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        Supporter's Corner >> Supporter's Corner >> tegretol
        
(Message started by: ist on Oct 12^th, 2002, 8:56am)

Title: tegretol
Post by ist on Oct 12^th, 2002, 8:56am

I have been prescribed Tegretol. Has anyone used this for cluster headache. I am getting some blister like on my nose and below the tear duct on cheek. Has anyone had this?
I am a new cluster head. It started by me having a very red eye and felt that I had something in my eye. That evening, my head started to hurt and I had sharp pains shooting into my eye. This went on for about 3 days and the pain got worse. My head was throbbing and the headache was like a contractal type and only on one side starting from my temple and took a 45 degree turn to the centre of my forehead. As it passed different areas of my head the pain was different in all areas. It went from throbbing to shooting to feeling like I had something too cold . On the fourth day, my eye started to water. I went to the eye doctor and he suspected a cluster headache. I had a CT scan and there are no signs of tumor. I was than prescribed Tergertol. I live in Africa and there are very few specialists here. One doctor says it may be trigeminal neuralgia and some say it is a cluster headache. Please can someone help me to tell me if they have diagnosed me correctley and if I have a cluster headache?

Title: Re: tegretol
Post by Donna on Oct 14^th, 2002, 2:25pm

You need to find a correct diagnosis. Read and educate yourself from the info here (left margin) and on the OUCH site.

Tegretol is not one of the standard medications for the prevention or abortion of clusterheadache. Although some of our people have used it, it is not one that is regularly prescribed.

Your headaches, at this point, do not sound like classic clusterheadaches. Again, you will find a cluster quiz here which may help you to determine more closely if you have clusters.

Cluster headaches do not always have the classis symptoms all of the time, so you must discuss what you find here with your doctors.

Please continue to post........we care and want to help.

Can you explain a little more about the actual headache....duration, frequency, what you might have already tried, etc?