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        New Message Board Archives >> Jul-Sep 2003 >> not sure!!!
        
(Message started by: tsayswhy on Aug 20^th, 2003, 9:51pm)

Title: not sure!!!
Post by tsayswhy on Aug 20^th, 2003, 9:51pm

Hi first time i've been to this site. Just in reading everyone stories,and it so nice hear there are people out there that feel what i am feeling.Been seeing a doctor for 5 years and he will not say what i have. migraine or C/H. they come once a year last for 5 weeks about 8 hours apart, and they HURT!!! so bad always on the right side. Tried allergys shots and beta blocker didn't stop them. taking imitrex and tylenol #3. Doc. just keeps feeding me the pills. I dont understand with all the technolgy out there they cant stop this from happening. I work 3 shifts and trying to get time off for a headache WELL thats another story. i sure am glad to have found this site maybe i can learn alot more. thanks

Title: Re: not sure!!!
Post by cootie on Aug 20^th, 2003, 10:05pm

Hello tsayswhy....sorry you are goin thru all this crap.....good luck to ya and ya found a good place here ta be. Tylonal 3 makes me as sick as too much cheap vodka......blahhhhhhhhh ! Pam that peuked on it last time and briefly fergot why I took it durein that barf session :P

Title: Re: not sure!!!
Post by Charlie on Aug 20^th, 2003, 10:23pm

Welcome aboard and sad to say what you describe sounds exactly like clusters. Glad you found us and stick around. You'll find all kinds of good ideas on how to cope with this horror.

Here is a link to my circulatory technique. It worked well for me and others.

http://www.netsync.net/users/charlies/

Stick around and let us know how you're doing.

Charlie

Title: Re: not sure!!!
Post by BillyJ. on Aug 20^th, 2003, 11:51pm

If your not sure start with the cluster quiz.
here is a list of places to start:
WELCOME ABOARD!!!!

Here is some basic information for those new to the

wonderful world of Clusters:

First off take the cluster Quiz to help you verify that your diagnoses is correct

http://www.clusterheadaches.com/quiz.html

Abortivs:

1.Imitrex ;

a triptan, the most effective in its class-

http://www.rxlist.com/cgi/generic/sumitr.htm

2.100% Oxygen;

http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm

Preventatives:

1.Verapamil; at higher than usual doses is the number one preventative med

http://www.rxlist.com/cgi/generic/sumitr.htm

2.Lithium;combined with Verapamil

http://www.rxlist.com/cgi/generic/lithium.htm

3.Prednisone;

Used as a short term abortive(two-three weeks for relief while a preventative can start working)

http://www.rxlist.com/cgi/generic3/prednistab.htm

(If you have tried theese and they didn't help,don't panic there are still options-

look here http://www.clusterheadaches.com/cgi-bin/meds.cgi )

Finding a good doctor;

1.http://www.clusterheadaches.org/doctors.htm#usa

2.http://www.achenet.org/physicians/

Coping with clusters;

1.lost of support and knowledge on this message board

2.Chat- http://headachesupportgroups.com/echat44/public/index.html

There is certanly a lot to be learned here and many
treatment options,not all options work for all people
And I AM NOT a doctor( I don't even play one on TV! )

Please know that you are not alone and feel free to ask
questions.This is just my suggestion of where to start,I
hope it helps.
PF2ALL,
Billy

Title: Re: not sure!!!
Post by Georgia on Aug 21^st, 2003, 1:37am

Welcome home, clusterhead. Please know that above all else, you have found a place where everyone understands what you are going through.

Read Billy's post. Follow the links he provided. He has given you an amazing start. (Kick ass post Billy!!)

When you are done there....read everything you can on this site and on OUCH (link to the left).

Ask questions, share what ya find, vent, scream, cry, lean, support.....thats what this place is all about.

Peace and love and pain free times,
Georgia

Title: Re: not sure!!!
Post by Peppermint on Aug 21^st, 2003, 5:47am

Man Billy!!! ;D That was excellent.

Tsayswhy - Sounds like you're having a rough time, sorry to hear it, but if you have clusters this is the place to be. Good luck to you, hope you find some relief soon!

Pep

Title: Re: not sure!!!
Post by stuey on Aug 21^st, 2003, 1:43pm

tsayswhy: i am in on the welcoming aboard thing. i am sorry you are in so much pain. you can learn so much about what you are experiencing and what to do on this site, it has helped me tremendously and everybody's personality is so unique. There was somebody asking a few days back what is worst than cluster headaches and someone wrote in a list of things that helped put things in perspective. Although you have a lot on your plate, there are treatments and preventatives you can try, it's all about finding with the help of your neuro what works for you. I was in this isolated island thinking nothing is worse but when I thought about the list someone wrote of things, and when I think of what my young cousin is going through who hasn't begun to live life and what her parents are dealing with while her health fails it helped me realize that while I was dealt something difficult, others still get hit with theirs hard. Keep faith in what you believe, stay courageous, you will find you are stronger than you are and know in your hurting head that it will get better and find comfort in those here who understand what you are going through. Many thoughts and prayers for you. Stuey

Title: Re: not sure!!!
Post by tsayswhy on Aug 23^rd, 2003, 12:01am

THANK-YOU everyone I will go to those sites ;)

Title: Re: not sure!!!
Post by juvy on Aug 23^rd, 2003, 4:15am

Hey Tsaywhy..

glad to see you made it here. Sorry about yesterday at HSG.com, I fell asleep waiting for you to come back on. If you need to rant or just want someone to listen, send me an mail here.

I hope your Doc. figures out every thing and finds a solution that works best for you.

~Juvy