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        New Message Board Archives >> Jul-Sep 2003 >> Flaming supporters? WTF !
        
(Message started by: don on Jul 21st, 2003, 8:52pm)
Title: Flaming supporters? WTF !
Post by don on Jul 21st, 2003, 8:52pm
I'm starting this off with a quote by Frank. Why? Because Frank I want to know if I read this wrong or your so low as to start slamming supporters.


Quote:
That means the CH Supporters here earlier today helped her leave the board.  
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 9:11pm
Back track re-read some of what was said.Ya'll didn't cut hopeful any slack just assumed s/he wasn't one of you, was alittle different. no one listened ,sounds a little like what people do to us...disbelieve
Title: Re: Flaming supporters? WTF !
Post by don on Jul 21st, 2003, 9:14pm
Good point Home but that isn't what this thread is about.
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 9:15pm
then what is clear it up for me
Title: Re: Flaming supporters? WTF !
Post by don on Jul 21st, 2003, 9:18pm
Simply put..........

Its a question to Frank, noy you, from me.
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 9:22pm
Oh I thought post were for who ever read them    my mistake
Title: Re: Flaming supporters? WTF !
Post by don on Jul 21st, 2003, 9:27pm
You have trouble taking a fucking hint dont you?

LET THE MAN ANSWER !
Title: Re: Flaming supporters? WTF !
Post by FrankF on Jul 21st, 2003, 9:31pm

on 07/21/03 at 20:52:42, don wrote:
I'm starting this off with a quote by Frank. Why? Because Frank I want to know if I read this wrong or your so low as to start slamming supporters.

Don,
I don't believe I flamed any SUPPORTERS. If you go back and read ALL of the threads started by hopefull, replied to by hopefull, and replied to by others... you'll see intolerance for her "newbieness". Many supporters posted not to be starting too many threads. A few others supporters criticizing the CAPS lock button. A few others supporters doubting that she has clusters at all. A few supporters suggesting that she was in the wrong place. (FWIW... I sometimes have attacks four or more hours. Want to flame me off of this board by telling me it is only meegraines?). I am sure the amount of SUPPORT she received was very overwhelming support for a person who lasted here for one day. Geez, even taking the petty complaints to email would have saved her the embarrassment of being publicly humiliated and flamed off of this board. No, I don't think I stooped so low as to slam any REAL supporters. -Negative and offensive FrankF.
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 9:41pm
/thank you Frank for responding! ;)
Title: Re: Flaming supporters? WTF !
Post by kim on Jul 21st, 2003, 9:41pm
who is flaming who don??? >:(

You just fuckin annoyed me.

You were here or t here once...........now you are-=========WHERE????????? ??? ::)
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 9:48pm
*LOL* don't anyone light any matches.... We'll all go up in FLAMES
Title: Re: Flaming supporters? WTF !
Post by Ted on Jul 21st, 2003, 9:58pm
No. I want to answer this shit. She had 20 HOUR ATTACKS! Frank. Your attacks 20 hours? Yeah I'll chase you off the board if they are.
This is bullshit. She hated the questioning of surgery that took place here. She hated the fact that we question anything here and that we would be so dastardly as tell her she could do searches on her questions. How fucking naziesque torture to let someone know a couple of search buttons exist. Fucking get real folks! She had 20 hour headaches, which are NOT clusters, and didn't like that anyone questioned anything.
She wasn't flamed off the board. She was given information, which she couldn't handle. I even made sure I agreed with Cathy and added not to take it as a mean comment.
But I guess it's better to sit here and say "Whatever your symptoms are, you have CH. And don't treat the real pain but come and get a false hug.
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 10:02pm
just because yours don't last that long don't mean others don't it's not like an MD told her this it was a neuro that did so suddenly the neuro is stupid too! who died and made you god of CH
Title: Re: Flaming supporters? WTF !
Post by Ted on Jul 21st, 2003, 10:06pm

on 07/21/03 at 22:02:10, homealone wrote:
just because yours don't last that long don't mean others don't it's not like an MD told her this it was a neuro that did so suddenly the neuro is stupid too! who died and made you god of CH


No. Just because mine don't doesn't mean others don't. But, what's a determinant that does is the fucking criteria that has been analyzed and set by better people than you to determine what a CH is. For instance, if you have a GI infection that is NOT a CH.
So, all your posts seem to involve her. Are you her with a brand new name?
Title: Re: Flaming supporters? WTF !
Post by kim on Jul 21st, 2003, 10:06pm
Now It feels like I've flamed my own arse........

