices...especially old tube tv sets

and all of these things will give me a migraine when I'm out of cycle, too, except for alcohol.

Title: Re: What are your triggers?
Post by UnderTheRadar on Dec 28th, 2008 at 7:37pm
oh- and speaking of triggers....anybody see that French art film from the 20's "Ballet Mechaniques"?  

If you haven't, it's twenty minutes of crazy B&W high-contrast flashes of faces and objects and swirling, spinning, stripey crap set to the "music" of horns, pianos, sirens, propellers, pots and pans clanging, etc, ad nauseum.

Well, in my History of Cinema night class we had to watch it, on the full-sized screen in the teaching theatre, right when I was wrestling the beast.  THEN, the next morning in Modern Art History, I had to watch it AGAIN!!!  :D

Title: Re: What are your triggers?
Post by Jonny on Dec 28th, 2008 at 7:45pm
No triggers here!

Title: Re: What are your triggers?
Post by Rolomatic on Dec 28th, 2008 at 8:03pm

wrote on Dec 28th, 2008 at 7:45pm:
No triggers here!


Yea Jonny, not even the girls...

Title: Re: What are your triggers?
Post by George on Dec 28th, 2008 at 8:06pm

UnderTheRadar wrote on Dec 28th, 2008 at 7:32pm:
-that high-pitched "whine" from electronics devices...especially old tube tv sets.


I apologize in advance for the irrelevant asides.  LOL.  I do that.

Interesting that you should mention this.  The whine of a television was terribly annoying to me when I was younger, although I don't recall that it ever triggered a CH.  I don't hear it nowadays.  Perhaps televisions simply don't whine anymore, but my kid informs me that is not the case, and that they whine abominably.

Looked it up, and found this, in case you're interested:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

When I was very young, I also used to be able to hear the sonar calls of bats.  (Probably only the lower range of their calls, however.)  A large colony of little brown bats lived in a barn next door to us, and the calls as the bats emerged in the evening would go right through my head--they are unbelievably loud.  

Funny to think that cacophony still goes on all around me on summer evenings when I'm out fishing and the bats are flittering by--and I don't hear it at all.  There is at least one kernel of blissful ignorance in encroaching age, and blessed silence sometimes where it does not exist at all.   ;)

Best,

George  


Title: Re: What are your triggers?
Post by Balanchine on Dec 29th, 2008 at 11:31am
George, that's interesting indeed. I remember the start up whine of TVs and I don't hear it anymore. Even more disturbing to me used to be the "silent" alarms in jewelry stores and the jewelry sections of department stores. I would always have to leave immediately. Now that I've entered geezerhood I don't hear any of that anymore. But the screeching of those pterodactyls are REALLY starting to annoy me.

David

Title: Re: What are your triggers?
Post by Chad on Dec 29th, 2008 at 1:17pm
-alcohol (love scotch and good micros when in remission)
-any kind of smoke whether it's a cigarette, pot, leafs burning etc...
-any form of tobacco
-MSG, foods with nitrates, high amounts of sodium
-chocolate
-strong perfume or certain candles
-hunger
-too much sleep
-the wife bitching
-work

The worse is during a shadow HA when somebody asks why you're pounding a Monster drink and your right eye is bloodshot, teary, and drooping.  That almost puts me right into a full blown cluster.

Title: Re: What are your triggers?
Post by Katherinecm on Dec 29th, 2008 at 5:19pm
1) Allergic reactions. After I eat wheat I first break out in hives and then the hits come. The worse the hives, the worse and more recurrent the hits. Also happens with molds, certain medications (especially ergotamine inhaler- Gawd, that was a nightmare!)
2)Glare
3)Strobe/flashing lights
4)Strong smells. Two steps inside a Penzey's spice store once put me in tears with instant shadows.
5)Rapid changes in barometric pressure or temperature.
6)Not getting enough sleep.
7)Calming down after a stressful event.
8)Cooling off after hard/prolonged exercise.
9)Red Wine. And possibly other alcohols. I've never been much of a drinker. I seem to do fine with Margaritas though.

