Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        Supporter's Corner >> Supporter's Corner >> Haven't been here for a while
        
(Message started by: Gert on Nov 28^th, 2003, 5:41pm)

Title: Haven't been here for a while
Post by Gert on Nov 28^th, 2003, 5:41pm

[smiley=hug.gif]
Hello there all of you. Haven't been here for a while, but I hadn't forgotten to get back. We started our own childrens clothing store back in Belgium. That's why I wasn't here. Though I have been doing some research on how to help my dad. I have read about surgical interventions. Does anyone have any experience with this? My dad is still on Imitrex. Nothing else seems to help.
Hope to get some reaction.
Greetings and big support from Belgium!

Title: Re: Haven't been here for a while
Post by ave on Dec 14^th, 2003, 6:48am

Gert, seeing you are in Belgium, not far from The Netherlands, have you considered the mushroom therapy (paddo's) in Dutch?

Go check out www.clusterbusters.com

Or the recent threads on the :"Medications" message board here.

Good luck

Title: Re: Haven't been here for a while
Post by Linda_Howell on Dec 14^th, 2003, 7:31pm

Gert,

Has he tried oxygen therapy?

LindaH

Title: Re: Haven't been here for a while
Post by HannahFroukje on Dec 15^th, 2003, 7:51am

on 12/14/03 at 06:48:15, ave wrote:

Yes, "neighbour", same here from Holland, our story is there too ... it was a bit tough for us (not for everyone though), but it DOES work!

There are lots of people who can help you with it, and I´d be happy to answer questions too. It's worth a try. So is the oxygen.

Title: Re: Haven't been here for a while
Post by Margi on Dec 15^th, 2003, 11:52am

Hi Gert
There has been mixed results with surgery here. It really depends on what type of surgery he's considering, I guess - but if it's the kind where they "deaden" the nerve on the other side, it leaves him with paralysis and no guarantee that the cluster won't come back on the OTHER side.
You may want to look up in the Medications section - I think there are some posts about different kinds of surgery up there. Nothing that provides an instant cure though, unfortunately.
Oxygen really is your best bet for an abortive.

Title: Re: Haven't been here for a while
Post by Gert on Dec 16^th, 2003, 6:19pm

Thanks for the support from all of you. The oxigen doesn't help, it keeps coming back.
I hope I can convince him to try the mushrooms. I'll gather some more information on the web, before talking to him about it. Well, I don't think I'll leave him to choose, he has to try it! or else... (just joking!).

Voor onze Nederlandse vrienden: kan je er in Nederland makkelijk kopen? Hier in België zou ik als leek niet weten waar ik moet beginnen. Suggesties?

Thanks, en tot gauw.

Gert