Look. If ya feel like crap and wanna feel betta..........then ya will do what it takes.  I wouldneva contribute  to someones pain, .......but must confess -- i been taken for a ride b4.

SHAME?????????????????Not here.  Ever.
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 10:10pm
no but i do know her...and yes she does fit the bill...everything you claim you have she has except for the time length....it's longer ,now maybe she is have'n rebounds or something along those lines but i've seen her in pain and being a sufferer myself i know what she is going thru...but don't worry she won't be back i'm sure she probably wounders why i thought she should try the web page...
Title: Re: Flaming supporters? WTF !
Post by kim on Jul 21st, 2003, 10:18pm
A web page is a soucrce of information.

I hope you obtain all the information you need to be PF 8)

Don?  Sorry.  I'm a FREAKIN SUCKA. :-[
Title: Re: Flaming supporters? WTF !
Post by Ted on Jul 21st, 2003, 10:21pm
No but I know her? LOL. You are fucking nuts, aren't you. Well, you're not the first to come here and claim to be someone else. LOLOLOLOL
Get lost, Fuck!
Title: Re: Flaming supporters? WTF !
Post by FrankF on Jul 21st, 2003, 10:23pm

on 07/21/03 at 21:58:41, Ted wrote:
No. I want to answer this shit. She had 20 HOUR ATTACKS! Frank. Your attacks 20 hours? Yeah I'll chase you off the board if they are.

No my attacks don't last 20 hours. But I don't recall hopefull directly saying anything about 20 hour attacks either... although I do remember reading "4am to midnight". Nobody asked if she was saying ONE headache lasted 20 hours... or if multiple headaches last 20 hours? No, by that time the "supporters" here had had enough and were intent on helping her off of the board.
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 10:23pm
What ever makes you feel better ... a reall man I guess..your one sad puppy boy
Title: Re: Flaming supporters? WTF !
Post by don on Jul 21st, 2003, 10:28pm
So to be clear Frank.

You weren't slamming supporters, supporters being non CH sufferers, just using the term supporter in a general sense applying to sufferers as well who answered the previous threads?

Just re-read your response. I was hoping what I said above was the case and I mis interpreted .

Home who the fuck are you anyway? A sufferer?
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 10:30pm
yes
Title: Re: Flaming supporters? WTF !
Post by Ted on Jul 21st, 2003, 10:31pm

on 07/21/03 at 22:23:17, FrankF wrote:
No my attacks don't last 20 hours. But I don't recall hopefull directly saying anything about 20 hour attacks either... although I do remember reading "4am to midnight". Nobody asked if she was saying ONE headache lasted 20 hours... or if multiple headaches last 20 hours? No, by that time the "supporters" here had had enough and were intent on helping her off of the board.

So, when we didn't ask her if those one headaches she said she had for 20 hours if she meant that, we are dicks? And another thing. Are you taking the whole conversation into context or just the parts that let you play superhero? There was a lot discussed here with her 40 posts in less than 24 hours.
Title: Re: Flaming supporters? WTF !
Post by don on Jul 21st, 2003, 10:38pm

Quote:
a reall man I guess..your one sad puppy boy


Home you aint been around here long enough to be making judgements about anybody.

You want to step on toes I got some big fucking feet. Be wearing your fucking running shoes though.
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 10:42pm
*LOL*LOL*LOL*
Title: Re: Flaming supporters? WTF !
Post by OwieMan on Jul 21st, 2003, 10:46pm
They type the same too...

Sorry I'm a n00b but had to point it out.
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 10:48pm
*smile'n*
Title: Re: Flaming supporters? WTF !
Post by don on Jul 21st, 2003, 10:53pm
They are the same.