Title: Re: What are your triggers?
Post by AussieBrian on Dec 29th, 2008 at 10:43pm
We so often mention REM sleep and its relvance to CH but one of our ladies has listed "dreaming" as a possible trigger.

I love it.

Title: Re: What are your triggers?
Post by thebbz on Dec 29th, 2008 at 10:49pm
I'm with you on that Brian. When not in an episode I rarely dream. When in an episode I dream alot almost nightly, I dont like dreaming much. It means pain. Dreaming as a trigger...I'm aboard
the bb

Title: Re: What are your triggers?
Post by Rolomatic on Dec 29th, 2008 at 11:11pm
I also notice increased dreaming with high cycle periods. It’s like a soap opera of well, you know... [smiley=hammer.gif]

Rolo. :D

Title: Re: What are your triggers?
Post by Pixie-elf on Dec 30th, 2008 at 8:38pm
I found a new one.

Cousin's Baby slamming head into your jaw, hurts. They have very hard little heads. He wasn't hurt, so I was thankful but damn... The beast basically said "HI, you wanted some company?"

Dreaming isn't a trigger for me, but, I always have the same TYPE of dream right before I wake up with a cluster.

It's that there's a snake, in my skull. Well, usually more than one. Sometimes one is crawling around my occipital nerve, the other is in my left eye and eating it's way around my sinuses.

I have NO fear of snakes, in fact, I love them. So the dream doesn't scare me, it's just kinda like "Huh? Well, that's weird... Oh, I'm in pain." THEN I wake up. I'm trying to find a way to wake up when I dream of that, but so far I haven't been able to.

Title: Re: What are your triggers?
Post by washed-out on Dec 31st, 2008 at 8:06pm
Alcohol is the worst trigger for me so far. Fortunately I don't like it very much and drink only occasionally. I am chronic but when I remember when once I drank really small bottle of Bacardi Breezer and headache started in like 5 minutes... The same happened when I took just one swallow of red wine.

Another thing is... lack of sleep. Yeah, some time ago I had big problems with sleeping (cluster headaches, other health and psychic problems) but I eventually had to wake up at 7 or 8 am... Normally my attacks are only in the evening, but after only a few hours or sleep, I had really terrible attacks around afternoon (especially when I didn't sleep much for a few days in a row).

Title: Re: What are your triggers?
Post by Fenton on Dec 31st, 2008 at 9:47pm
biggest trigger!!!!!!!!!!!!   relaxing right after a stressfull adrenaline rush...
and the dang thing about it is I am an adrenaline junkie (retired law enforcement, rodeo, motocross)  
alcohol, dont drink no more ,5yrs now.  
within 30min to an hr after i fall asleep every time
making a butt out of myself with my wife
oh man i could name alot  smells, foods, People

even miss spelling words..  ::)

Title: Re: What are your triggers?
Post by I.T. on Jan 1st, 2009 at 8:13am
Hi George.
I am a norwegian woman, age 36 with CH. I have had it for 18 years. I have just entered this site, my english isn`t that great, i have never chatted on sites like this before, but I`m gonna give it a try. I was free of CH last nigt, and hope that 15 weeks  with 3-7 attacs a day, are about to wear out. I usually use IMIGRAN injeksion (triptan), with very good results. So mayby I`m a bit lucky after all. I remember my first 10 years without any medicine. I hope this website can be "a friend of mine" escpesially next time i get CH. I want to be more prepeared next time.
I.T.

Title: Re: What are your triggers?
Post by seasonalboomer on Jan 1st, 2009 at 8:39am
Welcome IT!

Take a moment to read up on the Oxygen threads and links. You could cut way back, possibly, on using injections with proper use of Oxygen therapy. A lot of us have had great success with this and it cuts way back on the meds.

Scott

Title: Re: What are your triggers?
Post by Blue_eyes on Jan 1st, 2009 at 3:06pm
Red wine
wood smoke
Those are the only ones that I know of so far.

