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Message started by Linda_Howell on Nov 1st, 2008 at 3:56pm

Title: From the Guest book
Post by Linda_Howell on Nov 1st, 2008 at 3:56pm

Quote:
Reading all the entries has been a wonderful boost for me. Knowing that people have been suffering for years and NOT killing themselves is what is currently saving me. I am a 63 year-old woman and started having clusters about 6 years ago, with the diagnosis confirmed about 4 years ago. I've been on verapamil 360mg daily since diagnosis, and get about 2 episodes or 4-5 weeks per year (although I did have a 2-year period of remission). They came back when I started tapering the verapamil, thinking that the headaches were past (I don't fit the "normal" references for CH, not being a male between 20 & 50 years old). Imitrex works most of the time, although the side effects can be pretty bad, especially the injectable kind. I haven't run out of insurance yet, but it seems from other posts that I may do so with this episode, since I'm getting CHs nightly and I'm going through meds like they're going out of style. This episode is the worst yet, and the agony/torture I go through before Imitrex takes effect is definitely the worst pain I've ever been through. I'd be interested in hearing from any other older women who have started having CHs late in life. What keeps you going? My kids are grown and settled in their lives, I won't be able to retire anytime soon, with all my pension funds drying up with this financial crisis - what's the point of trying to "soldier on"? Any advice would be welcome!
Barbara <bebo.bates@gmail.com>
San Francisco, CA USA
Tuesday, October 28, 2008 at 16:32:45 (EDT)



I didn't like the sound of her second to the last sentence, so I have written to her.   Then I started thinking if a few more of us women wrote to her also....it might have a greater impact.  Let her know she's not alone.  

Linda

Title: Re: From the Guest book
Post by thebbz on Nov 1st, 2008 at 10:01pm
I'm not an older womanzzz, but I am short can I write as well.?
He.he.he
to late the emails gone :-* :-* :-*
thebb

Title: Re: From the Guest book
Post by jon019 on Nov 1st, 2008 at 11:02pm
ummmmm...can I, can I? 6'3", gray hair (what I have left),...oops, too late, I'm with bb...email's already gone :)

Title: Re: From the Guest book
Post by Linda_Howell on Nov 1st, 2008 at 11:15pm
Of course guys.    Any feed-back she gets is good.   I don't know why I even mentioned "more of us women"   I sure love it that when someone is in need around here, people jump to help.   This is why I love you all.   TY Jon and John ;)  



Title: Re: From the Guest book
Post by Balanchine on Nov 2nd, 2008 at 1:25am
Male also. And also too late writing to Barbara. Let's hope she sticks around!
David

Title: Re: From the Guest book
Post by Linda_Howell on Nov 2nd, 2008 at 2:02am
Thank You,  David.    :-*

Title: Re: From the Guest book
Post by BarbaraD on Nov 2nd, 2008 at 4:48am
You got it... Writing right now......

Title: Re: From the Guest book
Post by jon019 on Nov 2nd, 2008 at 2:05pm

Linda_Howell wrote on Nov 1st, 2008 at 11:15pm:
  I don't know why I even mentioned "more of us women"  


it's called "gut feel' Linder...and you got it...don't ever doubt that...you're right and I hope Barbara hears from lots...Just yankin your chain...and figured hearing from anybody could only help...

best,

jon

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