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Cluster Headache Help and Support >> Cluster Headache Specific >> can clusters skip years?
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Message started by splendid on Oct 13th, 2008 at 8:42pm

Title: can clusters skip years?
Post by splendid on Oct 13th, 2008 at 8:42pm
i have been diagnosed with cluster headaches a few years ago. I went through hell trying to figure out what was going on. many many different doctor appointments and such. My first year i had them i was 10's all the time. they would last for bout 6 weeks. i would get them either in the spring or the fall.  or sometimes both.  When they go away i forget about them..totally..until they come back.  Last year i was worrier because they started in april and didnt end til second week of July.  I have never had them last that long.  For the most part i dont recall having a 10. it was normally bout a 7 and maybe one or two 9's.  This year i did not get one in spring or fall.  But when i think back it seems they have skipped years on me before.  Does that sound unusual? Possibly i have something else?  I'm not complaining about not getting them this year and i know i'll get them again someday but when if there not cluster headaches i dont know what to do. I remember all the tests i had to do and it was my wife that came accross cluster headaches on the web not the doctors that it all finally made sense to me. With all the stupid tests i done earlier and never got an answer then i showed them the article i found and they finally confirmed that this is what i probably had......

Title: Re: can clusters skip years?
Post by Linda_Howell on Oct 13th, 2008 at 8:53pm
yes of course they can skip years.   That is known as episodic.


be Grateful.   There those among us who are chronic.


Try very hard to use paragraphs.    ;)

Title: Re: can clusters skip years?
Post by George_J on Oct 13th, 2008 at 8:54pm
'Evening.

For what it's worth to your question, I used to cycle twice a year.  Did that for twenty years.  For the next ten years, I cycled once a year.  The past three cycles have each been three years apart.  I'm now two-and-a-half years into remission.

So the answer is--yes.  They certainly can (and do) skip years.  

All the best,

George

Title: Re: can clusters skip years?
Post by splendid on Oct 13th, 2008 at 9:04pm
thanx all for the quick response

Title: Re: can clusters skip years?
Post by thebbz on Oct 14th, 2008 at 8:04pm
Yep.
thebb ;)

Title: Re: can clusters skip years?
Post by jon019 on Oct 14th, 2008 at 8:38pm
26 years ch here...had one free year...happened at the same time I became a ch.com clusterhead (the first time)..coincidence?
maybe...maybe not...

welcome aboard, you're in the right place!

best

Jon

Title: Re: can clusters skip years?
Post by Just Plain Carl on Oct 14th, 2008 at 10:20pm
30 years in a row
skipped six years
back in the fold
hopefully will be another six years or more after I get through this one
Welcome to clusterville
Hope you get relief soon
                  JPC

Title: Re: can clusters skip years?
Post by Melissa on Oct 14th, 2008 at 10:41pm
Most definately.  I'm an 18 year episodic sufferer myself.  When not pregnant my cycle comes every 18 months and lasts for about 40 days.

Title: Re: can clusters skip years?
Post by maalstroom on Oct 15th, 2008 at 12:58pm
Splendid,

I always fool myself into thinking the Beast will never come back, but he always is after two to 2 and a half years. What's that river in Egypt  again....?
Since 2000 I only got them in autumn/winter, so I was caught off guard totally when the evil b*st*rd appeared with a vengeance last spring, around mother's day. I'm still recovering from the shock haha.
It is a strange entity, CH.

All the best, Pascal.

Title: Re: can clusters skip years?
Post by Patrick_A on Oct 19th, 2008 at 5:49pm
My last cycles went 3 and 4 years apart. I am soooo thankful!

Patrick

Title: Re: can clusters skip years?
Post by [johnny] on Oct 21st, 2008 at 2:51am
yep mine are spead out 3 or 4 years. best advice i can give is keep your abortives close just in case.

Title: Re: can clusters skip years?
Post by Buddyjay on Oct 21st, 2008 at 3:48pm
Had the beast for over 35 years. Used to be a couple of months every year. Then 5 weeks every two years. The last remission lasted 4 years but the damn things are back again.

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