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        Supporter's Corner >> Supporter's Corner >> son has cluster
        
(Message started by: cleolane on Jul 5^th, 2003, 10:16am)

Title: son has cluster
Post by cleolane on Jul 5^th, 2003, 10:16am

Hello, My name is Paul, Im 29 in August 03 and I live in Bearwood, Smethwick, B`ham.
Here is my story.
I’ve been suffering with CCH since around the age of 22yrs. I would complain to the doctor of abdominal painful migraine, and ask why I would keep on getting them every single day, week after week, month after month. The doctor would say different things like Blocked sinuses, Infection of the sinuses, diet, the whether, and so on. I feel that I wasn’t being taken seriously when I would tell the doctor and other people, about just how painful my head was hurting when I was having a migraine. When I was having a migraine I would get a big lump show on the front right lobe of my forehead. Eventually at the age of 28yrs of constant miserable intolerable pain, the doctor sent me to see a Neurologist who diagnosed my condition as CCH. And as I already know, he also confirmed no other over the counter painkillers would be able to touch the pain as I needed something a lot stronger,(Sumatriptain), which I now take in the injection form, although I also take the tablets as well sometimes. I find the injection most effective and cures my migraine in about 6 minutes.
Before I was diagnosed, I swear if I hadn’t got offspring to be there for, I would have committed suicide, as I just cannot stand being in that kind of agonizing pain.

What’s your story?
Do you know of a support group where people with CCH can go and talk to one another?
Would you be interested in meeting up with me?

Paul.!!!

Title: Re: son has cluster
Post by cathy on Jul 5^th, 2003, 5:45pm

Hi Paul and welcome...sorry to hear you have clusters...try the General board you may get a better response there

Cathy :)