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        New Message Board Archives >> Jul-Sep 2003 >> New Sufferrer (First time Here)
        
(Message started by: JadensMom062003 on Sep 17^th, 2003, 4:10pm)

Title: New Sufferrer (First time Here)
Post by JadensMom062003 on Sep 17^th, 2003, 4:10pm

::) HI Everyone, I just got back from the Neurologist and they think that what I am having is Cluster Headahces.
They gave me some medication (Neurotonin) I may have spelt that wrong to help with it.
These have been going on for close to a year now.
I was misinformed at the OB/Gyn when I was pregnant with my son, they told me that it was pregnancy related and that It would go away after I gave Birth (BOY where they wrong)
Well Just saying Hello to you all and I hope that oyu all have a great night!

Stephanie

Title: Re: New Sufferrer (First time Here)
Post by BobG on Sep 17^th, 2003, 4:31pm

Hi Steph, wife of Shaun and mom of 4 month old Jaden.

Welcome to the message board. Sorry to tell you this but you have a really, reealy, big bunch of reading to do. If you start now with the buttons on the left you should be finished by 6am.

There will be a test! ::) The OUCH website test is at noon tomorrow. ;)

Good luck. If you fail the tests you will not be allowed to keep your headaches.

Just goofin' ya. ;D Welcome.

Title: Re: New Sufferrer (First time Here)
Post by TxBasslady on Sep 17^th, 2003, 4:36pm

:)
Hi Stephanie,
Welcome to the board. There is a wealth of information here and a good place to start is with the cluster quiz. All of the links located to your left are great, and they have helped me so much. All you could ever hope to learn about CH is there at your fingertips.

There is alot of info on medications and what seems to work for alot of folks. There are also great suggestions and ideas that should help.

Congrats on the birth of your baby boy !!!!! Hope you find what you need here.

Jean 8)

Title: Re: New Sufferrer (First time Here)
Post by Charlie on Sep 17^th, 2003, 4:39pm

Welcome aboard and I hope you stick around and do lots of reading. There are many good ideas here and ways to help deal with this horror.

Here are two links: One for a technique I found effective and a second link to a description of this disease which does a wonderful job explaining to employers and others that this has nothing to with what is thought of as a “headache.”

http://www.netsync.net/users/charlies/

http://www.ouch-uk.org/ch/note_colleagues.cfm

Good luck and let us know how you're doing.

Charlie

Title: Re: New Sufferrer (First time Here)
Post by TxBasslady on Sep 17^th, 2003, 4:41pm

;D ;D ;D ;D ;D ;D

LMAO................BobG

You're bad !!!!!!!!!!!! ;)

Jean (who is not in charge of the oars, but is gonna get a paddle for Bob...LMAO)

Title: Re: New Sufferrer (First time Here)
Post by Hirvimaki on Sep 17^th, 2003, 4:42pm

Hullo, Stephanie!

Welcome, welcome! You've found a good home here. Lots of great info, et cetera. I won't repeat what's already been said. Just want you to know you are welcome here.

Hirvimaki

Title: Re: New Sufferrer (First time Here)
Post by Prense on Sep 17^th, 2003, 5:58pm

Welcome!

Feel free to discribe how your HAs effect you. By all means, take the cluster quiz on the left, and if you still feel that what you have is CH (docs can be wrong), I would try to get some sort of abortive (trex, O2) for when you get hit. ;D

Best wishes!
Chris

Title: Re: New Sufferrer (First time Here)
Post by Miss_Deleny on Sep 17^th, 2003, 8:54pm

Welcome to Clusterville! Seems everyone before me has already mentioned about the buttons on the left and how much reading there is to do .. so I won't mention all the great info there. Cootie will be around after a while to hand you your assignments and Jonny ... well, he has kinda lost it .. he actually thinks that he is the King here .. see what CH can do to you if you arent careful?

~April~

Title: Re: New Sufferrer (First time Here)
Post by BarbaraD on Sep 18^th, 2003, 5:25am

Welcome to Clusterville,
Take the quiz, read the info. If what you do have is CH - we're all sorry, but you've found the right place to be. There are about 1000 supporters here to help you through it. We all have them and we KNOW what you're going through.

One thing you'll find is that NOTHING works on everyone. There is NO "set" policy to deal with CH. Everyone of us reacts differently. Time and trial is the only way you'll find what works for you.

REad about the meds that work for "most" and when you go to your neuro go ARMED with a fact sheet. We don't take the docs word for much of anything. We educate the doc - most of them don't know much about CH - we do the research and educate them.

Hope you find out it's a hormonal thing, but if it is CH, pull up a chair - you're home here. Welcome.

Hugs BD

Title: Re: New Sufferrer (First time Here)
Post by 2late on Sep 18^th, 2003, 6:26am

welcome aboard Stephanie! i've had some luck with neurontin in the past. good luck to ya! ..............Jack

Title: Re: New Sufferrer (First time Here)
Post by judyw on Sep 18^th, 2003, 7:40am

Welcome Stefanie :)...Have found the place to be...Hope you are pf soon and can enjoy Jaden in all the wonderful new things he does to make you laugh...143

Title: Re: New Sufferrer (First time Here)
Post by taraann on Sep 18^th, 2003, 7:45am

Congrats on your new baby Stephanie and I'm so sorry you have this damn affliction. Yup like it has been said....read read read and read some more. Great support here you wont find better support than from a fellow clusterhead.

on 09/17/03 at 16:31:29, BobG wrote:

There will be a test! ::) The OUCH website test is at noon tomorrow. ;)

Good luck. If you fail the tests you will not be allowed to keep your headaches.

.

Hey why wasn't I offered this deal?! I am awful at taking tests!!!!

Title: Re: New Sufferrer (First time Here)
Post by ZAIRA on Sep 18^th, 2003, 8:19am

Welcome aboard Stephanie:), but sorry you have to be here.... :'(
There is a wealth of information and support here..... :)
I could not take Neurontin………. I didn't like the side effects...... I hope it works for your CH.

Good Luck, PDFAN to you and stay with us....... Zaira :-*

Title: Re: New Sufferrer (First time Here)
Post by ClusterChuck on Sep 18^th, 2003, 8:45am

Welcome aboard Stephanie! Congratulations on your latest family addition!

You are obviously a Mom and a female! Great news for you! Females don't get CH!!! (WRONG!!)

Make sure you talk to your doctor about using oxygen as an abortive. Works for most, at killing the pain within 10 to 15 minutes. Click on the oxygen info button on the left. Print it out and take it with you to your doctor.

Tara, love, you were not offered this because you are SPECIAL!!!

on 09/18/03 at 07:45:16, taraann wrote:

Hey why wasn't I offered this deal?! I am awful at taking tests!!!!

Welcome again, Stephanie (love that name. It even happens to be my youngest daughter's name!)

Chuck

Title: Re: New Sufferrer (First time Here)
Post by aprilbee on Sep 18^th, 2003, 9:13am

Welcome!! Glad you found us, there is a lot of support understanding and love here for you to gorge yourself on!!

Congratulations on your new addition, and Good luck Sweetie!!

Title: Re: New Sufferrer (First time Here)
Post by goaway on Sep 19^th, 2003, 5:13pm

WELCOME HOME!

Listen and learn.

Speak and help.

Always be there.

We will always be here.

PFDAN to you!!! :)

Title: Re: New Sufferrer (First time Here)
Post by Cooked Brain on Sep 19^th, 2003, 5:48pm

hi there stephanie,

welcome to the board!