OPIE
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 10:55pm
no just very much a like in our thinking...she is my daughter...I take it ya'll don't have your own kids suffering from this
Title: Re: Flaming supporters? WTF !
Post by cootie on Jul 21st, 2003, 10:56pm
Ummmm do you new guys realize you are attackin the prez of Ouch......so who died and left the newbies in charge Pam
Title: Re: Flaming supporters? WTF !
Post by FrankF on Jul 21st, 2003, 10:56pm

on 07/21/03 at 22:31:06, Ted wrote:
So, when we didn't ask her if those one headaches she said she had for 20 hours if she meant that, we are dicks?

Yes. You never asked her to explain, or even give her a chance to... Dick.

Quote:
And another thing. Are you taking the whole conversation into context or just the parts that let you play superhero? There was a lot discussed here with her 40 posts in less than 24 hours.

I'm taking the whole day's posts started by her, replied to by her, and started by me or by other "supporters" into context.
I have had the same discussion many times over the past four years, so I don't expect now for some here to get it.
Title: Re: Flaming supporters? WTF !
Post by don on Jul 21st, 2003, 10:56pm

Quote:
OPIE
Title: Re: Flaming supporters? WTF !
Post by don on Jul 21st, 2003, 10:58pm
Dontcha get it yet Frank. He aint for real. He'll be gone in a couple of days.

He is father and daughter.

So if we told him to go fuck himself...........would that be incest?
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 11:00pm
This is so funny ya'll are so piss'n mad cause you are determind she doesn't have CH...when you HAVEN'T all the imfo and never really wanted it
Title: Re: Flaming supporters? WTF !
Post by don on Jul 21st, 2003, 11:02pm
Hey Homes...............

Hows bout dem Red Sox?
Title: Re: Flaming supporters? WTF !
Post by OwieMan on Jul 21st, 2003, 11:03pm
Blame it on the other people that travel sickness messageboards all the time and pretend they have the same illness, just to be a part of that community.

It happens.
Title: Re: Flaming supporters? WTF !
Post by don on Jul 21st, 2003, 11:07pm
BINGO OWIE !
Title: Re: Flaming supporters? WTF !
Post by cootie on Jul 21st, 2003, 11:16pm
Opie.......blahhhh-ha-ha-ha-ha-ha-ha-ha.....good one Don........Pam that has been up WAY too long  :P
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 11:19pm
Didn't Manny just hit his 24 home run?
Title: Re: Flaming supporters? WTF !
Post by don on Jul 21st, 2003, 11:21pm
Nope that was...................


OPIE
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 11:22pm
so you don't know i take it
Title: Re: Flaming supporters? WTF !
Post by FrankF on Jul 21st, 2003, 11:23pm

on 07/21/03 at 22:58:23, don wrote:
Dontcha get it yet Frank. He aint for real. He'll be gone in a couple of days.

He is father and daughter.

So if we told him to go fuck himself...........would that be incest?

NOPIE! I don't get it yet. Maybe I'm stupider than y'all. Maybe tomorrow?
Title: Re: Flaming supporters? WTF !
Post by homealone on Jul 21st, 2003, 11:40pm
That was a response to the Red Sox question
Title: Re: Flaming supporters? WTF !
Post by FrankF on Jul 21st, 2003, 11:49pm
So maybe I don't know... I'm having doubts now too... Who the fuck are you?
Title: Re: Flaming supporters? WTF !
Post by Ted on Jul 22nd, 2003, 12:17am
Frank, it's cool. Remember the thread I wrote, maybe 4 months ago where you responded about sybil? Look here again with those eyes and you'll see what we're saying.
Title: Re: Flaming supporters? WTF !
Post by cathy on Jul 22nd, 2003, 1:57am

:'(...thats it, hopefull that you'll just go away....even if you do have CH you are not the type of person I want to support, and for your information Frank I did more than post on the message board....she/he admitted to having clusters that lasted a long time...you should do your homework...

Cathy
Title: Re: Flaming supporters? WTF !
Post by cbolony on Jul 22nd, 2003, 4:32am
From the Front Page

Quote:
This site is devoted completely and exclusively to those that suffer from, and to the supporters of those who suffer from Cluster Headaches!

That means that we are here to help and give advice
for Clusterheads.But if you need advice about any other Headache we will try and help you and steer you in the right direction.
Title: Re: Flaming supporters? WTF !
Post by don on Jul 22nd, 2003, 8:16am
What aren't you getting here CB.

