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        New Message Board Archives >> Jul-Sep 2003 >> support
        
(Message started by: david_spencer on Aug 23^rd, 2003, 9:30pm)

Title: support
Post by david_spencer on Aug 23^rd, 2003, 9:30pm

:othanks to judy and karen for your emails and kind words. am so glad i found this support group. i thought iwas the only person on earth that suffered like this! just recently, i found out my son {age38} has them as well. can these headaches be hereditary? sometimes i crave black, hot coffee when i get one. anyone else? hope to talk to you all again soon. david

Title: Re: support
Post by Ted on Aug 23^rd, 2003, 9:50pm

There is a hereditary factor involved. My father used to get them as well. There's some great info in the OUCH library on the hereditary factor (and much more).
Sometimes I crave black coffee when I get them too. Or when they leave. Or pretty much any part of the day.

Title: Re: support
Post by OneEyeBlind on Aug 23^rd, 2003, 9:54pm

Kim always craves black coffee !!!!!!!!!! Drinks it by the gallons when in cycle. You are not alone. Glad you found us .......... welcome to the board !

Title: Re: support
Post by Prense on Aug 23^rd, 2003, 9:55pm

I drink coffee like crazy when I get hit. It doesn't seem to help the situation, and I have no idea if it makes it worse. They seem to get worse no matter what anyway! :P

Title: Re: support
Post by Charlie on Aug 23^rd, 2003, 10:22pm

So far as I know I'm the first to have this horror but then those old Swedes would suffer anything.

The black coffee thing is interesting because I drink gallons of the stuff and my CH began to disappear about the time I got to drinking more and more. Makes me wonder but it seems so damn simple.

Charlie

Title: Re: support
Post by taraann on Aug 23^rd, 2003, 11:33pm

My grandfather (my mothers dad) got clusters, called them histamine headaches back then..... all I remember is my grandmother telling me about him banging his head against the wall and I just could not picture why he would do that over a headache......guess I learned why the hard way.

Title: Re: support
Post by Danish on Aug 24^th, 2003, 2:09am

No one else in my family have clusters but a lot of them suffer from "ordinary" migraines.

Coffee - OH YEAH!!! I drink lots and lots of coffee when I'm in a cycle... 20 cups a day at the least. :o

:)

Title: Re: support
Post by Patrick_A on Aug 24^th, 2003, 6:15am

My Father also was a sufferer and for years i just assumed it was heriditary but then when i started researching them, eveyone said they are NOT heriditary. I beg to differ. Genetics may have a huge factor in it, maybe its just 2 generations Away instead of 1. I also love my coffee, but i hated coffee when i was 16, and thats when mine started. BUT, I did love Coca Cola, i.e. CAFFEINE!! Makes ya kind of wonder, I have read lots of info on Caffeine, some good, some bad!

PFDAN, Patrick

Title: Re: support
Post by david_spencer on Aug 24^th, 2003, 7:49pm

hi folks! so glad to get so many responses to my questions about headaches being hereditary and the black coffee question. the coffee doesnt seem to help me much either but i crave it just the same. my wife has stayed up all night many times to keep a pot boiling and still work the next day. bless her heart. shes really been thru the wringer with me over the years! its so good to be able to talk to all of you and now i dont feel so alone in this situation anymore. thanks to yo u all. talk to you all soon! david

Title: Re: support
Post by cootie on Aug 24^th, 2003, 8:00pm

Hi david.......have heard stories about Brad's great grama havein sum sorta 'really' bad ha's and puttin a cold rag on her forehead......keep wonderin if she had CH......Pam that only knows bits and pieces

Title: Re: support
Post by Linda_Howell on Aug 24^th, 2003, 8:59pm

David,

Caffeine is a vaso-constrictor, as is many of the medications for clusters like caffergot. Ice also is a vasoconstrictor. I'm not convinced about the hereditary thing. Looks like you have a wonderful supporter there in your wife. I think you should keep her. lol

Linda

Title: Re: support
Post by david_spencer on Aug 24^th, 2003, 9:04pm

hi cootie. yeah- ive tried ice and cold wash cloths but it didnt do much either. i dont think theres a whole heck of a lot that WILL help once one of those headaches gets a grip on you. one doctor told me if he could get me started on medicine before my seasonal attck started it would stop them from starting at all. but who knows exactly when theyll hit? mine has varied from starting a cycle in april to starting in november!he said once i had the first one, the meds were no good. so who knows? propanalol takes the edge off, but is in no way a cure! david

Title: Re: support
Post by Opus on Aug 24^th, 2003, 9:36pm

David,
I use coffee as part of my treatment. It seems to even help Imetrex, esp. to kill thoes wake up calls. Normally I drink 8 cups a day, PF and 12 cups during a cycle.

Opus/Paul

Title: Re: support
Post by kim on Aug 25^th, 2003, 2:02pm

support................wow. how do i properly thank and show gratitude towards any supporter who did not look at me in a somewhat perplexed manner which further aliented me in my illness :)..........it happened for over half my life and can't tell ya whatit means to have someone just hold my hand with eyes welled up and understanding -- to those folks -- you have no idea how important you really are!!!!!!!!!!!!!!!!

To suffer in the hurricane is one thing. To blow around the outskirts and watch and then still cling -- well, that's sumpin ELSE and so godam important.

Thanks to all of you who hold out a hand in the midst of the storm. You are strong and good. Hold tite the rope :)

Title: Re: support
Post by Linda_Howell on Aug 25^th, 2003, 2:43pm

You may talk funny Kim...but just now you made perfect sense.

LindaH

Title: Re: support
Post by Bob P on Aug 25^th, 2003, 2:54pm

I hope all you genetic fuckups have completed the heritability survey at the OUCH site. If not, then do it now. We need this stuff.

My maternal grandfater, also a Scandinavian, had 'em.

Title: Re: support
Post by kim on Aug 25^th, 2003, 3:06pm

Okay Boob, that's the last you'll ever see of my eva-lovin FEET ;D

Hold tite the rope mateys! It's time for the dreaded "questionnaire" LOL. :P

Oh God. I think I farted. I'm not sure. I'll have to go back and check ;D

Shit. And i was making perfect sense a minute ago ;D

I am cute. I am very cute. I'm so fucking cute I can't s STAND IT ;D

Title: Re: support
Post by cathy on Aug 25^th, 2003, 3:58pm

David welcome to the board, coffee is something Wes is going to try if he gets hit in October, will let you know how he gets on...PF vibes to you!

Kim get off that coffee table and I ain't letting go of that rope unless I have too.....OH MY GOSSSHHHHHHH.... ;D

Cathy