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        Supporter's Corner >> Supporter's Corner >> HELL Month
        
(Message started by: yeagersms on Jul 12^th, 2002, 3:05pm)

Title: HELL Month
Post by yeagersms on Jul 12^th, 2002, 3:05pm

Hi Group,
This is my 1st trip to the support bord so bare with me.
I'm also signed in under my husbands name as he is the CH sufferer.
For the last 7 years October has been our HELL month - however for some reason we skipped last year and this year they started in July.
SOOOO, this is our "HELL Month"
My husband's name is Jon and we'd appreciate your thoughts and prayers this month.
PS the IMETREX is helping - THANKS CLUSTERHEADACHES.COM!!!!!!!!!!

Title: Re: HELL Month
Post by Slammy on Jul 12^th, 2002, 3:43pm

Quote:

so bare with me

hmmm... ok

That's right up Slammy's alley!! ;D

Slammy 8)

P.S.
sorry, that was a slammy slip...... welcome! and just ask anything! ( not to slammy, of course ;D) There's some really smart Guys and Dolls on here that are priceless!

Title: Hell Month
Post by oscar on Jul 13^th, 2002, 2:04am

Hi!, I'm Ursula and my husband Oscar is also a sufferer of Clusters, he was diagnosed not to long ago, so we also are pretty new here, but we already feel so close to everybody on this site, They are all so sweet and eager to help, that believe me, very soon you will feel MUCH better; At least, my husband and I were going through hell until I found this place and started to understand everything that was going on, and now we are closer than ever, no more misunderstoods!. i give thanks every single day for this site and the people in it.
WELCOME.

Ursula :)

Title: Re: HELL Month
Post by Donna on Jul 14^th, 2002, 8:07am

SO glad that you found us. Everytime a new sufferer joins us, it's winning in the game of "tug of war" against that demon!

Once you read the info provided by this site (compiled by people on this site over the past 4 years, from real experiences and a lot of research) you will know more about CH .than most docs. And knowledge is Power.

Just remember, you have the support here....when you want and when you need it. Call on us.

You will also find the Family Services page on the OUCH site. The group is called clusterbuds and have an e-mail address so that, if you want to talk in privacy with the members of the Team, you can do that too. Contact them at
http://www.clusterbuds@hotmail.com

Title: Re: HELL Month
Post by yeagersms on Jul 16^th, 2002, 8:51am

Hey,
Sorry for spelling "bare" wrong. I tried, as soon as I saw it was spelled wrong, to go back and change it. Didn't work. Get used to it Slammy, I'm Blonde!!
OK, in responce to the peson who said "you'll know more about CH's than your DR." - That is sooooo true.
I HATE THAT!!!
Our situation is somewhat unique - my husband goes to the Native American Clinic for his tribe and he sees a new Dr. just about every time.
So, each time we have to explain to them what CH's are, and if we're lucky, they'll research them. Usually they do not and we are stuck with Tylenol 3 (is that spelled right Slammy?) Anyway that happened yesterday, and we ended up having to go to another Dr.'s office in our town. MORE MONEY!! And, we also left there without a new prescription. It's sad, but sometimes knowing more than the Dr.'s know is no help at all. Jamie - Jon's Wife :(

Title: Re: HELL Month
Post by yeagersms on Jul 16^th, 2002, 8:55am

PERSON - Sorry Slammy.

Title: Re: HELL Month
Post by Donna on Jul 16^th, 2002, 2:07pm

What's wrong with the way you spelled bare? I like bare pesons. Especially baby ones. All fresh and clean and shiney.........picture perfect.

Silly old Donna