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        New Message Board Archives >> Jul-Sep 2003 >> new too this forum
        
(Message started by: cazman on Aug 16^th, 2003, 9:58am)

Title: new too this forum
Post by cazman on Aug 16^th, 2003, 9:58am

my name is eric ive suffered with clusters since 1997, im currently on the worst cycle ever its been 1 month today that ive gotten nomore that 2-3 hours sleep a night, i just got a persciption for relpax , yesterday thius stuff cost $173 for 9 pills ive tried damn near everything,that is out there including illeagal drugs some work for awhile but not long my today i found this place and its good to know im not alone though i wish it was not nessasary for this to even exsist . been thru alot of the info posted here and i see that there are still options to try , all the doctors ive seen have proven useless and they seen to not have aclue what im dealing with. my girlfriend ive been with for over 5 years has suffered alot in the past month watching me be reduced to an insane sleepless monster , i climb trees for a tree service for a living , needless to say for two weeks now i havent been able to do my job cause my saftey in in jepardy without sleep, 99% of my clusters happen with 30 min of falling asleep relpax works well but i have no insurance to keep paying for it and its way to expensive to keep buying , its still called a prototype med so getting by other means is not possible yet.

well ill stop here for know i will be on this page everyday now and to the people that made this page possible my god bless you a million times over and over thak you so very much im not alone

Eric P Turner ???

Title: Re: new too this forum
Post by Prense on Aug 16^th, 2003, 10:05am

Welcome aboard Eric

There is also a supporters area for your girlfriend. It helps to talk about things with people that understand. Just like clusterheads know what clusterheads experience...only a supporter really understands what another supporter goes through.

You didn't say what other med avenues you have been down, but yes, there are many different routes. I hope you find one that works for you and still allows you to function "normally".

PF vibes for you!!!
Chris

Title: Re: new too this forum
Post by andy on Aug 16^th, 2003, 10:09am

Eric, sorry you are here but glad you found us. There are lots of people here who can help. Have you tried oxygen? It works really well for a lot of us, and it is safe and cheap too. Here is the link for the oxygen info button on the left. http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm Good luck and PF times to you ............andy

Title: Re: new too this forum
Post by Gofishgriff on Aug 16^th, 2003, 11:01am

Welcome Eric. Sorry you had to find this place.

Hope you can find the right stuff to help you get some sleep and that's easier on the wallet.

The other Andy.

Title: Re: new too this forum
Post by Patrick_A on Aug 16^th, 2003, 11:07am

Good luck Eric, I 2nd what everybody else said!
Hang around and you'll make lots of new friends who understand your pain. Maybe you can one day help someone else!

PFDAN, Patrick

Title: Re: new too this forum
Post by Donna on Aug 16^th, 2003, 11:12am

Welcome to your new home. Your room is down the hall, number 4749 on the left. The family room is always open and always occupied, so you'll never be alone with a clusterheadache again.

Since I no longer suffer from this debilitating malady, I don't give out advise on meds, but you'll find more help from others than you'll ever believe.

One thing that I will say is that pain relieveing meds don't usually help CH sufferers, and they are dangerous because cycles last so long that you might become addicted. That's another nightmare.

Good luck in finding what works best for you.

Title: Re: new too this forum
Post by zanychef on Aug 16^th, 2003, 11:40am

hi man sorry to hear you're going through a bad phase but as us brits say keep a stiff upper lip an all that (hard i know)been a chronic for the last 8-10 yrs before that episodic so it doesn't kill you it just feels like it
pfdan
ian ;D

Title: Re: new too this forum
Post by Charlie on Aug 16^th, 2003, 1:04pm

Yeah, damn sorry you had to find us. We understand and know that it's impossible to describe to friends. BUT, This is a link to Simon's letter and it should help you make others understand that this has little resemblance to what people think of as a "headache." Simon's letter is definitely worth a look:

http://www.ouch-uk.org/ch/note_colleagues.cfm

Let us know how you're doing.

Charlie

Title: Re: new too this forum
Post by cazman on Aug 17^th, 2003, 9:21am

;) thanks everyone last night i slept thru {there is a god} im gonna try the oxygen my dad can get it for me for free its gonna take a few days thou , i spent about 3 hours reading here yesterday and i have a way better idear of what i can do to control some of the pain , if i hear one more person in my life say just take an advil ill lose it.
well see i got normall sleep last night im going to the driving range today. thank you for the welcome everyone and my you all have a painless day and night .

Eric.

Title: Re: new too this forum
Post by cootie on Aug 17^th, 2003, 8:49pm

keep readin cazman and hi.....so much info on here......good luck to ya. Pam that learns sumthn new everyday on here