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        Supporter's Corner >> Supporter's Corner >> To All Supporters
        
(Message started by: Svenn on Jun 20^th, 2002, 2:39am)

Title: To All Supporters
Post by Svenn on Jun 20^th, 2002, 2:39am

Hi All SUPPORTERS
First of all i would thank you supporters from the bottom of my heart.You all are doing a really huge and great "job"

Got some words that i will share with you.Hopefully you will understand without too mutch noice.
I`m a clusterhead from Norway who has been on your board for about 1 year or so.I have noticed that over the last 3-4 months more clusterheads have "painted their lives"black.I do not think thats the right thing to do.some times ago i wrote a little thing about my thoughts"There are always some lights in the end of the tunell.Thats where you come in.You supporters are our light.Good or bad,but you are.
I`m one of the clusterheads that is trying to not let "General Cluster" and his beast ruling my life,but i shall rule over him.
Just trying,sometimes with luck and sometimes without.got some daily chatting going on MSN and ICQ too,thats another light also,at least for me.The main thing for you dedicated supporters is to let us just know you`re there if we need anything.AND BELIEVE ME WHEN I SAY THAT I KNOW YOU ARE.
help us to see the little small and positive things in life.Those lights is one of the best thing you can give us.

Hopefully somebody of you are understanding my bad english

Your Friend in Norway

Svenn

Title: Re: To All Supporters
Post by Ree on Jun 23^rd, 2002, 3:01pm

Beautiful English Svenn... and we appreciate deeply that you have taken the time to commend us... at times it is hard to be a supporter, then sometimes I read a post like Elaines and thank God my husband doesnt have Cancer or Aids or something like that. We deal with the clusters when they come and "I" help others to deal with them when he doesnt have a cycle. Dave wont even allow us to mention the CH word in our house he thinks it jinxes him. The reason I stay here as a supporter is because of the way CH effects me and our family. I feel for the other families that come here I truly do. Someday I will click on that link and someone will come up with a cure... I just believe that and I know it will come to pass. ((my hair may be alot greyer but...you know what I mean)) Maybe if you believe with me, it will come true sooner... again thankyou and a great big hug goes out to you friend... love Ree

Title: Re: To All Supporters
Post by Donna on Jul 8^th, 2002, 8:03pm

I echo Rees words...........and thank you for being so nice as to write, and your English is very understandable.

About 2/3's of the way thru a cycle, it gets mighty discouraging, and the light that we are looking for at the end of that tunnel isn't even beginning to shine and we think we are doomed to suffer this agony forever. It's a lonely place to be because no one has ever felt your pain, and no one really understands..........except the people here. That's why we have supporters........they have lived WITH a sufferer .......they can see the pain in the face of their loved one. We can see other people suffer and be horrified, but to see a loved one suffer brings out all of the fear and helplessness within us. We don't want anyone to be alone with this pain or the frustration........that's why you'll find supporters here.

Supporters need supporters too. Your kind words make it all worth while.

Title: Re: To All Supporters
Post by smartie on Jul 23^rd, 2002, 4:20pm

:'(Dear All
I have just found this site tonight and feel for the first time that others understand how we feel, my husband has suffered for 20 years, I have only been around for the last 6, but over that time I have found it harder and harder to see him have to go through this hell for so log every year and a half, it is such an unfair condition and no-one outside our family really understands how it ries to wreck your lives. We have a 1 year old and I am now pregnant again and feel so tired I can hardly function, which is nothing compared to how he feels of course but I just wish I could get rid of it for him. I feel so useless as I can't stop it. I have read some of the notes on this site and am now crying my eyes out as it is the first time I have found anyone who feels like I do. why is there no cure????? Why can't I do more??? If love could kill this disease it would have gone and I am so angry that it doesn't because I realise how much I love my husband when he is in this run of attacks and how much he suffers, it scares me that if he didn't have our family, he would not cope. He refers to the "heads" as suicide heads and I can fully understand that when I see him in so much pain. Hang in there everyone!!! Love to you all and hope that your cycle is soon over!!!

Title: Re: To All Supporters
Post by Donna on Jul 23^rd, 2002, 11:03pm

Smartie.

It is soooo good that we have found each other.

The feeling that you feel are so normal, and many of us have felt these same feelings.

Why can't we help them when they're in pain? Don't they know how worried we are and how much we want to help them? The answers are no and no. When in the throes of a clusterheadaches, they simply can't think. And when it's over with, they feel guilty.......that they have put us through such an ordea. That's the time to let them know how much we love them and wish we could help them. Perhaps it is also the time to discuss what they WOULD have us do for them.

Stay with us. Join us in supporting others. Let's all help each other understand and cope.