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New Message Board Archives >> Jul-Sep 2003 >> New cluster poll...
(Message started by: Ree on Aug 16th, 2003, 12:26pm)

Title: New cluster poll...
Post by Ree on Aug 16th, 2003, 12:26pm
 Hello CH.COM!  Dave's mom was recently diagnosed with Alzheimers disease... How many other SUFFERERS have or had  parents with Alzheimers or some form of Dementia...??
Just wondering if there is any link there... or if this is something we supporters have to look forward to...(not laughing) NLOL  

think the question is too personal??? don't answer it!

thanks Ree

Title: Re: New cluster poll...
Post by jonny on Aug 16th, 2003, 12:34pm
Dad was showing signs of it at age 75, he never made 76 but thats cause of a stroke.

.........................jonny

Title: Re: New cluster poll...
Post by Donna on Aug 16th, 2003, 1:04pm
Don't really know as Dad died at age 55 of throat cancer.

Title: Re: New cluster poll...
Post by taraann on Aug 16th, 2003, 1:18pm
Don't know about my mom she passed at age 45 (car wreck), my dad I havent spoken with in years but he is still in his mid forties so I assume no,
but my grandmother is showing signs of either severe senility or maybe something worse (time will tell).....

interesting poll idea....wonder what it'll show

Title: Re: New cluster poll...
Post by 2late on Aug 16th, 2003, 2:41pm
no alzhiemers in my family                               .............Jack

Title: Re: New cluster poll...
Post by brain_cramps on Aug 16th, 2003, 2:56pm
none here either...   (at least not that I can remember  ;))

grant      8)

Title: Re: New cluster poll...
Post by Kirk on Aug 16th, 2003, 3:02pm
Nope, nada
Although I suffer from CRS

TTFN

Title: Re: New cluster poll...
Post by Prense on Aug 16th, 2003, 3:40pm
Parents, no...grandparents on my Dad's side, both of them had/have it.

Title: Re: New cluster poll...
Post by Big_Dan on Aug 16th, 2003, 3:43pm
None at all.

My folks are a little young for that yet anyway...



-Big Dan

Title: Re: New cluster poll...
Post by goaway on Aug 16th, 2003, 4:21pm
That's a big no for both sides of my family.

Title: Re: New cluster poll...
Post by Lori on Aug 16th, 2003, 5:32pm
parents only 62,..no signs of it.

Title: Re: New cluster poll...
Post by ClusterChuck on Aug 16th, 2003, 5:38pm
My parents are both 81 years old and no sign of it.  My Mother's Mother did have it in her late 90's.  No other cases of it, other than my own feeble brain!  CRS to the extreme!

Chuck

Title: Re: New cluster poll...
Post by ClusterChuck on Aug 16th, 2003, 5:40pm
My parents are ... wait did I already do this?  Hmmm ... ... Must be getting senile ...

Um ... What is my name?
I forgot ...

Title: Re: New cluster poll...
Post by Drk^Angel on Aug 16th, 2003, 7:12pm
As far as I know, there's never been any dementia in my family.

PFDAN...................................... Drk^Angel

Title: Re: New cluster poll...
Post by brain_cramps on Aug 16th, 2003, 7:25pm

on 08/16/03 at 17:40:29, ClusterChuck wrote:
My parents are ... wait did I already do this?  Hmmm ... ... Must be getting senile ...

Um ... What is my name?
I forgot ...


LMAO Chuck!    ;D ;D ;D

Title: Re: New cluster poll...
Post by Georgia on Aug 16th, 2003, 9:45pm
Ree -

No signs yet in my parents. They are in their 50's still.

My maternal grandmother was diagnosed with it, although after we took her to a neuro, the diagnosis was changed to PICS disease (I am not sure about the spelling of it)...which is basically frontal lobe dimentia. Harvard Research contacted my mom and asked to have my grandmother's brain sent to them after she died. My mother obliged and after they dissected it, they said there was no sign of PICS and there was advanced alzheimers  (stage 4) instead. We still think they made a mistake though. As far as we were concerned, she did not have alzheimers. She knew who everyone was, where she was, what was going on, how much she paid the paper boy, everything about her past....she remembered everything like that. She had problems with social issues...for example, I took her to a dr's appt...he started listening to her heart...she shrieked that he was "just trying to touch my tits" and proceeded to rip her gown off as she screamed "you wanna see my tits? here!! get a good look!!" We had to put her in an adult home, where she was threatened of being expelled more than once for walking around buck naked (and when someone said something to her, she would say.."I am not naked. I am wearing my watch. Shit for brains.") That kinda thing makes us think it was not alzheimers.

So my answer is....maybe my grandma. You may want to include grandparents in your question? I dunno. Sorry...wish I coulda said a simple yes or no.

Sorry to hear about Dave's Mom too. That's a tough thing to deal with. We are here for both of you.

Peace and love,
Georgia

Title: Re: New cluster poll...
Post by hopefull on Aug 16th, 2003, 10:02pm
Grandmother on fathers side was one of 6 kids, 4 had it my grandmother showed no signs when died at 80+
one died of other illness...
father shows no sign of it..but Doctors are study'n the family...my Father has Migrains...
although I think he could have Clusters cause our HA's are so much alike..but I'm not a Dr.

Title: Re: New cluster poll...
Post by daveengland on Aug 17th, 2003, 3:23pm
found out few months back that my grandma,mothers side, always had to go for a lie down in the afternoon because of a headache on the same side of her head.30 or more years.she is now in a home with severs senile dementia.dad dead at 49,all his family dead


dave

Title: Re: New cluster poll...
Post by Darleen on Aug 17th, 2003, 4:55pm
John's father died at age 45 of a massive heart attack and his mom is now 61 and still going strong.

D :)

Title: Re: New cluster poll...
Post by STABBINGPAIN on Aug 17th, 2003, 5:38pm
MY GRATE- GRANDMOTHER AND MY GRAND- FATHER HAD IT... MY MOM'S MOTHER  HAS CHRONIC MIGRAINS AND STARTING TO GET 4-GETFULL.NO DIGNOSE ON HER, MY MOM  HAS ORGANIC BRAIN DAMAGE AND IS ALWAYS IN A FOG...    HOPE THIS HELPS...THANK FOR THE E-MAIL . I FIGURED IT OUT....HA HA ;D

Title: Re: New cluster poll...
Post by cootie on Aug 17th, 2003, 8:23pm
Brad's mom's in her 80's and has a better memory then I ever did. His dad didn't have it either but died bout 8 yrs ago. Pam that could get lost in her own 'pew'

Title: Re: New cluster poll...
Post by Major_Headcase on Aug 17th, 2003, 11:59pm
My mother, now 90, has suffered from Alzheimer's the last couple of years ... only our family didn't cop to it until about a year ago when she broke her hip and the facts had to be faced, it's pretty easy to go into denial about - especially with one's parents.  My mom never had CH or migraines that I know of. Dad died some 25 years ago of a cerebral aneurysm.

Ree,

It's tough ... really tough. My sincere sympathy to you and Dave on his mother's diagnosis, I know how heartbreaking it can be for the relatives and friends of the person suffering with Alzheimers. There are meds available that can slow the progression ... but it is a damned undignified disease, and imho it robs the soul worse than the Beast. My heart goes out to you both.  :(

-John



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