Clusterheadaches.com Message Board (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
New Message Board Archives >> Jul-Sep 2003 >> wow--
(Message started by: icculus on Sep 16th, 2003, 3:39pm)

Title: wow--
Post by icculus on Sep 16th, 2003, 3:39pm
just found your site today --

i was diagnosed about 4yrs ago  -
going on 14 yrs of madness...

this site is about to make me cry... & i NEVER cry...

currently in cycle (about 2wks of 3 a day) with "shadow" luming heavily over every minute of every day...

thank heavens for imitrex...

never tried O2 (except for hyperventilating a couple of times)...

good luck, newbie
mike

Title: Re: wow--
Post by hopefull on Sep 16th, 2003, 3:41pm
Glad your here, sorry for the reason ...

Title: Re: wow--
Post by jonny on Sep 16th, 2003, 3:49pm
Im sure we all had a few tears when we washed up here, Bro

Get yourself some 02 and give it a try....let me know if you cant get any, I think I might be able to hook you up somehow ;D

Now grab an oar and start rowing....this boat dont move on its own ;D

Welcome

.......................................jonny

Title: Re: wow--
Post by TxBasslady on Sep 16th, 2003, 5:19pm
:)

Welcome....Hope you find all you need here.  I know that I did.  And found some great friends to go along with all this good information too.

This site pretty much will put you on overload.  It's great !!!!!                  8)

Best wishes to ya, Mike.....hope u have lotz of pfdan's


Jean   (who is not in charge of the oars...but will help ya row....lol)

Title: Re: wow--
Post by stevegeebe on Sep 16th, 2003, 6:12pm
Welcome aboard Mike.  Incredible..ain't it?

Steve G

Title: Re: wow--
Post by Miss_Deleny on Sep 16th, 2003, 7:52pm
Welcome Mike! Sorry that you had to look us up but sure glad that you found us. Like I'm sure you have found, there is ALOT of information here that will take many hours to read but well worth it! Grab a seat (not the one next to Jonny .. he can be a handful at times), a cup of coffee and relax while you look around and meet some of the other nuts sufferers.

~April~

Title: Re: wow--
Post by ClusterChuck on Sep 16th, 2003, 8:41pm
Welcome aboard Mike!  Great group here !!!

Ahhh ... April ...

Quote:
Grab a seat (not the one next to Jonny .. he can be a handful at times), a cup of coffee and relax while you look around and meet some of the other nuts sufferers.


What is this RELAX crap?  With Cootie holding the whip?  Don't listen to her, Mike, you have to start rowing!  heehee

Welcome aboard
Chuck

Title: Re: wow--
Post by Ree on Sep 16th, 2003, 9:07pm
Hi Mike~~~I think I cried too when I got here.  Relieved and Sad at the same time.   Welcome and let us know what you need... back rub... money.........just kidding a little Ree humor (not alot left LOL).  There is a wealth of information for you and those that support you please remember you arent alone anymore... Peace and pain free cozy nights and days to you Ree

Title: Re: wow--
Post by 5-string on Sep 16th, 2003, 9:15pm
Welcome Mike,
Sorry your head hurts. These things really,really suck.
 We know that here. That's the beauty of this sight.
  Have fun looking around.
..Mark..



Title: Re: wow--
Post by Miss_Deleny on Sep 16th, 2003, 9:17pm
I was trying NOT to scare him off before you all got ahold of him ... geesh! Look at what you have done now! Scarin the poor guy!

