Clusterheadaches.com Message Board (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
Supporter's Corner >> Supporter's Corner >> That about says it all....
(Message started by: cathy on Sep 18th, 2003, 3:22am)

Title: That about says it all....
Post by cathy on Sep 18th, 2003, 3:22am
You know you are absolutley right, this is a FREE FORUM...anybody can post here....and you know what we will.....

Margi as Board Monitor again, it has astounded me but not surprised me that you have basically accused Nancy of not having Clusterheadaches....what can I say but WOW....maybe you don't even have a husband that suffers...we only have your word on that...am I okay, NO im fucken not, im so sick of this lets suck up to each other but lets have our little clicks...you know the IN jokes roflmao NOT, no im not okay and for the record neither is Nancy.....compassion, caring go look up those two words Margi.

I'd like to welcome you back but that'd be hypocritical of me oh and if you need proof of my husbands CH then i'll send you copies of the prescriptions and photos of the O2 tanks along with our neurologists name and the cardiologists name and hospital for his heart condition!!!!!

Ree ....Nancy offerered to talk to you, you refused, everyone has bad times some peoples bad times are just worse than others.

Cathy

Title: Re: That about says it all....
Post by Margi on Sep 18th, 2003, 8:59am
Well, Cathy, I have to tell you, your post really took me by surprise this morning.

Where do I start....probably, the best place would be to explain that I had no idea that Nancy was facing strife and worry in other areas of her life.  I read about Chris late last night, long after I posted to her, and it truly was the first I'd heard of it.  I AM very sorry that she and her family are facing this terror.  I saw her mention the name 'Chris' in one of her posts and it made no sense to me at all at the time.  Now it does.  I do wish her and her family all the best and pray that Chris will be ok.  Cathy, you KNOW I have compassion about this subject.  YOU were a very big support to me, when my family was going through this.  You KNOW that I understand the fear surrounding this.  I honestly had no idea Nancy's family was going this and I will offer up a prayer for them.

However, the fact remains that a supporter was criticized here and the hurtful words kept coming, long after the issue should have been resolved.   As I just explained to Wendy, I took pre-emptive action in that situation.  Action that I felt (and still feel) justified in doing.

The words 'posting during an attack' are a big red flag to a lot of people here, Cathy.  They have often been a signal of someone being misdiagnosed with cluster headaches.  Could YOUR husband post (or even sit still at a computer screen long enough) during an attack?  Mine could not.  I'm just a lowly migrainer and I couldn't even stand doing that, when I was getting hit.  

The reason a lot of us jump on the fact that there may have been a misdiagnosis is that the meds given to clusterheads could make non-clusterheads very ill.  It could be a lethal situation in fact.  Should we NOT be watchdogs in this regard?  We DO know the symptoms and the ins and outs of clusters.  There ARE doctors out there who have not become fully educated about our affliction.  There HAVE been misdiagnoses and this board actually HAS pointed some people towards second opinions and, as a result, underlying diseases were then correctly diagnosed and treated.  No, I won't stop being a watch dog in this regard and I doubt few others will either.

Finally, I agree that everyone goes through bad times in their lives.  To me, though, lashing out at others because of personal bad times is inexcusable.  

p.s.  I just saw that today is your birthday, Cathy - and I honestly do wish you the best.  I'm very sorry to hear that you are going through rough times and I do want you to know that I am always here if you want to talk.  

Title: Re: That about says it all....
Post by Ree on Sep 18th, 2003, 11:10am
Very nice post Margi.  Happy Birthday(again) Cathy.  Ree

Title: Re: That about says it all....
Post by Margi on Sep 18th, 2003, 2:17pm
Nancy just brought up a very good point to me, that we often overlook here.  She did post that she had 'a headache' when she was responding.  Obviously, because of our focus here and our main topic of conversation, I wrongly assumed she was talking cluster headache.  She wasn't, she was talking about an absessed tooth headache.  

Again, Nancy - my apologies, but I'm sure you can understand why I assumed what I did and that you agree with me that "posting during a cluster headache" is something that is impossible for most.

Thanks for clearing that up for me, Nancy - I always worry when I think we have a wrongly diagnosed clusterhead.





Title: Re: That about says it all....
Post by Ree on Sep 18th, 2003, 2:47pm
Cathy birthday or not would you like me to send you the email that Nancy sent me??? or maybe the IMs from that night... Ive had enough!!!  You have no idea what happened.  Stay out of it.......... ahhhhhhhh hell Im sending them anyway you decide........

Margi so much for locking the topic... some people just wont let anything drop... ree

Title: Re: That about says it all....
Post by Margi on Sep 18th, 2003, 3:04pm
we all need to let it drop, once and for all.


Title: Re: That about says it all....
Post by jonny on Sep 18th, 2003, 3:13pm
Can't we all just get along?.....LOL ;D

...........................King  ;)

Title: Re: That about says it all....
Post by Ree on Sep 18th, 2003, 4:44pm
ahhhhhhhhhhhh you be quiet j- man....(((you should be the peace maker more often LOL)))

here's another time when I said nothing but got introuble for it............... just looking for support here whats a girl got to do for that...