The guy is a troll, illusion, figment, intruder, hacker, multiple. By GOD he is an OPIE !
Title: Re: Flaming supporters? WTF !
Post by cbolony on Jul 22nd, 2003, 8:22am
OK Don I get it
Title: Re: Flaming supporters? WTF !
Post by Margi on Jul 22nd, 2003, 9:51am
OK, Frank, I've known you for a long time here and we've had some conversations off the board.  I've always liked you and know that you are a good man.

The ONLY thing I take exception to in your defense of your comment about supporters is where you say that you didn't flame any REAL supporters.  The issue of the newbie, at this point, is moot I think.  This has become a personal attack on a supporter - and, Frank, I'll go to bat for supporters every single time, ok?

Cathy IS a real supporter, Frank.  She works hard to be a real supporter and the only way anyone CAN work hard at being a REAL supporter is to witness genuine cluster attacks and deal with all the "fun" that brings into our daily lives.  Cathy has done this - she has first hand knowledge of cluster headaches.  I think any supporter who lives with clusters in their lives IS a pretty good diagnostician as to what is and what isn't cluster headache.  We can usually spot an attack looming before the sufferer can.  Think about that.  There ARE lots of physical signs that supporters see, that sufferers don't, ok?  There ARE mile markers that we see with each individual attack.  There ARE differences between regular headaches, migraine headaches, sinus headaches, stress headaches, and cluster headaches.  We supporters SEE those differences.  We HAVE become expert watchdogs, Frank - we've had to.

Do supporters have more specific and realistic knowledge of cluster headaches than doctors do?  Abso-friggin-lutely we do.  These neuros, or general practitioners probably can count on one hand the number of cluster attacks they've seen in person.  Supporters have probably witnessed cluster attacks that number in the thousands.  I know I have.   I'm sure Cathy has too.  Repetitive witnessing like that DOES lead to knowledge and understanding.  To me, it's the analogy of the kid fresh out of college with a degree that took him 7 years of showing up in class every day to learn theory, compared to the musician that's been playing the music for 20 years.  Get the point?

I think Cathy was absolutely right in catching that '20 hour' attack thing.

I think, sometimes, sufferers forget what we supporters see from this side of the fence.  Maybe you don't realize the depth of knowledge that comes with witnessing even just one single, genuine cluster attack.  Maybe some of the sufferers who have now seen attacks first hand at the convention have gotten a little taste of what it feels like to be a cluster supporter.  

No, I think Cathy was absolutely justified in pointing out that this person wasn't suffering from clusters.  And I think she has the qualifications to do it again if she sees something that doesn't ring true for her.   And I'll go to bat for her, or any other REAL supporter again, too, if I see someone questioning their qualifications.

p.s. Frank, one more thing...  this is Cathy's quote from the bottom of all of her posts:  "My own tears would mean nothing to me, if I could stop you from just shedding one......" You tell me that THAT is not a REAL supporter's attitude, Frank?  I will tell you that you're WRONG then.  That single quote that she uses just exemplifies what supporters live and breathe, Frank.  
Title: Re: Flaming supporters? WTF !
Post by catlind on Jul 22nd, 2003, 10:02am
I got to see it Margi.  And much to my horror, too many times.  I'll take the CH side of the fence hands down to the supporter side of the fence.

I never want to see anyone I love as much as I do my family here and in my home suffer this pain again.  I know I will, and I'll get through it, but it will rip my heart everytime.  

Cat
Title: Re: Flaming supporters? WTF !
Post by FrankF on Jul 22nd, 2003, 10:30am
Margi,

Maybe I didn't say what I mean't quite right. I know the cluster supporters here are great people. But those who were flaming hopefull off of the board were not supporting HER. If she has single headaches that last for 20 hours, I would agree that she probably does not have clusters. If it's several attacks back-to-back over 20 hours, then maybe it could be clusters. Maybe 4am to 12pm was a typo (could have mean't 4pm to 12pm?). I really don't know.