~April~

Title: Re: wow--
Post by Melissa on Sep 16th, 2003, 9:25pm
Hello Mike and welcome to the family!  Please check out the OUCH website link highlighted in yellow to the left of your screen.  It is a very important organization with info to help you tremendously!

sorry you have to be here, we all know how real and relenting your pain is.  I'm glad you have imitrex!  

take care,
:)mel

Title: Re: wow--
Post by cootie on Sep 16th, 2003, 9:26pm
Hey Mike.....welcome to the 'same boat'......hey I got two whips so row till ya can't row no more.......Pam that stays seated till the ride comes to an end

Title: Re: wow--
Post by Patrick_A on Sep 16th, 2003, 10:25pm
Welcome aboard Mike! I am a tough old Fat man, and i still get tears in my eyes from time to time. We all say the same thing, We are sorry you are here because of your pain but we are happy you found us. Lots of great information here and at O.U.C.H., Find CatLind or Don, they will assign you your own personal oar, get rowing dude, i am getting tired!

Patrick  ;D

Title: Re: wow--
Post by tsayswhy on Sep 16th, 2003, 11:21pm
Welcome best place for ya when you feel like you are rowing so hard and not going anywhere  >:( so jump on our boat and we cry and laugh hell we will even paddle for you. i myself aways found the 3 week the hardest so keep us posted on how you are doing we are only a post away. ;)

Title: Re: wow--
Post by Charlie on Sep 16th, 2003, 11:26pm
Hi Mike:

Welcome and if you look around you'll find some good ideas about handling this horror.

I too did my share of slobbering. For me, the guest book was the worst.

Here are two links: One for a technique I found effective and a second link to a description of this disease which does a wonderful job explaining to employers and others that this has nothing to with what is thought of as a “headache.”

http://www.netsync.net/users/charlies/

http://www.ouch-uk.org/ch/note_colleagues.cfm

Good luck and stick around.

Charlie

Title: Re: wow--
Post by icculus on Sep 17th, 2003, 7:30am
"left"....."right" ..."left"   ::grabbing oar::

its nice to have a outlet for all the years of fustration...

i am seeing a new md today, my old doctor was fired for having an affair with one of his secretaries... so i wanted to see if their was any thing else out there besides imitrex...

currently i use a 20mg nasal imitrex, which cuts about 85% off in 15-20minutes...

i also use 1000mg vicoden for night time or when im not working.  However, i think i get these "rebound" headaches from them....(new info from this site)...just need to make through the night.

thanks for the warm welcome,
mike




Title: Re: wow--
Post by catlind on Sep 17th, 2003, 7:43am
If you want to try and make it through the night, try taking plain ole dramamine.  Many folks have had wonderful results with taking a dramamine before going to bed :)

Glad you found us, now read read and read some more.  Then hit the button on the left and join OUCH and do some more reading ;)

Cat

Title: Re: wow--
Post by aprilbee on Sep 17th, 2003, 7:52am
Welcome Mike!  I join all the others in saying grab an oar and start rowing...Tons of support and love here, it  eases some of the pain to know that this site is here and all these people are part of my family...so welcome to the family!!  ;D

Title: Re: wow--
Post by cootie on Sep 17th, 2003, 9:39am
Did you say 1000 ml of vicodien.....holy crap.......doesn't that make ya all burnt out in the morning or groggy....or cravein for more ! I didn't know you could even take that much at one time. My oxycontin is only 5 ml.........I'm afraid ta take em very often thinkin the doc may say 'no more'......(dunno why he'd do that tho) but they help relieve my ha's and back pain a while...(not ch) So maybe I shouldn't worry and mine aren't that strong ta be of paronoid concern. Sheww 1000 ml's sound like ALOT !!! Be careful ! Pam that hates long term pain

Title: Re: wow--
Post by miCHel on Sep 17th, 2003, 9:49am
Welcome Mike!

Hope this site changes your life (for the better) like it did for a bunch of us.

Loads of super info here.  I think if someone asked for the "Caramilk secret", the answer would come up within a day.  But I am not asking... ;)

miCHel

Title: Re: wow--
Post by ZAIRA on Sep 17th, 2003, 3:41pm

Welcome to OUCH, so sorry you have to be here, unfortunately you are a CH sufferer :-/, but Fortunately you are in a big family now...... stay with us!!! PFDAN........ Zaira  8)



Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.