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        New Message Board Archives >> Jul-Sep 2003 >> Blind Clusters?
        
(Message started by: Timberlea on Aug 28^th, 2003, 6:20am)

Title: Blind Clusters?
Post by Timberlea on Aug 28^th, 2003, 6:20am

???I was just wondering if anybody has experienced what seems to me to be blind clusters. After going through my usual 2 month cluster session, they stopped as abruptly as they started 3 weeks ago to be exact, however now I find that at certain times, like when i have a glass of red wine I am getting all the feelings of the cluster except there is no pain. I can feel that low throbbing on the left side just above and behind my eye, my left sinus has closed right up and when I look in the mirror my eye is swollen and tearing. It is very strange!

Title: Re: Blind Clusters?
Post by ClusterChuck on Aug 28^th, 2003, 6:26am

That sounds like a light shaddow to me. If that is all it is, don't worry about it! You might want to bring it up to your doctor just to make sure. I am NOT a doctor.

One thing we clusterheads KNOW how to do is bug our docs!

Glad you are out of your cycle!

Chuck

Title: Re: Blind Clusters?
Post by Patrick_A on Aug 28^th, 2003, 6:30am

That sounds like what i get about 1 week before my 1st Ch of the season. It also sounds like what i got 1 week after starting my Prednisone and Verapamil cocktail. Its kind of like the missile without the nuclear warhead!

PFDAN, patrick

Title: Re: Blind Clusters?
Post by Jewel on Aug 28^th, 2003, 7:50am

I agree with Chuck, sounds like a shadow. Try not to worry about it. :)

Title: Re: Blind Clusters?
Post by ClusterChuck on Aug 28^th, 2003, 7:57am

Jewel, are you shadowing me?

Chuck

Title: Re: Blind Clusters?
Post by Jewel on Aug 28^th, 2003, 8:00am

Oh shit, you caught on! ;)

Title: Re: Blind Clusters?
Post by don on Aug 28^th, 2003, 9:23am

Doesn't sound like a shadow to me.

I forget the medical terminology but there are cases of people having all the symptoms but no pain.

A shadow ussually doesn't include ALL of the symptoms.

Blind CH is a good referance but there is a medical term for it also.

The wine is abviously causing your system to send yo7u some warnings. Take the hint!

Title: Re: Blind Clusters?
Post by eyes_afire on Aug 28^th, 2003, 12:11pm

Ah yes, the 'Painless CH'... got that for about 5 months after my 13 month cycle... then went back into fullblown cycle...

I would get all the other regular CH symptoms at my normal CH times except for the pain. Was a real mindfuck but sure beats the pain. Those were the days...

--- Steve

Title: Re: Blind Clusters?
Post by Smurf on Aug 28^th, 2003, 12:19pm

Red wine can be a real problem for CH. I've quit it altogther years ago.

Title: Re: Blind Clusters?
Post by jonny on Aug 28^th, 2003, 7:17pm

on 08/28/03 at 09:23:28, don wrote:

I forget the medical terminology but there are cases of people having all the symptoms but no pain.

BINGO!

............................................jonny

Title: Re: Blind Clusters?
Post by ShariRae on Aug 28^th, 2003, 8:46pm

I get it also & when i asked my doc about it..he called it "Phantom Pain" It is there.. but not really...the pain is there but the cause (the ch) isnt. Thats the best he could do..lol
Shari