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        New Message Board Archives >> Jul-Sep 2003 >> A demon by any other name?
        
(Message started by: sadsue on Sep 8^th, 2003, 11:21am)

Title: A demon by any other name?
Post by sadsue on Sep 8^th, 2003, 11:21am

:'(9 years ago I experienced all the classic syptoms of CH. Eventually got diagnosed, believe me I do know what CH is.I say that because some will say that I am not suffering from that particular beast- so changed is it.
Still the murderous pain, the dance, the tears, dilated pupil, blocked nose, but now, although still cyclic they don't just visit for brief spells(same time every day) Now they come for three days .
AND DON'T GO AWAY True, the pain lessens, but remains and then the REAL GRIP recurs as the actual CH used to. Does ANYONE ELSE recognise these changes? ???

Title: Re: A demon by any other name?
Post by hopefull on Sep 8^th, 2003, 1:01pm

Yes but i was told the samething here...I must be someting else...

I have felt like i have a constant HA between big ones...have for 2-1/2, 3 years now it's been bad saw a nuero about 2 months? ago have been on meds and only had 1 bad one since....do have reg. Ha still but I feel like they are so nothing compared to 10's i don't count them

Good luck....be PF
JMC

Title: Re: A demon by any other name?
Post by sadsue on Sep 9^th, 2003, 10:38am

Hello, Hopeful, interested in your story. Can you tell more about meds? ???

Title: Re: A demon by any other name?
Post by taraann on Sep 9^th, 2003, 11:26am

personally the times i have pain constantly in between major hits of CH's for days is usually when i have a nasty migraine going on at the same time as part of m ycycle...