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        Supporter's Corner >> Supporter's Corner >> The cries in the night ! 
        
(Message started by: Annette on May 13^th, 2008, 6:10pm)

Title: The cries in the night !
Post by Annette on May 13^th, 2008, 6:10pm

$@(*$&@(*W*YE@(*$^@($*@ !

It looks like Daniel is starting another cycle ! :'(

For the last 5 nights he has had 2 hits per night at 12 am and 6 am like clock work and now he is starting the day hits too. Although we are more experienced this time around and got on meds quickly so the hits arent as bad as 2 years ago, they can be killed fairly quickly within 10 mins with oxygen and imigran nasal sprays, and the kip levels arent bad but still I so much hate waking up to those muffled cries in the night !

:'(

Title: Re: The cries in the night !
Post by George_J on May 13^th, 2008, 11:01pm

Dammit. >:(

I hate this stuff.

You all hang tough--really glad to know that you're better-armed this time around, Annette.

All the best,

George

Title: Re: The cries in the night !
Post by Guiseppi on May 14^th, 2008, 2:08pm

Damn sorry to hear he found your address again. Incredibly efficient that way the beast is. :'(

Guiseppi

Title: Re: The cries in the night !
Post by Garys_Girl on May 16^th, 2008, 12:09pm

I am so, so, so sorry!!!!!!!!!!!!!!!!!!!!!

I'm glad to hear the current aresenal is working pretty well and quickly. Hope it stays that way and that this cycle passes quickly.

Laurie

Title: Re: The cries in the night !
Post by Annette on May 16^th, 2008, 11:12pm

Thank you George, Joe and Laurie for your support.

This cycle rammed up quite quickly for Daniel, within a few days he went to 2 hits at night to 2 more in a day then 6 hits in 24 hrs ( every 4 hrs like clock work ). He got on prednisone, epilim and neurontin straight away and he was already on verapamil. The hits are mostly around Kip5-6 and lasted only around 10-20 mins with oxygen or spray. He had 1 kip 10 the other night, woken up from a deep sleep so it was already raging. It was too late then as nothing seemed to work. Fortunately it only lasted 40 mins.

Overall, its nowhere as bad as last cycle and we are praying that it stays that way for the length of the cycle and that the cycle itself will only be a short one.

God, I hate this stuff !! :'(

Title: Re: The cries in the night !
Post by cash5542 on May 17^th, 2008, 10:58pm

((((HUGS))))) I still can't get used to how this just creeps up and makes life a living hell for the sufferer and anyone close by. Hang in there!

Charlotte

Title: Re: The cries in the night !
Post by Angie on May 21^st, 2008, 11:58am

So Sorry Annette. Keep Daniel Strong

[smiley=hug.gif] [smiley=hug.gif]