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Title: Hi, I'm new to the board Post by little2late on Apr 12th, 2003, 6:20pm Hello, I am new to the board as I just started researching the cluster headaches my husband suffered from for years. I had no idea their were so many that suffered from clusters. I had no idea of the intense pain as he kept it inside.....I don't know how he did it....but then again, yes i do as he would work while having the flu....This is the only thing that would bring him to his knees......I wish i had known more....I feel like I have found out what i needed to know a little2late. Thanks for listening..... ??? :'( |
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Title: Re: Hi, I'm new to the board Post by BillyJ. on Apr 20th, 2003, 10:44am Hi Diane, My name is Minnie and my husband Billy suffers from these horrible clusters. Unfortunately many doctors misdiagnose clusters leaving many to suffer alone wondering whats happening to them.I am so sorry your husband was one.you and your family have our condolences. I don't know how old your children are but I hope one day you can share this site and it's knowledge with them. Try to show it to his family it may help/may not.If he didn't let them know how devastatingly severe his pain was they may never understand.I'm sorry they have turned their sorrow and lost into blame on you.One day they will relize they are wrong no one but the beast is to blame for your loss. Keep coming back to this family we truely care about clusterheads and their families.Billy and I have recieved so much love and support from eveyone on this board and so will you and your family.sorry I'm rambling I hope something I've said may help.Just KNow your not alone. Minnie also posted on general board didn't know where to post |
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Title: Re: Hi, I'm new to the board Post by Ree on Apr 22nd, 2003, 10:19pm Hey you guys Welcome to the Supporters Board... it was getting so dead in here that I barely came in anymore... That was a great welcome for little2 late Minnie... nice to meet both of you... little2 late are you related to our 2late on the board? Minnie I know BillyJ from the chat and might I say thanks for coming here and posting... we need wonderful supporters as you both. Its never too late to get informed on this horrible condition... there are many wonderful links to use and alot of experienced supporters again Welcome...love and luck to you both Ree |
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Title: Re: Hi, I'm new to the board Post by firebrix on Apr 23rd, 2003, 1:32am Welcome little2late and Minnie! Pleased to meet you both. Hope to hear more from you. firebrix |
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Title: Re: Hi, I'm new to the board Post by Donna on Apr 24th, 2003, 6:46am What great supporters we have! I am so neglectful lately and am sorry. My only excuse is that it is "season" down here and I am working four 12 hour shifts - nights no less- 7 pm to 7 am. I sleep all day and get up just on time to get ready for work. Anyway, it's so nice to see the good advise keeps on rolling along. We love you, clusterheads and supporters, and will do all in our power to hold your hands and try to pass on the stuff we have learned that might help. We've all been down the same road--some of us have just gotten here earlier- and we all know what the others are dealing with. Come and learn, then come and help. |
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Title: Re: Hi, I'm new to the board Post by little2late on Apr 24th, 2003, 9:32am Hi All: thanks for the welcome and support. Donna: Don't apologize about being busy.....I am at the end of my semester in school and lots of papers due this week and next so i will not be here too often until after that and then i really hope to connect with you all and get and give advice......I really need some right now and would love to give any that would help...... Love Diane |
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Title: Re: Hi, I'm new to the board Post by vig on Apr 29th, 2003, 1:26pm just shoot me |
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Title: Re: Hi, I'm new to the board Post by little2late on Apr 29th, 2003, 3:39pm great solution.......as you can see it works wonders |
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Title: Re: Hi, I'm new to the board Post by vig on Apr 29th, 2003, 3:51pm you have my full apology and I hope your day turns out great! |
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Title: Re: Hi, I'm new to the board Post by little2late on Apr 29th, 2003, 4:52pm I apologize for being flip........Today was Bob's birthday so it's just been a rough day......Hope yours was good. Diane |
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Title: Re: Hi, I'm new to the board Post by Margi on Apr 29th, 2003, 7:23pm Hi Dianne no need to apologize for having a rough day. Perfectly understandable. I saw Vig's post to you earlier and wondered if it was a case of misunderstanding of your original post (on Vig's part) ... I see now that some posts have been deleted here. I hope everything's ok now between you and Vig and I guess my original assumption from your post was correct that your husband has died? I'm so sorry, Dianne. I have to let you know that I am totally blown away by your attendance here, that you would even want to visit a place that contributed to your husband's hardship. That's so admirable. If we can help in ANY way to help you come to terms with what he went through during "clusterhood", we'll do everything in our power to give you that education and....probably the closure that you need. Please feel free to email me directly at moxie_miss@hotmail.com if you would like to talk off the board. Again, Dianne - you're welcome here and greeted with warmth and understanding of folks who share your pain. Hugs |
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Title: Re: Hi, I'm new to the board Post by fenton1 on May 4th, 2003, 6:37am Welcome aboard... I have been crhoic for 6 yrs and if it wasnt for the support of this web site at first to help me find out what was going on i dont know what i would have done...it also helped my family help understand to.. just come here for the fun and company...it helps.... Fenton 8) |
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Title: Re: Hi, I'm new to the board Post by Ree on May 4th, 2003, 10:02pm Hey Fenton where the heck have you been??? Ree |
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