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        New Message Board Archives >> Jul-Sep 2003 >> 1st PF night in 2 weeks
        
(Message started by: Melissa on Jul 24^th, 2003, 12:04pm)

Title: 1st PF night in 2 weeks
Post by Melissa on Jul 24^th, 2003, 12:04pm

Well, I had my neuro visit on Tues. She was awesome! It did help that she was a friend of my mothers, but she was very open and willing to work with me to get the relief I so desperately needed! (I will be listing her on the CH doctors page) Anyhoo, we decided on a combo of Frova (2.5mg 2x day) and Depakote (500mg extended release), plus we are tapering me off the Predisone (I was at 80mg daily). She gave me enough samples of Frova for 4 days (to see if they would help), plus enough Depakote to last 12 (edited) days (until my follow-up appt. with her). Also, for just in case, 2 boxes of trex.

Well, I took a Depakote that night and went to bed. Woke up my usual hour later with a CH, but the CH was on the low end of the kip scale, I'd say about a 4. This went on for the next 3 hours, then it disappeared. I was able to tolerate the pain with ice packs and tons of rubbing and rocking. I went back to bed after all of that, and woke up in the a.m. with a dull HA in the back of my head. I took another Depakote and a Frova, and went through the day PF (except for occasional dull constant HA) in a drug induced state. My body absorbs meds like a sponge, and I seem to get all the side effects that are listed! LOL Anyhoo, last night I was able to sleep through the night with NO CH!!! I only woke up twice to feed the baby, but never got hit.

I feel tons better today, the side effects arn't as noticable and I am keeping my fingers crossed. I will keep everyone updated on my progress.

;D
mel

Title: Re: 1st PF night in 2 weeks
Post by cootie on Jul 24^th, 2003, 12:11pm

That's great Melissa.....hope you can be PF soon and found the rite mix of meds maybe.......wouldn't that be cool !! Yeah......even tho I am a supporter I am the SIDE EFFECTS "queen"......esp the bloating or weight gain effect I jus HATE and drowsyness deals. I think I get side effects from water I am so bad with it.....ha-ha. Good luck to ya....Pam that's life if full of side effects :)

Title: Re: 1st PF night in 2 weeks
Post by Pushkin on Jul 24^th, 2003, 12:53pm

Great that you had a PF night. Many more to you!

Good luck, :)

Title: Re: 1st PF night in 2 weeks
Post by eyes_afire on Jul 24^th, 2003, 6:49pm

Cool Mel 8). Thanks for keeping us updated. I'm glad things are going better.

--- Steve

Title: Re: 1st PF night in 2 weeks
Post by Ree on Jul 24^th, 2003, 6:54pm

Mel I cant imagine having a new baby to contend with and dealing with the attacks too... You hang in there and I will be praying that you have great luck with the new meds.....Love to you Ree

kiss the baby..........

Title: Re: 1st PF night in 2 weeks
Post by Mark C on Jul 24^th, 2003, 6:56pm

PF....FUCKENEH!

;D ;D ;D ;D ;D ;D

Title: Re: 1st PF night in 2 weeks
Post by Darleen on Jul 24^th, 2003, 6:57pm

That's great to hear Melissa. Like Ree said I can't even imagine having attacks over and above having a new baby at home.

Hope the pain free days and nights last for a while

D :)

Title: Re: 1st PF night in 2 weeks
Post by Live4Fun on Jul 24^th, 2003, 7:03pm

Awesome!!!

Keep kickin' A$$ Melissa!

Title: Re: 1st PF night in 2 weeks
Post by Hooter on Jul 24^th, 2003, 7:08pm

Melissa

Great news. Hope it carries on! The only good thing I can think of is that most Ch sufferers are good at dealing with life when sleep deprived, in my experience this is bloody useful when dealing with a baby!

Love

Hooter

Title: Re: 1st PF night in 2 weeks
Post by jonny on Jul 24^th, 2003, 7:10pm

Fingers crossed for you Mel......you go babe!!!

............................jonny