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Cluster Headache Help and Support >> Cluster Headache Specific >> concerned about coming off prednisone http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1224980991 Message started by mattyc on Oct 25th, 2008 at 8:29pm |
Title: concerned about coming off prednisone Post by mattyc on Oct 25th, 2008 at 8:29pm
Today was my last 10 mg prednisone pill, so i am finished. I have noticed when I started the med the beast slept for two days but had shadows. the more i tapered down in the last 12 days the beast has gotten stronger every day and now 24hrs a day i am easily at kip2 to kip 4. Freakin sucks man. my headaches( kip 7 to 9) though have been 90% at night and last night i thought my brain was gonna pop out. I see a neurologist monday @ 9 am. Should I go back on prednisone or am I setting my self up for something worse. I plan to talk to him about oxygen since my only defense in 14 years has been imitrex and sheer grit. I have been trying caffiene and it helps but the crash makes me feel like crap. any advise or opinions would be appreciated and I hope everyone has a PF night with a shadow free morning.
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Title: Re: concerned about coming off prednisone Post by Just Plain Carl on Oct 25th, 2008 at 9:09pm
Hello Matt
Sounds like you are having a bad time of it right now. Your meds are up to you and your Doc. Can't help ya with that. Have you tried energy drinks? Might get you through the weekend. It's not much but worth a try. Good luck with your neuro Monday. I'm sure it can't come soon enough for you. Hang in There JPC |
Title: Re: concerned about coming off prednisone Post by Skyhawk5 on Oct 25th, 2008 at 9:15pm
Just started may taper off yesterday @ 50mgs and subtracting 10/day until gone. Oxygen is something I am never without. Aborts 90% for me. Aprox. 70% of us have great results with it and when it fails go to the Imitrex or other abortives. Imi doesn't work for me.
Are you new to CH? Oxygen (O2) is a long known treatment and you shouldn't ask but demand it from your Neuro. To use it to properly abort it must be as follows: Thru a NON-REBREATHER mask @ Minimum 10-15lpm* even up to 25lpm if possible. Used as needed for Clusterheadache pain. The 15lpm and non-rebreather mask are most important, NO Nose CANULA. The prednisone is supposed to be a trasitional med. to be given while another preventative such as verapamil or lithium etc. are given time to take effect. Pred is hard on us but many of us do use it. I have used it for long periods and can tell you there are prices to pay. Also there is a wealth of info on this site so READ, READ, READ. Welcome, Don |
Title: Re: concerned about coming off prednisone Post by thebbz on Oct 26th, 2008 at 1:09am
It is not unusual for CH's to return when tapering off the pred. They sometimes start another taper to let the prevents kick in. Some of the prevents can take a few weeks to reach a theraputic level, and a few more to get to your dosage.
all the best thebb |
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