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        New Message Board Archives >> Jul-Sep 2003 >> Please Help Us ALL!
        
(Message started by: ClusterChuck on Sep 19^th, 2003, 5:23pm)

Title: Please Help Us ALL!
Post by ClusterChuck on Sep 19^th, 2003, 5:23pm

Catlind, and others, have been working VERY hard to get as many people involved in the upcoming survey about our quality of life.

If you have not emailed Catlind or signed on on her thread, please email her, saying you will join in the survey.

I am not sure many of you recognize how important this can be. How often do we see threads about how the insurance company limits the quantity of Imitrex? How about fighting to get insurance to cover O2 for Cluster Headache relief? How about the hassle just to get a doctor to prescribe these know abortives and preventatives?

This survey can get these remedies listed as being tried and true weapons specifically for Cluster Headaches! All of the above problems would then be SO much easier to deal with! With luck, those problems would be ELIMINATED!

Don has been reporting the historic advances that O.U.C.H. has made. Don and the worldwide O.U.C.H. leaders are setting a grueling pace. They cannot do this alone!

We are always talking and joking about grabbing an oar and start rowing. HERE IS PART OF YOUR OAR! Do your part!

Those of you that have already signed up, THANK YOU! Those of you that have not, why not?

Ok, before some one kicks out my soap box from under me, I will get off it.

Thank you
Chuck

Title: Re: Please Help Us ALL!
Post by Patrick_A on Sep 19^th, 2003, 6:15pm

Bumperooski!

Title: Re: Please Help Us ALL!
Post by catlind on Sep 19^th, 2003, 7:15pm

I have about 225 replies right now. This is good, but we can do better. The more of us that are willing to do this survey, the better our database, the farther we can move in our cause to find a cure.

This really is important folks.

Before we can go anywhere with research and med labelling this is the first step.

Right now we are gathering an estimate of the numbers so that the survey can be prepared.

As I get further details I will let everyone know.

Cat

Title: Re: Please Help Us ALL!
Post by CC on Sep 19^th, 2003, 7:16pm

what the hell does bump mean???

Title: Re: Please Help Us ALL!
Post by jminmilwaukee on Sep 19^th, 2003, 7:24pm

Cat, sign me up please.

Title: Re: Please Help Us ALL!
Post by OneEyeBlind on Sep 19^th, 2003, 8:41pm

I already signed up but I'm gonna go back to Mr. Happy's suggestion. Cat, don't ya think emailing everyone that has registered might get you more responses ??? I thought Mr. Happy had a great suggestion with that. Not everyone signs on to the board anymore, but might still have the same email addy. Perhaps you could get DJ to help you auto-magically send out the emails ??????????? Just a thought!

Title: Re: Please Help Us ALL!
Post by Mastifflvr28 on Sep 19^th, 2003, 9:33pm

One eye,
The registered members of OUCH did get an email also.
Mast

Title: Re: Please Help Us ALL!
Post by Cerberus on Sep 20^th, 2003, 2:43pm

Re-Bumpasaurus

::)

Ramon

Title: Re: Please Help Us ALL!
Post by jonny on Sep 20^th, 2003, 3:10pm

on 09/19/03 at 17:23:11, ClusterChuck wrote:

We are always talking and joking about grabbing an oar and start rowing.

Do you really think that rowing is a joke, Chuck?

I coined that phrase three years ago and its what keeps some people going that think they are at the end of their rope.....its not a joke, Bro

If it was a joke it would not be said so many times all day long.

...................................jonny

Title: Re: Please Help Us ALL!
Post by ClusterChuck on Sep 20^th, 2003, 4:53pm

on 09/20/03 at 15:10:28, jonny wrote:

Jonny, I am sorry you took it that I thought it a joke. Nothing could be futher from the truth. I beleive in it whole heartedly, and if you were the one to start it, I comment you.

What I meant, is that we talk about it, AND we joke about it, as we joke about everything else. I did not mean to belittle it at all, and I appologize for seeming to feel that way.

I love the concept, and believe in it whole heartedly.

Thanks for bringing it to my attention.

Chuck

Title: Re: Please Help Us ALL!
Post by cathy on Sep 20^th, 2003, 5:16pm

Hey Chuck just tell him to STFU he has no teeth in at the moment so he won't bite...lmao

Cathy

Title: Re: Please Help Us ALL!
Post by OneEyeBlind on Sep 20^th, 2003, 5:20pm

Mast, thanks for the info. Good going !!!!!!

Title: Re: Please Help Us ALL!
Post by goaway on Sep 20^th, 2003, 6:16pm

Bump Bump!

Cat,

Just tell me what to do.

Title: Re: Please Help Us ALL!
Post by Lone_Wolf_FLA on Sep 21^st, 2003, 8:32am

I would be glad to participate.