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        New Message Board Archives >> Jul-Sep 2003 >> DAMN!!
        
(Message started by: ZAIRA on Aug 29th, 2003, 2:36pm)
Title: DAMN!!
Post by ZAIRA on Aug 29th, 2003, 2:36pm

:-[ Although I’ve been suffering CH for 10 years I considered I was fortunate – thinking about the chronics – because I was episodic.
Today my doctor told me that I am chronic.
He checked my last year of CH, he was sure that I became chronic, but he didn’t want to tell this to me because he hoped to be wrong... it is not so!
This means that  I’ll get many bumps and I’ll make the subscription to the ER...... ;D >:(!

Sorry, Zaira :'( :-[
Title: Re: DAMN!!
Post by Svenn on Aug 29th, 2003, 3:09pm
Hi there Zazi

Sad to hear about this.
IM crossing my fingers and hoping your doc has wrong.Think you might get another doc to just get a second opinion to.Just in case.

You know we are here if you need a shoulder or anything.
The very best from Svenn
Title: Re: DAMN!!
Post by Cerberus on Aug 29th, 2003, 4:11pm
Oh Zaira -
Soooo sorry!!    Stay hard, sister!!!

Tina   :-*
Title: Re: DAMN!!
Post by CryingInPain on Aug 29th, 2003, 4:49pm
I'm very sorry to hear that!  Here's to hoping you PF days and night and hoping your Dr was wrong! ~Holding up a glass of hmmm well apple juice...no alcohol for us ~

 ~Hugs~
      Jen
Title: Re: DAMN!!
Post by 2late on Aug 29th, 2003, 5:09pm
sorry to hear that babe.....my doc recently used the "C" word on me also, but i'm not gonna take it. good luck to ya Z                                           ..........Jack
Title: Re: DAMN!!
Post by Cooked Brain on Aug 29th, 2003, 6:06pm

sorry to hear that zaira... still it is just an etiket. According to some definitions I am episodic, according to others I am also chronic, cause even uot of cycle i would get HA within every two weeks. Since 8 years I have had my cycle change many times back and forth, never longer than two weeks though, these last two weeks are the first! I suspect there even might be a cycle in a cycle, so you do have chance that this will only be temporary. Whatever it is, we are here for you!
Title: Re: DAMN!!
Post by ClusterChuck on Aug 29th, 2003, 7:54pm
SHIT,  Zazi!!!  

I am so sorry!!  But hey, there are a lot of us chronics here, and we are somehow dealing with it.  How? I haven't the faintest freaking idea, but just remember, it can be dealt with!

Love ya, Dear and always good to chat with you.
Chuck
Title: Re: DAMN!!
Post by ZAIRA on Aug 30th, 2003, 8:23am

I’d like to believe you, I hope that the doctors are wrong, but in the last year the beast was with me constantly, I’ve  never had episodic clusters. in spring and autumn I was always bad... Doc. Bussone  ;D (one of the most important doctors in Italy studying CH, as Doc. Leone) told me last year that I was becoming chronic, yesterday he confirmed it, and if he thinks it... it is bad for me!!  :-[

Anyway..... Love you all and Thank you, Zaira
Title: Re: DAMN!!
Post by suzy617 on Aug 30th, 2003, 8:43am
Sorry for all your suffering Zaira.  Wish you could catch a break.

Stay hard sister!   ;)
Suzy
Title: Re: DAMN!!
Post by taraann on Aug 30th, 2003, 9:05am
Oh Zaira I'm so sorry to hear the bad news!  Hang in there hun and vent and cry and scream to us anytime you want or need to!
Title: Re: DAMN!!
Post by Prense on Aug 30th, 2003, 6:28pm
Take it from a chronic...it's just a label!  Your pain/frequency will not change one bit JUST because a doc has changed your "label".  Hang in there!  It sucks, I know (still untreated here).  I have hope though, and I will continue to do so.