Title: Re: What are your triggers?
Post by Fenton on Jan 4th, 2009 at 1:30am
how bout when ur laying down or sitting in ur recliner an u have your forearm laid across ur forehead,
has anybody every had that set one off...  it sets mine off if i leave it on my forehead to long with out paying attention

Title: Re: What are your triggers?
Post by thebbz on Jan 4th, 2009 at 1:39pm
Relaxing is a trigger. When in the episode, if I relax, bang.
Never relax ..ever. :o
the bb

Title: Re: What are your triggers?
Post by hurtzdonut on Jan 7th, 2009 at 11:06pm
bright sunlight.. if caught outside without my welding helmet on.. ,, chocolate ,  stress.. , too many cigs,  alcohol, (specifically Vodka) not a beer or wine guzzler, loud crowds,  bar scenes  (if too close to music equiptment)   stupid people or I should say, stupid questions..  there is probably several  more that I havent figured out yet.. oh, yeah , harsh indoor lighting  .. and idiot neuros  

Title: Re: What are your triggers?
Post by hefty on Jan 8th, 2009 at 7:53am
John/Growly's triggers:

smells - petrol, nailpolish, insect spray, bathroom cleaners, linaments
alcohol (not always)
relaxing or lying down
messing with sleep pattern (not that he really has one)
extreme or sudden stress (steady, mild stress or concentrating seem to help, like driving or computer games - anyone else do this?)
vibrations (travelling by bus or on bumpy roads, running, even sometimes brushing teeth)
bending over/forwards (e.g most housework, or maybe this one is fake  ;) )
touching parts of his face (when he's bad)
darkness
bad lighting
bad or stale coffee

The other day he was feeling pretty good for him (kip 3) and we were going to go to the beach... until he saw a cockroach, panicked and sprayed before thinking - then he was straight up to an 8 and it was all off. D'oh! ::)


Title: Re: What are your triggers?
Post by bloobrain on Jan 8th, 2009 at 11:43am
Does anybody knows how many (%) have "sleep "as a trigger of CH?
Yours sincerely
bloobrain

Title: Re: What are your triggers?
Post by Chris Morrow on Jan 8th, 2009 at 12:13pm
Sleep...the only time I every dream is during my cycles...never noticed that until I saw the other post about dreaming.
Alcohol-Guinness is a killer, followed by whiskey.
Chocolate did it yesterday, TWICE! (within 5 minutes, never had that problem before????)
I was a mechanic for 11 years and a truck driver for a year. Diesel fuel odor, but never gasoline, any chemical you can find in an auto shop, and the worst has always been exhaust fumes. My cycles have been in the winter for the past 8 years, everyone in the shop used to hate me because I worked beside a fan and kept the door at my bay open all winter.

Title: Re: What are your triggers?
Post by Guiseppi on Jan 8th, 2009 at 12:41pm
For BLOODBRAIN. A lot of people get hit shortly after falling asleep, when they hit the REM sleep mode. If you're one of these, try taking Melatonin about 30 minutes before bed time. Start at 3-6 mg and work up until you find relief. Give it  a couple of days. Melatonin is available over the counter at health food and vitamin stores. Many can avoid the night time terrors with it. Good luck!

Joe

Title: Re: What are your triggers?
Post by George on Jan 8th, 2009 at 1:28pm

bloobrain wrote on Jan 8th, 2009 at 11:43am:
Does anybody knows how many (%) have "sleep "as a trigger of CH?
Yours sincerely
bloobrain


I couldn't quote a percentage, but there are a lot of us.  

Nearly all the hits I get begin ninety minutes after falling asleep--in the REM stage.  Gets so you're a little gunshy about the whole sleep thing.   :-/

Best,

George  

Title: Re: What are your triggers?
Post by bloobrain on Jan 8th, 2009 at 5:29pm
Thank you all for the speedy answer to my question. I myself a chronic CH, and maybe some remembers me as BLUEBRAIN from Denmark (old m-bord). The reason of my question is that I am in the process of writing an article in which is possible to demostrate scientifically tha the symptoms of a small group of CH patients  cannot be explained through the current idea that pain occurs before the vasodilation of intracranelblood vessels.
My theory is that, at least a subgroup of CH sufferers experience a vasidilation of the bloodvessels, described in  my theory/hypothesis -Bluebrain theory, presented here (old-m = April 24th,2007). In few words, the extreme pain is the consequence of an extreme vasodilation of a bloodvessel that subsequently mechanically activates the trigeminalnerve after the glasser ganglion. As soon as you get the vasidilation under control the pain disappears. The pain is not due to the activation of pain receptors (nociceptors). I think, following my theory, can also explain why O2 in high concentration can abort a CH.
Yours sincerely
Bloobrain(bluebrain)
PS: Is it possible for me to use/name in my article all the other triggers mentioned in this forum? I am specially interested in one patient who identifies "laying down" as a trigger among others,

