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        New Message Board Archives >> Jul-Sep 2003 >> What works for you?
        
(Message started by: AB024 on Jul 22^nd, 2003, 12:46am)

Title: What works for you?
Post by AB024 on Jul 22^nd, 2003, 12:46am

I have had clusters since I was 12. I am 23 now. Last year was the worst to date. Imitrex injections from the ER didn't even help. I dont like taking anything for them except for excedrin. I have had the injections and the pills. Stadol just fucked me up. I have found that hot water or showers helps alot. I also suck hot water up my nose and that helps a little. In a severe attack nothing works accept time. I have seen hand fulls of doctors but nothing that we try works. Are there any little things that you all do that help you get through hell. I cant drink or eat any dairy when I have these attacks. I am in a cluster right now. I have had 10, 1 hour long attacks in the last 48 hours. What happens to you people? I would like to know. How long do they last for you people? I have had one last 5 hrs and it didn't let up untill the second Imitrex shot in the ER. My cluster tends to last a month to a month and a half and it seems to go on a bell curve. They start out mild and far between and then progress into 3-6 a day and then fade like they came. Does this happen to anyone else?What about preventitive meds that don't have a lot of side effects?

Andy

Title: Re: What works
Post by Kirk on Jul 22^nd, 2003, 1:54am

Have you tried O2 yet? It works to varying degrees for different folks. I don't think you can overdose on it.
I use Imitrex injections and O2. Two to five minutes later and I have a life again.

TTFN

Kirk

Title: Re: What works
Post by Svenn on Jul 22^nd, 2003, 2:51am

Hi there

This is my coctail

Verapamil Retard 120mgX5-7/daily during cycle 3 weeks after last hit tapering down with 1 verap every 3/4 days until you are on 1 a day.1 a day for another 2 weeks you can decide to quit the verap or take 1 a day.Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few seconds after that you are almost painfree
Prednisolone in high doze for 10 days 80mg
then over a 3 weeks periode step down like 70-60-50-40-30-20-10-5mg every 3/4 day
This work fine for me

The very best from Svenn

Title: Re: What works for you?
Post by cathy on Jul 22^nd, 2003, 1:35pm

Hi Andy....welcome aboard, there is a wealth of information here, O2 has helped a lot of people....read read read knowledge is power....PF times to you.

Cathy

Title: Re: What works for you?
Post by echo on Jul 22^nd, 2003, 1:36pm

Welcome to the MB. As was said above - O2 works for quite a few people. I'm not one of them but wish I was.

Title: Re: What works for you?
Post by OwieMan on Jul 22^nd, 2003, 1:52pm

I use the hot shower method for now.

My shower has one of those massager heads and I turn that thing on full blast. All those little hot droplets smacking around on my head and neck helps a whole bunch.

Get the massager head :)

Title: Re: What works for you?
Post by AB024 on Jul 22^nd, 2003, 1:55pm

Thank you all for you replies! ;D

Title: Re: What works for you?
Post by AB024 on Jul 22^nd, 2003, 1:58pm

Has anyone had to have surgery? Does it work?