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        Supporter's Corner >> Supporter's Corner >> Might Be
        
(Message started by: puppylove41 on Jul 20^th, 2007, 4:41pm)

Title: Might Be
Post by puppylove41 on Jul 20^th, 2007, 4:41pm

The neuro told my husband yesterday he might have CH. This has been going on for 2 years now. This is the third thing they called it. I came on here for over 6 hours yesterday and read. I never heard of CH, After reading I think that may be part of what is going on with him.
He has other things like his right eye shut, by shut I mean the lid closes tight. He has no wringles on the right side of his forhead, the right brow is down while the left is up.
They were calling all this Blepherospasms, even the pain in his head, which is how all this started 2 years ago. But they seemed like they just weren't listening when he said shooting,stabbing pain. We went to 3 doctors in Pa. and they same thing over there. We are going to the family doctor on Wed. and I will ask her if this could be 2 different things we are looking at. He is getting so depressed, We sit out side in the morning with our coffee and I can see his head jump (lack of better word) and know he just had pain shooting through. Well thanks for letting me vent here.The doctor put him on Topamax but it will be a month till full mg. in system. LOL I wrote this once and didn't put in subject so had to do over.

Title: Re: Might Be
Post by E-Double on Jul 20^th, 2007, 9:38pm

If you are going to Pa then get to Jefferson Headache!!!!

Good luck, many hugs and we are here for ya

Title: Re: Might Be
Post by QnHeartMM on Jul 22^nd, 2007, 10:48am

Hi Puppylove -
Getting the right diagnosis is like winning the battle. Now if you find CH is the best, you can start to work on the war. Welcome to the board. We're here for you both.