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        Supporter's Corner >> Supporter's Corner >> starting again
        
(Message started by: dav on Jan 18^th, 2004, 8:52am)

Title: starting again
Post by dav on Jan 18^th, 2004, 8:52am

have been 4 yrs since i had one .last night the devil came back.i knew the second the first sign appeared.i have been having them on and off for 25yrs.taking a toll on my body and mind.i am dreading this cycle and praying it wont last long.good luck to everyone who suffers from this nightmare.

Title: Re: starting again
Post by pubgirl on Jan 18^th, 2004, 11:16am

Oh Dav

What a total shit this condition is.
We all know the signs and our hearts sink into our boots when we feel them.

What are you taking to help with the pain?

Wendy

Title: Re: starting again
Post by dav on Jan 19^th, 2004, 3:40pm

Wendy
the only thing i have found to help ease the pain is
imitrex one shot nasal spray.this seems to shorten the duration of the cluster.but at 20.00 a dose,it should.
the money dosnt matter because you would give anything to make the pain go away.now i am afraid to go out anywhere because i might get one and have nowhere to go to suffer.lol.
thanks for replying
Dav

Title: Re: starting again
Post by pubgirl on Jan 19^th, 2004, 7:00pm

Hi again Dav

More people read the two other boards than this one (the General one and the meds board) that's why you aren't overrun with replies!

I use the Imitrex (called Imigran here) nasal as well because I hate needles of any kind and I find it works very well for me too, but everyone who uses them swears by the injectible form as it is much faster.
I carry it in my handbag at all times so if I'm hit while out I just go to the ladies and use it.

At home I use fast flow 02 for almost all attacks. For me it is liquid gold! Aborts almost every single attack in 5-15 minutes, depending how bad it is.
If you can get it, it really is worth trying if you haven't already. The other advantage is that you can use it as many times as you like for as long as you like.

I know nothing in practice about preventives (lots in theory) as as an episodic sufferer I prefer not to use them, but I would if thibgs get worse.

If you need any advice on preventives I suggest you post on one of the other two boards. It's worth introducing yourself there any way as you can find some good friends as well as good advice

Keep posting Dav!

Wendy