Title: Re: What are your triggers?
Post by duerrs on Jan 13th, 2009 at 3:55pm
Sleep
Alcohol
Pot (can only do it when not in cycle)
Chocolate
Anger
Salt
Cheese
MSG (Chineese food)

Just to name a few

Title: Re: What are your triggers?
Post by joe w. on Jan 16th, 2009 at 12:25pm
Alcohol
anger
aerobic exercise

Does anyone else have aerobic exercise as a trigger (weight lifting does not do it - I assume the aerobic exercise raises body temperature)

Title: Re: What are your triggers?
Post by Deb B on Jan 17th, 2009 at 9:34am
I am still trying to figure it out but the for sure:
1.  loud noise which includes:  music or TV too loud
2.  barometer  changes
3.  hunger?  i often skip lunch
4.  ???I wake up with CH so sleeping??? but I have to sleep because when I do not sleep it is a trigger too??

I would like to see others input because it will heighten my awareness to watch for those things too! [smiley=eek.gif]

Title: Re: What are your triggers?
Post by Bravehead on Jan 17th, 2009 at 11:18am
I noticed some one else mentions spelling mistakes while in cycle...that happens to me as well! My spelling is usually fine but it rapidly deteriorates when Mr Beast comes calling. Do you suppose this is a symptom of CH or is it the meds?

My guaranteed triggers are alcohol (damn!) and bright glaring sunlight. Secondary causes seem to be cooking fumes, heat and the smell of bleach.


Title: Re: What are your triggers?
Post by DonG on Jan 18th, 2009 at 5:05am
I have noticed that recent atmospheric conditions triggered daytime (work) k9s of very short duration. Shadows all day long. This was unsettling as I never get them at work.
I had one every 2 hours on the clock with shadows, heavy shadows and then pain and remission lasting about an hour.
Bright lights and sound and smells have little to no effect. I am usually plunged into episodes by changes in time (travel) and the solstices.
When we talk about triggers are we talking about during the cycle?
I have noticed I can move up the Kip with stress and red wine
I have been on Verapamil for heart and I thought I was done with this but the atmosphere and travel during the holidays put me in a spin.
I guess the order would be:
1. Cyclic (solstice)
2. Travel (Time change)
3. Stress (moving up the kip)
4. Red Wine (assured trigger during cycle)




Title: Re: What are your triggers?
Post by G-Boy on Jan 18th, 2009 at 11:08pm
Aftershave, heat, smoking, alcohol, and lying down.

Title: Re: What are your triggers?
Post by purpleydog on Jan 19th, 2009 at 7:03am
When I was episodic, cigarette smoke and alcohol would trigger me. I didn't smoke, and would stop drinking completely when in cycle.

When I turned chronic, cigarette smoke stopped being a trigger, along with alcohol, except tequila and red wine. I rarely drink anyway.

During the last high cycle I was in, I did notice some new triggers for the first time:

That anti-static spray my boss uses on his shirts so they don't stick to him. I had to ask him to spray himself in the room next to our office.
Certain fragrances, like in hand lotion.
Some fragrance free hand lotions (I think it's the alcohol in them).
Diesel fumes, diesel exhaust and "bad" exhaust from vehicles.
Barometric changes apparently.
Precipitation.
Being too warm.
Hot air in my face.
Being too stressed.
Relaxing after being under a high stress level for more than a few days.
Having my back and neck muscles too tensed up.