I do know that she never got a chance to explain before people went into attack mode starting with the crap about starting too many threads, asking too many questions, TURN OFF YOUR CAPSLOCK, 20 hours huh... we think you're an OPIE, etc. That's what I was bitching about.
Title: Re: Flaming supporters? WTF !
Post by Patrick_A on Jul 22nd, 2003, 10:43am

on 07/21/03 at 22:56:12, cootie wrote:
Ummmm do you new guys realize you are attackin the prez of Ouch......so who died and left the newbies in charge Pam


Yea, but the President of OUCH has a way of antagonizing new people on the board. In fact i noticed the regulars doing it the last time (3 years ago) and nothing has changed since then.
I personally think that if you have nothing positive to add to someones questions, then ignore it! If you have negative information you need to share, then put it tactfully.
That is what some people seem to lack on this board!
This is not "YOUR" board, this is our board. It is for information gathering. So what if i am a "Newbie", I am wanting specific information whether it applies to you or not!

I personally have had Ch's spawn off into Migraines that lasted for many hours. Migraines for me are tolerable but still painful.

Just my 2 cents, Patrick
Title: Re: Flaming supporters? WTF !
Post by Ueli on Jul 22nd, 2003, 11:25am
OK, LET'S ALL STARTING TYPING IN CAPS, SO WE NEVER AGAIN HAVE TO REMIND SOMEBODY TO TURN OF THE CAPS LOCK. ADDED ADVANTAGE: EVERY NEWBIE WHO UP TO NOW WAS USED TO WHINING IN AN AOL CHATROOM ONLY DOESN'T HAVE TO MAKE THE SLIGHTEST EFFORT TO ADAPT TO THOSE ALREADY SOME TIME ON THIS MB.
ALSO, WE SHOULD TRY TO KEEP IN MIND THAT NOT EVERYBODY IS ADEPT IN EXPRESSING HIS THOUGHT AND SYMPTOMS PRECISELY AND, THEREFORE, WE SHOULD ABSTAIN FROM ASKING ANY QUESTIONS, AS THIS MIGHT HURT THE FEELINGS OF A SENSITIVE NEWCOMER.
SO, LET'S RESTRICT OURSELVES TO NOTHING ELSE BUT LOTS OF FUZZY OUTPOURINGS. AFTER ALL, WE ARE NO DOCTORS AND IT COULD WELL BE THAT VERAPAMIL AND IMITREX ARE USEFUL FOR BRAIN TUMORS AND TENSION HEADACHES TOO.

THANK YOU FRANK FOR YOUR RELENTLESS EFFORT OF KEEPING NEWBIES FROM LEARNING SOMETHING NEW GET HARMED.
UELI
Title: Re: Flaming supporters? WTF !
Post by Mark C on Jul 22nd, 2003, 11:26am
My 2 cents worth is.......

A true Clusterhead or supporter will pass the time test. Given time we can all tell.

I do not have anywhere else to go. This is last house on the end of the street. I cried when I found this place, it is much more than a message board to me, and quite a few others.

I....WE are very protective of our place....however, new people do not have have an impossible time acclimating to this message board if they are real and honest. I became a member of this message board almost a year ago in the middle of the worst cycle I had in years so full of self-pity and depression I hated life. If my now brother jonny had not said......

on 10/06/02 at 20:33:56, jonny wrote:
Man, I went 14 yrs chronic  and was never near the breakdown you are about to have.

The kicker is I had no meds for those 14 years.....im still here over a decade later.

................................jonny


I might still be wallowing in a lake of self-pity.

I consider myself a full fledged member of the community and I think most of you agree....how did this happen? I went and re-read some of my first posts...I was a basket case. Now I am actually grateful for being episodic...and I refuse to leave this MB just because I am between cycles now....hell I am due just about anytime anyway and I sure plan on bitchin and moaning when the beast returns....and it will return.  :-/

I am a Clusterhead. I suffer the most painful condition known to man. Nothing anyone can say can faze me...after almost 30 years of this shit I am one tough mutherfucker.

Please continue  ;D

PFDAN's
Mark
Title: Re: Flaming supporters? WTF !
Post by FrankF on Jul 22nd, 2003, 11:35am
This crap is getting old. I think I'm going to go here http://www.sfn2.com/forum/showthread.php?s=6a727e6d543c1dad7faf59fd59801480&threadid=19893 and send flame-mail to Kobe's accuser.
Title: Re: Flaming supporters? WTF !
Post by DouglasL on Jul 22nd, 2003, 11:38am
[quote author=Patrick_A link=board=general;num=1058838762;start=40#52 date=07/22/03 at 10:43:04]

Yea, but the President of OUCH has a way of antagonizing new people on the board.


