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        New Message Board Archives >> Jul-Sep 2003 >> i'am tired of it too
        
(Message started by: Boots on Aug 10^th, 2003, 8:15am)

Title: i'am tired of it too
Post by Boots on Aug 10^th, 2003, 8:15am

going on 5 months into this cluster,been at it for 24 years now :P.still trying to explain ch at work,been there for 13 years(you still injecting that pain stuff?)my wife asked me last night"arent you done with those ha's yet?".i know she cares and want's to understand but i tell her this cluster has'nt been all that different from the rest.she has seen kip 10's last for an hour and a half and asked me" why don't you sit down and relax, it'll help".i know i don't post alot but i do read yours,and i know only you can really understand.

thanks for listening
Bill

Title: Re: i'am tired of it too
Post by Patrick_A on Aug 10^th, 2003, 9:03am

Wow Bill, I can surely relate! I am sorry to say this, but your wife needs to get a clue. I can understand my co-workers being a bit ignorant. But my family has seen me at my worst CH's and they never make comments that i would deem insensitive. In fact my Dad has been in remission for CH for about 30 years so he totally understands!

Good luck, Patrick

Title: Re: i'am tired of it too
Post by Prense on Aug 10^th, 2003, 9:26am

on 08/10/03 at 08:15:07, Boots wrote:

still trying to explain ch at work,been there for 13 years

I believe recently there was a guy that pretty much hacked his own arm off with a pocket knife (to free himself) after a rock fell on him. Describe it that way, only the pain is in your head/eye. :P The guy was lucky in one respect though, his arm was already numb, and he only had to go through it ONCE!

Man, I still can't believe someone could actually do that.

Seriously, I would suggest having your wife come to this site and poke around...maybe then she might have a better understanding of what you are dealing with. That is extremely important in my opinion. Support from friends and family is everything!

Best wishes!
Chris

Title: Re: i'am tired of it too
Post by Opus on Aug 10^th, 2003, 7:49pm

Bill,
Yes we understand, I gave up on the wife ever understanding, I just hide when I get hit at home if I can.
Work is tough too especially if you haven't made yourself indispensable. Stick around, grab an oar and help us row to a cure.

Paul

Title: Re: i'am tired of it too
Post by Big_Dan on Aug 10^th, 2003, 7:51pm

... sorry that you needed to find this place, Boots.. but you couldn't have done a better thing for yourself...

... sit back, relax, put on a flame-retardant, and get to work... we all have to pull our weight to make this thing happen..

... oh.. and here's some VIBES for ya... ;)

-Big Dan

Title: Re: i'am tired of it too
Post by cathy on Aug 10^th, 2003, 7:58pm

Hi Bill....as a supporter I can only hope that I do really understand as best I can....why not get your wife to register and come and chat on the supporters board.

PF vibes to you!

Cathy

Title: Re: i'am tired of it too
Post by CathiP on Aug 10^th, 2003, 8:06pm

Cathy's right, Bill-you should not have to deal with this alone.....drag your wife, kicking & screaming if you must, to read some of what is here....like what Chris has written- the analogy is good....really good!
I am glad you have spoken up....you are among friends.
BE PF, Bill- and jump in....the water's fine!!
Cathi

Title: Re: i'am tired of it too
Post by Charlie on Aug 10^th, 2003, 8:33pm

Sorry to hear that you're having a hard time making people understand. Here is Simon's letter on this subject that so many have copied and used just for this purpose. It's really worth the effort.

http://www.ouch-uk.org/ch/note_colleagues.cfm

Good luck and stick around Bill.

Charlie

Title: Re: i'am tired of it too
Post by AlienSpaceBabe on Aug 11^th, 2003, 11:12am

CH sucks, don't it?

My brother was in town for the weekend. I got hit repeatedly on Saturday.... he found me and tried rubbing my head. Without ripping his arm out (surprisingly), I moved his hands away and put his thumb at that one spot at the base of the skull, then pointed HARD in front of me. He got it... tried to push that damn thumb straight through my skull - it was perfect!
Ripped my daughter's head off as I dove for the bathtub to douse my head in cold, cold water.

My point? After the first time each person saw me getting hit, I told them what I need and what not to do: Don't touch me. Don't try to make me stop rocking. Ice is heaven. A shot of imitrex - let me do it unless i point at it then my arm... Keep people away - I'm not a circus attraction. If I pull over on the expressway and a sheriff needs to help, get me oxygen, mask with bag, 12 to 15 liters per minute.

Hope this helps,
Lizzie

Title: Re: i'am tired of it too
Post by OwieMan on Aug 11^th, 2003, 2:26pm

I hate it when they ask if its a bad one ...BWAHAHAHAHHAHAHAHAAH