Im in the process of emailing someone thanks Margi I promise I am as done with these people as I am... thanks honey..............ree

Title: Re: That about says it all....
Post by nancyc on Sep 18th, 2003, 11:42pm
Just for some folk's information..I am nancyc...not nancy...I have been receiving mail about this thread and had no idea what was going on..just wanted to let everyone know we have two nancys here...but only one nancyc...LOL...smiles,nancyc

Title: Re: That about says it all....
Post by Ree on Sep 19th, 2003, 8:47am
Hi Nancy C...........psssssssst best bet is to not get involved in this one I was hoping it would blow over... NOT...........love ya lady  Ree  ps praying for you

Title: Re: That about says it all....
Post by nancyc on Sep 19th, 2003, 9:25am
Not getting involved, sis...just wanted everyone to know that i am not the nancy in this post..LOL..Love you too, sis.....smiles,nancyc

Title: Re: That about says it all....
Post by cathy on Sep 19th, 2003, 12:25pm

on 09/19/03 at 08:47:12, Ree wrote:
Hi Nancy C...........psssssssst best bet is to not get involved in this one I was hoping it would blow over... NOT...........love ya lady  Ree  ps praying for you


WTF????? Who is not letting this blow over...geezzee Ree why don't YOU just let it drop...

Cathy

Title: Re: That about says it all....
Post by Jackie on Sep 19th, 2003, 3:18pm
My brother and I were reportedly the meanest kids in the town we grew up in.  Now. I'm sure that wasn't true but that's what was said..LOL  We fought like hell....I mean real fighting...the "knock down, drag out" kind.  One day my Daddy drug us out in the back yard and scratched out a big circle in the grass.  He pushed us both in the circle and said, "Now, you two want to fight...have at it."  Wow....we loved it.  What great sport!!! We could just fight and fight and not get in trouble.  After a little while it wasn't so much fun.  The sport was wearing off.  We'd beat each other half bloody.  Finally...Daddy said we could come out of the circle if we were ready to hug.

Hugs feel really good after a fight....... :-*

Jacks 8)

Title: Re: That about says it all....
Post by Ree on Sep 19th, 2003, 3:49pm
what is your sudden problem with me cathy???

Title: Re: That about says it all....
Post by OneEyeBlind on Sep 19th, 2003, 3:50pm
No, just so everyone is clear .....
OneEyeBlind (current sign on name)
Nancy McFree (previous sign on name)
Nancy McCollum (real name)
127 N. Main St.
Marysville, PA 17053
717-957-4328

is the person this post is about.  

It's really a shame when you can make one small comment and spend days crying and getting slammed about it.  Life is a bitch some days, and then ya get over it.  

Everyone, have a real nice day.

Title: Re: That about says it all....
Post by Ree on Sep 19th, 2003, 4:51pm
I feel exactly the same lets hug and make up like Jackie said... sheesh life is too short... I truly am sorry for the turmoil this all has caused...while you are having a difficult family time......... tell your friend Cathy too.  and let's let it go.............(((((Nancy McFree))))  that is the name I knew you by..........go into the archives we were friends then or so I thought............ Cathy whazup??? Life is way too short... prayin for both of you...

my turtle is hiding under a rock folks I m not kidding... this sucks lets end it..........ok????  love to YOU Both Ree

ps a little modifying Nancy get your address off there before some one REALLY weird shows up at your house LOL............ wow this is the internet ya know...

Title: Re: That about says it all....
Post by OneEyeBlind on Sep 19th, 2003, 5:52pm
Yup Ree, let's get over it.  And as far as my address ...... I hate to tell ya ......... but someone weird showing up at my house at this point might be a blessing.  LOL.  

And yea, Cathy is also having a hard time ........ so let's keep her in our prayers.

Heck, why don't we just pray for all clusterbuds tonight.  Ya never know what one of them is going through.

I declare it a "say a prayer for clusterbud day" !!!!!!!!!!!!!!!!!


Edit - just so we are all clear - when I say clusterbud I mean supporters and sufferers !!!!!

Title: Re: That about says it all....
Post by Ree on Sep 19th, 2003, 6:20pm
Gotcha... a new start sounds great to me!!!!  Thanks for the prayers too...
  ~~for whenever two or more of you are gathered in my name ... there is love~~~

                                     ree                

Title: Re: That about says it all....
Post by jonny on Sep 21st, 2003, 6:35pm

on 09/19/03 at 17:52:56, OneEyeBlind wrote:
someone weird showing up at my house at this point might be a blessing.  LOL.  


Marysville, Pa......Hmmmm, I could be back by morning ;D.....LOL

...............................Weird

Title: Re: That about says it all....
Post by Margi on Sep 22nd, 2003, 9:09am
Good work, gang.  Glad to see everything's ok now.  Thanks, Jackie - you're a great peacemaker ;)


Title: Re: That about says it all....
Post by Opus on Sep 22nd, 2003, 7:48pm
OneEye,

When things are rough just remember that someone really wierd has shown up on you door step Twice! And they were really glad to meet you.

Opus/Paul/Bill



Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.