Title: Re: What are your triggers?
Post by UnderTheRadar on Jan 20th, 2009 at 1:49am
hahahaaa....Bravehead, when I first read "spelling mistakes" I thought you meant that other people's mistakes in their posts will trigger you!  ;D

I have read in several articles that there's a noticeable decline in cognitive functioning while in cycle for CHers.  Unfortunately, I can't remember which articles because I'm in cycle.  :D

Hey new guy Joe- just go check out my thread about getting a handicap tag for CH.  Even going up a flight of stairs will trigger me.  :P

Title: Re: What are your triggers?
Post by Deb B on Jan 20th, 2009 at 6:44am
I thought you guys were being sarcastic when you listed

-an argument with you spouse

but now I will add that to my list, I thought I finally broke a cycle being pain free for three days but alas no!

small argument = big CH

Title: Re: What are your triggers?
Post by bytor on Jan 20th, 2009 at 9:45am

UnderTheRadar wrote on Jan 20th, 2009 at 1:49am:
I have read in several articles that there's a noticeable decline in cognitive functioning while in cycle for CHers.  Unfortunately, I can't remember which articles because I'm in cycle.  :D


I can definitely agree that there is a decline in cognitive function. I am a web programmer, START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE (Shameless plug!) and have noticed that since I started getting CH, even before I was diagnosed, programming has been a pain in the ass! Forgetting variables for functions I have been using for years. It took me twice the amount of time to re-write the website this spring/summer! Even forgetting how to spell simple words like sweat and sweet. Just last night I had to ask my wife how to spell sweat, I thought sweet was spelled the same way!. UUUGGGHHHH!

Typing has also diminished. Hunting for keys all the time, making more typing mistakes than I ever have. Thank the stars for spell check and code hints!

I have also noticed my bass playing has taken a hit. Find it real hard to remember songs I have known for years, or even ones I learned over the past year or so. Shit, even playing the video game Rock Band I notice my response time is all over the place.

Bytor

Title: Re: What are your triggers?
Post by Mara Bel on Jan 21st, 2009 at 7:41am
My triggers seem to be the normal ones:

- Strong smells, specially cinnamon, coconut and jasmin;
- Bright lights and loud sounds
- Stress and anxiety
- Reading small letters for more than 2 hours
- Too much computer
- Hormonal peaks

Chocolate and coffee have no effect on me.

Title: Re: What are your triggers?
Post by jimyhertz on Jan 21st, 2009 at 4:33pm
I am not in cycle right now, just some random hits, but thinking  about this.
It seems everything tiggers and nothing at all.
For sure sleep. However a couple years ago I changed to a rotating shift---4 days--- 3 nights ---3days---4 nights. Since then I'm hit day or night.
Maybe a drastic change in temperature outside. Seasonal, but my last cycle was 10 months and I live in Wisconsin.
Dry nose, but is it a sign or a symptom? Refrigerated saline spray and I don't get hit. Unless I'm too late.
Nothing real concrete here. I have quit everything while in cycle and still got hit 8 times a day. If I keep doing what I do it seems like the same outcome.
I think if it's my turn; it's my turn no matter what I do or avoid doing. So I take care of myself physically, mentally, etc. and take it in stride.
Attitude is everything.


Title: Re: What are your triggers?
Post by midwestbeth on Jan 21st, 2009 at 6:08pm
I don't know.......sometimes I get hit every other day and sometimes I'll go a couple weeks inbetween hits.  It is so random that I don't even think about it anymore; I just do my best to be prepared. 02,02,02!!

The only thing I will not take any chances with is red wine.  As much as I loved red wine, I decided I can live without it.

Beth

Title: Re: What are your triggers?
Post by Melissa on Jan 21st, 2009 at 6:43pm
chocolate (^%#^%$#$!@@!)
propane
perfume
wood stove smoke
puter screen (#@%$@!)

Title: Re: What are your triggers?
Post by Pixie-elf on Jan 22nd, 2009 at 12:47am
Cough syrup.

I've had to take every possible OTC brand of the crap, and now am on some prescription kind that's Guafisen and DX.

It's not the alcohol in it. I'm blessed in the fact it's not a trigger for me. I can drink it just fine... and have. Recently. Hot Toddy was made for me in hopes it would help me get my voice back. No shadows, no clusters, nada.

However, within a few minutes of cough syrup, I have a shadow, if not a full blown cluster. I will be so happy the moment I quit coughing.

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