I agree Patrick.
But as it has been pointed out before. OUCH and CH.COM are two different things.
You would think that a prez of any organization would strive to retain a better level of decorum.
DougL
Title: Re: Flaming supporters? WTF !
Post by cootie on Jul 22nd, 2003, 11:46am
Your whineing is boring me Frank.....don't try to change this family.......learn to fit in.......learn from your mistakes and others. Ignore what ya don't like and move on with us not against us. Pecking orders are a bitch but a neccecity of life Pam  >:(
Title: Re: Flaming supporters? WTF !
Post by OwieMan on Jul 22nd, 2003, 11:52am
That's a messed up thing and buncha messed up people on it Frank.
Title: Re: Flaming supporters? WTF !
Post by FrankF on Jul 22nd, 2003, 12:06pm

on 07/22/03 at 11:46:07, cootie wrote:
Your whineing is boring me Frank.....don't try to change this family.......learn to fit in.......learn from your mistakes and others. Ignore what ya don't like and move on with us not against us. Pecking orders are a bitch but a neccecity of life Pam  >:(

This board has turned into a big stinking shithole since yesterday and I alone am not responsible for that happening, am I?
Title: Re: Flaming supporters? WTF !
Post by Ted on Jul 22nd, 2003, 12:21pm

on 07/22/03 at 10:30:14, FrankF wrote:
I do know that she never got a chance to explain before people went into attack mode starting with the crap about starting too many threads, asking too many questions, TURN OFF YOUR CAPSLOCK, 20 hours huh... we think you're an OPIE, etc. That's what I was bitching about.


Really? Cathy and others very nicely asked Munch (my new nickname for this Munchausen person) to keep her questions to one post to limit the number of threads started so others (who REALLY have CHs) won't have their posts pushed off the board. I, very nicely, pointed out that there were 2 search buttons to get even more info than the responses she was getting. I guess to you doing anything but saying "C'mere Munchy-Wunchy. Let me give you a big ol' hugsy-wugsy" is attacking her/him?
Title: Re: Flaming supporters? WTF !
Post by cathy on Jul 22nd, 2003, 12:34pm

on 07/22/03 at 10:30:14, FrankF wrote:
. But those who were flaming hopefull off of the board were not supporting HER.  ???

If she has single headaches that last for 20 hours, I would agree that she probably does not have clusters.  :-X

If it's several attacks back-to-back over 20 hours, then maybe it could be clusters. Maybe 4am to 12pm was a typo (could have mean't 4pm to 12pm?). I really don't know. EXACTLY

I do know that she never got a chance to explain before people went into attack mode starting with the crap about starting too many threads...Attack mode is a bit strong... ::)

TURN OFF YOUR CAPSLOCK
That's what I was bitching about. I think you just wanted to start another shit storm YOU succeeded.


Okay MY first post to Hopefull said "Hi and welcome PF times to you.

MY second post said....Hi Hopefull NO DISRESPECT, but why not keep yourself to one post, im having trouble keeping up with you  ;D ....this was because she had started at least 4 posts by now, and I did want to help!

My third post said.... ??? because she was leaving...

My forth post said...Hopefull hello again!! are you sure you have clusterheadaches... ??? This was because if she doesn't, then maybe the meds she is on will not work for her, and if she has been misdiagnosed then she needs to know.

My fifth post said...Hopefull please dont shout..(Caps locked) it's rude, we are trying to help thats all....CH don't usually last that long..what other symptoms do you have..?

My sixth post said....Look if your Neuro has misdiagnosed you then your not going to get the right meds or the right help, all I was saying was that clusterheadaches don't normally last longer than 4 hours max...usually about 45 minutes...maybe you should seek a second opinion

My Seventh post....Thanks...and we hope you get the help you need.

My next two posts were my anger at you for accusing me of running this person off the board...??? Im sorry Frank but please point out where... ??? ???
and YES YOU are responsible for this.

Cathy
Title: Re: Flaming supporters? WTF !
Post by cathy on Jul 22nd, 2003, 12:37pm


btw...in case you missed it...this was my last post to you Frank.....I WAS TRYING TO HELP someone who was in my opinion NOT suffering with CLUSTERHEADACHES, all you seem to do Frank is stir up the shit, you want shit, give me some today, because sonny im in the mood!!!!!!! ARSEHOLE.

