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New Message Board Archives >> Jul-Sep 2003 >> Bad News
(Message started by: Jewel on Aug 22nd, 2003, 7:24am)

Title: Bad News
Post by Jewel on Aug 22nd, 2003, 7:24am
11 days PF until last night.   :(

Title: Re: Bad News
Post by BruceD on Aug 22nd, 2003, 7:55am
Sorry to hear that Jewel. Perhaps it was just a fluke ... like one last hurrah before the beast takes his leave. BTW, did you get a chance to give O2 a shot yet?

Take care
BruceD

Title: Re: Bad News
Post by Jewel on Aug 22nd, 2003, 8:16am
No I didn't give oxygen a try yet just because I had gone 11 days without a HA and thought I was reaching the end of my cycle.  

Title: Re: Bad News
Post by JDH on Aug 22nd, 2003, 8:18am
awe man, sorry to hear that Jewel.
time for you to start a new stretch of 11 pf days starting now.
pfdan's

Jim

Title: Re: Bad News
Post by Melissa on Aug 22nd, 2003, 8:36am
Jewel, I'm sorry you got hit! >:(  How long do your cycles usually last?  With me, mine only go for a month, so I know when 30 days have past, and I go at least 4 days PF, my cycle is done.  Hopefully I will be able to keep on predicting it!  I hope this is just a "one time" thing for you, and your cycle is really over.

Good thoughts coming your way!

:)mel

Title: Re: Bad News
Post by Jewel on Aug 22nd, 2003, 8:46am
My cycles NORMALLY last up to one month and I usually get attacked up to 3 times a day.  This cycle has lasted over 3 months now but I haven't gotten hit nearly as much.  It's been an unusual cycle.  

Title: Re: Bad News
Post by Melissa on Aug 22nd, 2003, 8:55am
was there something different this time around?  Like new meds, or a change in stress level at home? (i.e. new job, new home, etc.)  With me, the only thing different with this cycle, is it came 2 months early.  I had a baby June 23rd and my CH's began 3 weeks later.  Like Margi had told me, might have been due to a surge in my hormones from giving birth.  Anyhow, keep us updated on your progress, like I said before, hopefully this is a one time thing, and it goes away real fast!

:)mel

Title: Re: Bad News
Post by Jewel on Aug 22nd, 2003, 9:03am
The last cycle I had was over 3 years ago.  Back then I wasn't on anti-depressants and anti-anxiety medication.   My anorexia wasn't nearly as active either, and I wasn't underweight like I am now.  I don't know if any of these things have anything to do with the difference in this cycle but I suppose they could possibly be factors.

Title: Re: Bad News
Post by Cooked Brain on Aug 22nd, 2003, 9:17am

sorry to hear that jewel, hope you will do better soon

Title: Re: Bad News
Post by cootie on Aug 22nd, 2003, 9:46am
Really really sorry....hopein ya stay PF and no more flukes !!! Pam who's knows a few flukes

Title: Re: Bad News
Post by cathy on Aug 22nd, 2003, 9:52am
Jewel...that sux's sorry yr still feeling the pain....PF vibes coming to you!

Cathy

Title: Re: Bad News
Post by Jewel on Aug 22nd, 2003, 9:56am
Thanks everybody.   :)

Title: Re: Bad News
Post by maggie_may on Aug 22nd, 2003, 9:58am
Sorry to hear that Jewel..  Hope it was just a one time thing and that you'll be pf from now on.

maggie

Title: Re: Bad News
Post by TomM on Aug 22nd, 2003, 11:28am
Bummer, Jewel.

On the bright side...you did have 11 PF days, right? A CHer should count thier blesings where they can find them. My mumble opinion.
TomM

Title: Re: Bad News
Post by Leesa on Aug 22nd, 2003, 12:29pm
Sorry to hear it Jewel.   >:( The good thing is you have 11 days with out the beast knocking your head. You'll soon have more PF time. In that I firmley believe!
Keep up the fight girlfriend I have faith in you, Leesa

Title: Re: Bad News
Post by kim on Aug 22nd, 2003, 12:31pm
Hey Jewel,

It's a let down when ya had yer hopes up, I know.  Hang in, it will end!!!!!!

***Kim

Title: Re: Bad News
Post by stevegeebe on Aug 22nd, 2003, 12:45pm
Hope and pray that it is just an after shock.  

While I've considered myself PF about a month ago, I still get a hit every now and then.

Good luck to you.

Steve G

Title: Re: Bad News
Post by taraann on Aug 22nd, 2003, 12:52pm
SOrry to hear the bad news Jewel...this CH beast is mean like that...I had almost a week PF a while ago and I thought I was lucky that I had a short cycle...but it came back for me too.........I am really hoping it was just a goodbye Hit for you!!  Hang in there it will end sooner or later (but hoping its sooner for you)

Title: Re: Bad News
Post by Charlie on Aug 22nd, 2003, 2:18pm
Damn. You never get a break.

All I can think of is to let us know how you're doing so we can offer some support.

Damn.

Charlie

Title: Re: Bad News
Post by jonny on Aug 22nd, 2003, 5:20pm

on 08/22/03 at 07:24:34, Jewel wrote:
11 days PF until last night.   :(


Join the club.....7 weeks 10 hours and 15 mins PF

Nailed and hard at work with no abortives, ice packs and sucking 02 out of a torch dont cut it but it took the edge off.

I set a fucking record  :'(

........................................jonny

Title: Re: Bad News
Post by Carl_D on Aug 22nd, 2003, 5:45pm
I set my own record since becoming chronic back in February. Went for 2 1/2 weeks without a single CH attack then one night, went to bed and quickly awoke with an attack. It has been downhill from there.

Wishing it was Febraury again...
Carl D

Title: Re: Bad News
Post by Peppermint on Aug 22nd, 2003, 10:05pm
Sorry to hear that... Jewel... Jonny... Carl....

Man!
I hope you get some pain free time real soon.  

Title: Re: Bad News
Post by athos12 on Aug 23rd, 2003, 12:03am
hang in there.....  Pullin for ya...

Title: Re: Bad News
Post by zanychef on Aug 23rd, 2003, 12:44am
hang in there jewel
vibes from the uk comin at ya! ;D ;D ;D
from a 3 hours pf zany lol

Title: Re: Bad News
Post by OneEyeBlind on Aug 23rd, 2003, 3:03am
Hang in there Jewel. Pain free vibes coming your way !!!!!!

Title: Re: Bad News
Post by UnsolvedEquation on Aug 23rd, 2003, 3:21am
Sorry to hear that Jewel. I had 17 PF Days after my first Occipital Nerve Block. That's my record in the last three years. I know how frustrating it is ! Hang in there.
VIBES

Title: Re: Bad News
Post by badfly on Aug 23rd, 2003, 9:32am
Tommorrows another day. Who knows what the dawn will bring? PFDAN ! VIBES !

Title: Re: Bad News
Post by jimbo on Aug 23rd, 2003, 10:14am
Ditto to what Peppermint said!

Seeya,

Jimbo



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