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Cluster Headache Help and Support >> Cluster Headache Specific >> permanently droopy eye
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Message started by MaxPayne on Oct 8th, 2008 at 5:10am

Title: permanently droopy eye
Post by MaxPayne on Oct 8th, 2008 at 5:10am
Hi, after a brutal CH cycle three years ago I developed a permanently droopy left eye. I know this can happen but has anyone here experienced the same thing?

Title: Re: permanently droopy eye
Post by StressFree on Oct 9th, 2008 at 3:33pm
Yes, I've had a droopy eye on cluster side for many years even when out of cycle. Several years between  cycles, and still slight droop though not as prominant as in years past. I notice it in photos still. Going on about six years since last cycle. Maybe the cluster headaches are gone for good, and the droop will continue to un-droop.

Best wishes, Rich

Title: Re: permanently droopy eye
Post by Izzy on Oct 9th, 2008 at 4:18pm
A lot of cluster articles or related ones I've been reading say outright or suggest that this is a side-effect of ch for some people. Here's two of the links:

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Title: Re: permanently droopy eye
Post by barry_sword on Oct 9th, 2008 at 5:46pm
My right eyelid (clusterside) got so bad it was drooped almost constantly, affecting my vision big time. I was sent to a specialist (one of the best around) and he performed his laser eyelid surgery but did both eyelids as the left was becoming droopy also. That was Dec. 16, 2004 and all is good to this day.

The surgeon did not believe they were caused by me having CH's, but who knows for sure.

Title: Re: permanently droopy eye
Post by jon019 on Oct 9th, 2008 at 8:43pm
nope...but right (affected) side pupil is noticably smaller...Eye doc says this is not abnormal in non ch folks...but it didn't happen until many years of ch...

Best,

Jon

Title: Re: permanently droopy eye
Post by CH-HELL on Oct 9th, 2008 at 11:08pm
yep left eye lid (cluster side) droops slightly all the time and gets worse every time I have a kip 9 or 10.  Most people dont notice it unless they see pictures that are 10 years old or so. [smiley=smokin.gif]

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