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        Supporter's Corner >> Supporter's Corner >> another long night...
        
(Message started by: Jayne S. on Apr 1^st, 2002, 4:06am)

Title: another long night...
Post by Jayne S. on Apr 1^st, 2002, 4:06am

Morning everyone it is now almost 5am. What a long night. I tried to fill Tim's perscription for Imitrex on Sat. to no avail. " To soon "said the pharmacist. " Not til Mon." I so didn't want to go home and give him the news. Here it is Sat. one inj. left til Mon...... Here I am, Mon. early a.m. nursing my 4 mth. old, my other two fast asleep . And Tim , pacing in the hallway, crying screaming. I tell him lets go to the ER but he won't go. I feel sooo helpless. This totally sucks I hate these headaches. I wish they would go away already. He is so tired and he wont go to sleep. I think our Pharmacist opens at 8am. I'm there. I think he'll sleep if he knows he has the imitrex. I'm glad you guys are here for me, it helps soooo much. Nobody else understands. I'm gonna try and catch some zzzz's before the kids get up. thanx for listening.... Jayne S. ;)

Title: Re: another long night...
Post by NotH20 on Apr 1^st, 2002, 3:11pm

Jayne - I'm sorry that you're having such a rough time. I am a sufferer of over 20 years - we don't mean to make you lose sleep, worry and wonder. We just want the beast to LEAVE!!!!! I've personally never been to the ER with a ch before - I guess for me personally it would be as if the beast won. With my luck, by the time I would get the ER, the beast would leave and then revisit when I was back at home! >:(

Having the Imitrex is like a baby having a security blanket - knowing it is there is such a stress reliever in itself.

Just stay strong for him - he needs you so much right now. He can't be the father or husband that he wants to be due do this beast.......and I'm sure he'd do anything to get rid of them just so that his family was not subjected to them.

Keep that faith Jayne - there are many people - with and without ch's - that are here for you.....

NotH20

Title: Re: another long night...
Post by TimandLaurie on Apr 1^st, 2002, 7:21pm

Jayne, Call the doctor and tell him that you need a letter of necessity so that the insurance will release more injections for Timo. We had to do the same thing for Tim and now get four injections each time we refill. Hang in there! Tim and Laurie

Title: Re: another long night...
Post by MaureenG on Apr 2^nd, 2002, 8:48pm

Jayne:

Are you sure you weren't at my house this weekend? :D It really is great to know there are others out there who can relate, especially at the wee hours that we are all awake. It doesn't matter what time of day or night it is, there's always someone here to talk to. Even when I don't have anything to say, just reading everyone else's experiences often helps.

I had never EVER posted on a message board until I found this site....too worried about privacy. That all changed when I started reading the posts for general information. The message board had such a "family" feeling to it, I signed up the same night, and now I can't get enough.

Just like we'll never know exactly what the clusterheads go through, they'll never fully understand the emotional pain that we go through. That's why we have each other.

Title: Re: another long night...
Post by kim on Apr 5^th, 2002, 9:45am

I am a ch sufferer who has also innocently brought the Monster into my family's home. I just wanted to offer a prayer and hug to all of you who are living with such hell on earth. Not fair. :'( Wishing you all better times! Kim

Title: Re: another long night...
Post by Jayne S. on Apr 7^th, 2002, 10:34pm

Hey everyone. Thanx to Not H2O, Maureen,Tim & Laurie, and Kim for responding. Sorry took so long to respond. With the kids home on Easter break I didn't have much time. Well Tim (Timo) went to the Doc. last week and he put him out on disibility. He drives for a living and couldn't handle it. His Doc. also gave him alot of free samples Imitrex - inj. , pills and nose spray after he told him the problem w/ the pharmacist and insurance comp. :) That was then this is now. He is 3 days with out a CH. Just 1 or 2 bearable reg. headaches. He feels he's at the end of his cycle. Go figure. After he started to get everything under control it seems the beast just laughs and says see you next time....and exits. It's just so screwed up. Anyway I'm keeping my fingers crossed.Thanx again for being here for us.... ;) Jayne S.

Title: Re: another long night...
Post by Ree on May 8^th, 2002, 10:51pm

I've been exactly where you are Jayne... i remember almost going over the counter at the pharmacist once when she told me that I couldnt refill Daves amerge any more because his insurance wouldnt pay for it anymore. I wanted to keep on driving that day... What we do now is when the cycle ends we stockpile what ever he has left at the pharmacy i go and pick it up whether he needs it or not... Im just hoping they dont expire before the next cycle. Sucks being where we are too. I had just had my daughter when one of Daves cycles started. I remember being up feeding the baby and having him wake up with an attack. Feeling so helpless... Were all here for you and we definately know how you feel... email or IM me if you need to. Ree

Title: Re: another long night...
Post by Jayne S. on May 14^th, 2002, 9:44am

Thanks Ree for the support fellow supporter. Sorry I didn't get your response til today. I haven't been on too much. I got yelled at by the higher ups. Anywho yea went threw the same my son was 3 mnths when Tim's cycle came back. And it came back witha vengence. When I found this site it was a God sent. I thought. Then i couldn't deal with the cursing and nastyness of some on here so we left. I thought I had alot to offer this board they sure know how to put you in your place here :'(. Again thanks for your reply and take care of yourself and your family.....most sincerely Jayne S.

Title: Re: another long night...
Post by Margi on May 14^th, 2002, 10:12am

Jayne,

I'm so sorry to hear you're having a rough time here on the board.

Please know that the Supporters' Forum will always be a safe haven for you, ok?

We all have to remember that folks who arrive here at ch.com arrive here in pain. Folks lash out when they're in pain. That's just human nature. Sometimes it does get nasty here, but I guess we all just have to wear flak jackets sometimes and keep our purpose for being here in focus.

Stick around, Jayne - we really ARE here to help, ok?

Margi

Title: Re: another long night...
Post by Jayne S. on May 14^th, 2002, 11:06am

:) Thanks Margi you made me feel so much better! ;D most sincerely to you too, Jayne S.