Chris
Title: Re: DAMN!!
Post by Peppermint on Aug 30th, 2003, 8:00pm
Zazita.... sorry the docs said this but don't let it get you down sorellina.  
Stay hard!
Ciao,
Peppi
Title: Re: DAMN!!
Post by totka on Aug 30th, 2003, 8:18pm
I'm so sorry to hear that. I wish you many-many PF days & nights and ... stay hard Zazi!
Title: Re: DAMN!!
Post by Charlie on Aug 30th, 2003, 8:35pm
Very sorry Zaira.

This damn thing truly is a horror. It takes no prisoners but hopefully, neither will you.

Rant away, it's what we're for.

Charile
Title: Re: DAMN!!
Post by Callico_Kid on Aug 31st, 2003, 12:09am
Zaira,

Stay strong!  You have dealt with it this long and the label doesn't make it any worse.  It just takes away the hope of the cycle ending, but at the same time, since becoming chronic March a year ago, I don't have to dread the beginning of a new cycle, or wonder ifit is going to hit out of sequence.  In a lot of ways it has been easier for me to deal with once I accepted it.  You will be in our prayers.

jc
Title: Re: DAMN!!
Post by Roxy on Aug 31st, 2003, 12:15am
Zaira.....just stay hard girl.  Don't let any label change your state of mind.  I have personally decided I'm not chronic....I'm episocic with really, really, really, really long cycles.   ;D

Hang tough girl....and kick some ass!
Title: Re: DAMN!!
Post by nancyc on Aug 31st, 2003, 1:02am
Double damn, sis...so sorry for this news... :'(nancyc
Title: Re: DAMN!!
Post by Jayne on Aug 31st, 2003, 2:06am
Dear zaira.

If this helps ( and I hope it does)
My story!

My Episodic times...PAIN

I turned chronic......PAIN UNDER CONTROL

I have times when it flares up, even when I am chronic.
But with the help of my doctor and some angels here on the board. I have suffered less pain in the whole picture since I have been chronic than I did when I was episodic.

When I was episodic...I always seemed to be playing the catch up game to the pain. Now I am chronic...I know what I have to do everyday...and what I need.
I was like you when I turned "chronic" It was an awful diagnosis......
YOU WILL BE OK.....Just stay one step ahead of the beast at all times and always have your amunition (sp) and beat the bastard everyday........you will become aware and know what your body needs and when! Love Jayne

FIGHT FIGHT!!!! PREPARE PREPARE!!!! MEDS MEDS!!!!!ABORTIVES ABORTIVES!!!!!!!! IT WILL BECAOME A WAY OF LIFE!  
Title: Re: DAMN!!
Post by Tim_w on Aug 31st, 2003, 4:22am
Zaira
Sorry to hear this, but it happens to the best of us!
You will learn to deal with it !
STAY HARD!!!
WISHING YOU PFDAN    Tim_w
Title: Re: DAMN!!
Post by Opus on Aug 31st, 2003, 7:04am
Zazi,
 As I sat reading your posts and started getting hit I think I may join you in a year. I am 4 months into a cycle and I never get hit everyday. This mornings hit was from sleeping more that 6 hours. I am thankful that I get that much but over sleeping scares me. I am able to abort everyone so far and I am not complaining. Actually I was hoping this cycle would end so I can get my memory back for three months  LOL I hope this makes sense

Opus/Paul
Title: Re: DAMN!!
Post by andy on Aug 31st, 2003, 9:18am
Zaira, sorry about your new diagnosis. Do what ya gotta do. Fight that bastard back in to remission my Italian friend. PF 2 you Zaira          ............andy
Title: Re: DAMN!!
Post by Mahle421 on Sep 2nd, 2003, 4:03am
My best advice is tell the docs what u need because most of them don't know.  I am from Rochester, home of mayo clinic, and have see some of the best doctors in the special pain and headache clinic.   I walked across the street to another clinic building and they don't have a clue what I'm talking about.  



Jason
Title: Re: DAMN!!
Post by Jewel on Sep 2nd, 2003, 7:50am
I'm so sorry to hear that Zaira.  You hang in there sweety!   :) :(
Title: Re: DAMN!!
Post by Big_Dan on Sep 2nd, 2003, 7:55am
... damn Zaira... sorry to hear the news... :-/

... here's hopin' that it's a misdiagnosis... and keep on fightin' that bastard....



-Big Dan


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