Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        Supporter's Corner >> Supporter's Corner >> We have a new problem
        
(Message started by: Margi on Oct 22^nd, 2002, 6:17pm)

Title: We have a new problem
Post by Margi on Oct 22^nd, 2002, 6:17pm

I read, amidst the madness, that a new supporter is now wearing two hats.

I was SO sorry to see that you're starting to get hit, Den. I hope it was just a rogue attack and something that will never come at you again.

I think you two face unique challenges, both being clusterheads AND supporters. Hang in there, Den and Georgia. You've both always got a soft place to land here if either of you need one.

Title: Re: We have a new problem
Post by Ree on Oct 22^nd, 2002, 6:47pm

why ya postin it here??? will they see it Margi...? I am so sorry Den... G... what can I say.? We're here for you both and if there is anything I can do for you guys... give a holler... Love to you both Ree

Title: it's always sumthin
Post by rumplestiltskin on Oct 22^nd, 2002, 11:00pm

...preciate it.

We read this together and G. patted my leg an said "Take yer fuckin Verapamil" That's G!

...I got my script upped so I take it 2X a day now...twice as hard to remember! I missed a few doses last week...and I "hope" that's what allowed the boogyman in....we'll see. I'm armed...O2 is full...new bubbler...been hording Zomig...the one I had was kip 3...walk in the park...highly uncharacteristic fer me. My CH always shot to serious peak within 5 minutes...._shadowing...we'll see...we'll see.

Just got cast as Kris Kringle in Miracle on 34th St. Addie and G are in it too.

Our CH experiences are so radically different. One thing not in this house is a lack of understanding about the severity of the pain.

Enter stage left...Ophelia...the mad scene...

I think I am getting the hang of this supporter thing....I hung a paper plate on the wall that says "bang head here"....I hang lots of signs around, like.."Dont pee on this den"...umm but that is more appropriate for the supporters corner on the "neurotic male marking of territory disorders" message board that we also belong to.

Margi, your support, friendship, and understanding...just beyond words. Thank you.

Den and I are seeing things from the other side of the window pane....I shall never forget the look on Den's face when he came home early and said.."cluster headache"...and ran to the O2. Even though it was just (JUST!) a kip 3....it was enough to scare the living shit out of me. How you do this, see that look, that pain, that fear...day after day...I can not fathom at this point. All I can do is be here for him...whatever he needs...whatever he wants...I will give him without reservation...total empathy included (not to mention all the blow jobs he wants, he said he read somewhere on here that they help prevent ch...sometimes I wonder if he is faking just to get one...damn wannabe's). I don't know that it's enough....but it's all I've got. Knowing that you all are here, makes this that much easier. I can't even express the amount of respect I have for all of you supporters...angels disguised as humans, walking this earth....

peace and love and walks in the sunshine,
Den and Georgia

Title: Re: We have a new problem
Post by Margi on Oct 23^rd, 2002, 9:07am

psssttt, Georgia girl..... that's the oldest line in the Clusterhead handbook, honey. Don't believe him. If he gets hit while you're....uh....giving him therapy.....well, I guess you wouldn't need that tonsilectomy after all, right? ;)

ANYWAYS.... ::)

Keep us posted, you two. We're praying out here that you two never get hit at the same time.

and... take your effin Verapamil, Den!! :o

Title: Re: We have a new problem
Post by Riccardo on Oct 23^rd, 2002, 9:36am

Den Den Den.......
that post said BOW JUMPS !!!!!!!!!

or may be BOW JOBS ?!?

or BLOW FOGS ?!?

.....not sure....
;D ;D ;D ;D ;D ;D ;D

Title: Re: We have a new problem
Post by Linda_Howell on Oct 25^th, 2002, 2:48am

Hope I'm not too late in here with this.

DEN.....forget the paper plates. Do what Liz and Doug Wright did for me in Vancouver. Pillows..Lots of them..

Den, I'm so glad that you and Georgia have each other.
Don't know what else to say except that. Being alone in this, sucks big time, and you two are no longer in that catagory, so that's such a good thing.

Break a leg on 34th. street Den. Linda Howell

Title: Re: We have a new problem
Post by Georgia on Oct 25^th, 2002, 10:50pm

Linda - You aren't alone in this. Ever. Remember that. You are loved and even though you might not see them...you have 2000+ arms wrapped around you everytime you feel pain....2000+ fists beating the beast back with all they've got.

Peace and love,
Georgia

Title: Re: We have a new problem
Post by Ree on Oct 28^th, 2002, 9:38pm

We love ya Linda H...just give a shout if you need me... ree

Title: Re: We have a new problem
Post by MaureenG on Nov 14^th, 2002, 11:10pm

I don't know how anyone can get through being sufferer and supporter. Although I have never understood the exact pain that he goes through, I am just about the only person who understands that he is in excruciating pain.

One night I got a TINY taste of what all the sufferers go through WAY too often. We were at the ER (of all places) for one of Steve's attacks and it was about 3am by that time. I don't know if it was because I was so overtired or stressed that we even had to be there, but I was fighting a headache for a couple hours, when suddenly I was thrown into a brick wall. I have NEVER EVER felt that kind of pain before.
I was nauseous (sp?) and had to go outside for some cool air. I know Steve wasn't quite feeling well enough to leave, but he got himself discharged anyway and met me outside a few minutes later. The walk to the parking lot felt like walking a marathon. I wanted to stick a dagger in my head a cut it open. We had to stop once on the way home because I thought I was going to be sick, then decided I just wanted to get home ASAP. It was only about a 15 minute ride, but I was balling my eyes out the whole way, wishing I could die right then and there.
I did get sick when we got home. Sorry, you probably didn't want to know that. :P The lucky thing for me was that I took a Tylenol PM and fell asleep soon after. When I woke up, I was fine again. I know it wasn't an actual cluster attack because it was a one-time occurence (I hope), but it did give me a greater compassion for Steve's pain. I now understand his urgency to run to the ER at midnight to get rid of it the fastest possible way. It gave me a greater respect for what he goes through as a part of his everyday life. I would never wish that pain on anyone, but I think it was the best experience I could have ever had, for Steve's sake.