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Cluster Headache Help and Support >> Cluster Headache Specific >> Mayo Clinic Web site on CH http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1225003651 Message started by Keith Lee on Oct 26th, 2008 at 2:47am |
Title: Re: Mayo Clinic Web site on CH Post by thebbz on Oct 26th, 2008 at 2:59am
Boy, if I had a hammer. >:(
Other people just wont get it. I dont bother anymore. They can bite me right in the hypothalamus. I like to say, what about amputation without anesthesia dont you understand, how bout I reach over and rip arm off, what do think that would feel like? No offense intended Potter. all the best thebb |
Title: Re: Mayo Clinic Web site on CH Post by Just Plain Carl on Oct 26th, 2008 at 3:13am
I know it's very frustrating trying to explain what type of pain we all go through. But, if you don't experience it for yourself how could you possibly relate to it.
I have a friend that claims he has never had a headache in his life. There is no way possible for him to comprehend what we go through. Even whackin somebody with a hammer would not equal what we all go through. That's we have each other. PFD's On Ya JPC |
Title: Re: Mayo Clinic Web site on CH Post by Bob_Johnson on Oct 26th, 2008 at 9:34am
This report indicates that cluster-like attacks can "hide" a broad range of underlying problems. This is why having an experience doc is so critical.
============ -------------------------------------------------------------------------------- Title: "Cluster Headache Mimics"--useful article. Post by Bob_Johnson on Jul 30th, 2004, 2:04pm -------------------------------------------------------------------------------- This is an important article to obtain and take to your doctor if you are having a difficult time getting a diagnosis of the type of headache problem you have and/or finding medications which give consistent relief for cluster. It is a technically difficult read for someone not educated in medicine. Its value is in providing case studies about uncommon conditions which appear to be cluster headache but which are, in fact, not. Broad signs which may signal that the problem being treated is a cluster mimic are: having made a diagnosis of cluster, the standard medications do not work OR they work for an episode or two and then stop being effective. Second, if the diagnostic signs differ in important ways from the standard signs for cluster (and this is a subtle issue which requires a physician with sophistication). One of the striking findings reported: Cluster can arise from head trauma as long as 30-years after the trauma! Some conditions which can mimic primary cluster headache: Infections Aspergillus Inflammatory disorders Wegener's granulomatosis Orbital myositis Plasmacytoma Multiple sclerosis Head trauma Vascular abnormalities Arterial dissections Arteriovenous malformations Neoplasms Pituitary tumors Metastases Other trigeminal autonomic cephalgias: SUNCT syndrome; Paroxysmal hemacrania; Hypnic headache "Cluster Headache Mimics", Dale M. Carter, M.D.. CURRENT PAIN AND HEADACHE REPORTS, 2004, 8:133-139. (Take this citation to your public library and they can order a copy of the complete article for you.) -------------------------------------------------------------------------------- |
Title: Re: Mayo Clinic Web site on CH Post by Johnnystar on Oct 26th, 2008 at 6:19pm
One doctor prescribed ercaf for me. The instructions from the pharmacy said that ercaf is for cluster and migrane headaches and here is how to take it........ After 10 CH's in 4 days, I had so much ercaf in me I couldn't stop shaking. I told the pharamasist about his improper directions, but he looked at me like I was an idiot. Next time I got the same instructions, so I told him treating CH,s like migranes is like treating a broken arm like a burned arm because they both are painful on the same part of the body.....same look.
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Title: Re: Mayo Clinic Web site on CH Post by Keith Lee on Oct 26th, 2008 at 7:57pm
Yeah, CH is different from migraine to be sure. What really hacked me off about this article was its entirely stupid suggestion that both CH and migraine are headaches that, like "tension headaches" are not due to a medical problem. See, there's really nothing wrong with us. It's just a headache!
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Title: Re: Mayo Clinic Web site on CH Post by MrsT on Oct 26th, 2008 at 8:36pm
Well, no question CH is often misunderstood.... I tell people that I have a "brain damage that causes extreme pain", rather than just a headache that a couple of Tylenol can help.
Comparing the pain to a childbirth or amputation never works.....not too many can relate to those. And some lucky people have never experienced a slightest headache. My standard is, "Have you had a migraine"? If the answer is a yes, I always tell them to imagine the intensity to be 10x as bad. My husband understood it immediately as he's had ONE migraine in the past. If the answer is a no, my next analogy is the ice cream headache. I'm not an ice cream lover, but I know it does hurt. I tell them to multiply the pain by 50, non-stop for an hour. More people (especially men) seem to get it, but only if they care to know. There are probably as bad or even worse pains than CH.......I don't know. The only other extreme pain I've experienced was a tooth cavity that ate up the bone. I was in college with no money for a dentist. It WAS as bad as CH. So I believe having a tooth drilled without anesthetic down to the bone is about the same pain as CH. I've had an open surgery, but it was NOTHING compared to CH. I've always wished everybody to experience a full blown CH just ONCE to understand this. But I've learned over the years that the "poor me" syndrome doesn't help a bit. Although it is extremely difficult, we need to keep our chins up and not dwell on it. Surely I'm quite depressed and pissed off, but if I get too emotional about it, the next attack comes on earlier and stronger. |
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