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        Supporter's Corner >> Supporter's Corner >> Helpless 2 Watch....
        
(Message started by: Helpless on Mar 22^nd, 2004, 9:54pm)

Title: Helpless 2 Watch....
Post by Helpless on Mar 22^nd, 2004, 9:54pm

Just wanted to say that I am new here and my boyfriend is a CH sufferer.... The first night we met he was breathing his O2... I had no idea what was wronge with him... When I found out what was wronge with him I started to read up on it as soon as I could... Later I found out that he is chronic and he suffers mant times a day everyday.....He is the sweetest person I have ever had in my life and I am very lucky to have him.... I hurt deep inside everytime I know he does and pray that I can make it all go away... I know that I cant and that there is nothing that I can do but to support him and be there for him when he needs me... I am not saying that it is a burden, it's far from it... But for all of you that have been supporting your CH suffers for longer than I have I have a great respect for you... It takes alot to stand by and know that you have to watch the person that you care about suffer in such a way.... I pray that the day will come when hes beyond all this pain and suffering... But even if that day never comes I will be right by his side hurting in my own little way and wishing to take this pain away from him forever....

Title: Re: Helpless 2 Watch....
Post by Jumjum15 on Mar 22^nd, 2004, 10:23pm

One of the things I do is to try to look at every day as a new day, and my husband does too. He is the biggest trooper I know. The best thing I can do for him is to let him sleep when he can. He doesn't have regular work schedule and travels a lot, so luckily there are days when he doesn't have to get out of bed, and I let him stay as long as possible. He doesn't let it get him down, and that helps me stay positive, too. I just wish there was more I cold do. It's so frustrating when there's NOTHING you can do.
It's also nice to know you're not alone.
-Ella

Title: Re: Helpless 2 Watch....
Post by Jackie on Mar 23^rd, 2004, 6:41pm

Hi Helpless and welcome to the site.

Yes, it is hard to watch your loved one suffer.....it's heartbreaking and a special kind of torture all it's own.

Talk about it when your sweetie isn't under attack...ask what you can do for him. There may be nothing he wants you to do.....some want complete solitude but some don't. Perhaps you could have something ready for him when the attack is over....a cold drink or a cool cloth...anything to help.

Read and study this site and OUCH (button on the left). There is a wealth of information. Knowledge is power when fighting the beast.

You and jumjum sound like good supporters....we're proud of you both.

Good luck....remember we're here to help with anything we can.

Jacks 8)

Title: Re: Helpless 2 Watch....
Post by Helpless on Mar 23^rd, 2004, 11:58pm

I have been reading up on CHs and learning what I can about them.... We have talked about what I can do to help and when to stay away.... He has told me how bad they can get..... So bad that he ends up in the bottom of the bathtub yelling and screaming and sometimes throwing things.... He said he never wants me to see him that way and I hope I never have too.... But if or when the day ever comes we will find away through it together, I hope.... He is the sweetest person I have ever had in my life and I care for him alot..... I can only hope that I have the honor of being in his life for a very long time......