Title: Re: Flaming supporters? WTF !
Post by oringkid on Jul 22nd, 2003, 12:37pm
Wow...I don't check in for a day and this place goes to hell!

I haven't gotten to read all of this stuff... but sounds to me like there's some fishy stuff goin' on... And Frank, no, the shitholedness of which you speak is not your fault alone.  And although I understand your continuing fight for nicer newbie treatment, you might want to pick your fights more carefully.... you may find that some should not be fought...  Just a thought... and not trying to flame.

I shall now endeavor to slog my way through the rest of the posts.

Sherry
Title: Re: Flaming supporters? WTF !
Post by OwieMan on Jul 22nd, 2003, 12:38pm
nly thing I have left to say on the subject is that these boards need a standard way of dealing with suspected Barons.

One thing that I have learned from reading about this whole act is that it usually causes problems for the support groups and that doesnt need to happen.

It would be good if someone could put up a faq about dealing with these situations and maybe some proper ways of dealing with them. I understand the defensiveness on both sides and think that maybe it would be in the best interest to prepare people for such things.

There is a bunch of information about this on the internet and I dont think it would be to hard to get something like this added. It might be helpfull to both the community and the people that have the problem if everyone was made aware of it.

I've read several things about it and they do give some basic guidlines of what to look for and how to deal with the situations in a healthy way. Anyhow, I'll leave that up to you guys.
Title: Re: Flaming supporters? WTF !
Post by FrankF on Jul 22nd, 2003, 12:49pm

on 07/22/03 at 12:21:29, Ted wrote:
Really? Cathy and others very nicely asked Munch (my new nickname for this Munchausen person) to keep her questions to one post to limit the number of threads started so others (who REALLY have CHs) won't have their posts pushed off the board. I, very nicely, pointed out that there were 2 search buttons to get even more info than the responses she was getting. I guess to you doing anything but saying "C'mere Munchy-Wunchy. Let me give you a big ol' hugsy-wugsy" is attacking her/him?

I didn't have a problem with what you posted Ted. I have a big problem people teaching newbies proper netiquette when a half dozen people jump on it at once. What are we going to have next... the fucking "Spelling Police"?

Whether helpfull really has clusters or doesn't... or hopefull = homealone... wasn't my original issue. BTW... do you know what started this piece of shit thread?

Quote:
Pssst.... "hopefull" isn't here anymore, so no use replying to her posts. See the username in black (not green)... and below her name it says "Guest"? That means the CH Supporters here earlier today helped her leave the board.


I was suggesting that it was silly to keep replying to her posts since she wasn't here anymore. Apparently Don thought that worthy of starting a four page flame war.
Title: Re: Flaming supporters? WTF !
Post by don on Jul 22nd, 2003, 12:53pm
Lets get one thing straight AGAIN!

When I post here I am not the prez of anything. I am a sufferer/supporter/ assh#le/jokester/antagonizer/etc.
like any one else who posts here. I will not modify my personality while posting here to fit a position or perspective. PERIOD! AGAIN!

I'll give you two for instances.................

1. UELI YOUR KILLING ME............and..................................

2. DouglasL go fuck yourself.
Title: Re: Flaming supporters? WTF !
Post by FrankF on Jul 22nd, 2003, 12:55pm

on 07/22/03 at 12:34:31, cathy wrote:
...My next two posts were my anger at you for accusing me of running this person off the board...

I'd say it was a group effort.
Title: Re: Flaming supporters? WTF !
Post by oringkid on Jul 22nd, 2003, 1:00pm
Truly, I didn't see in that one thread that Cathy just quoted where they (Cathy or Ted or anyone else) said anything that should have run anyone off.

I think I will now back out of this LOL!


Hey! I volunteer to be the Spelling Police!!! LMAO.

Sorry ;D

Sherry
Title: Re: Flaming supporters? WTF !
Post by echo on Jul 22nd, 2003, 1:10pm

on 07/22/03 at 13:00:32, oringkid wrote:
Hey! I volunteer to be the Spelling Police!!!

Sherry


Tanks fr stppen n 2 help us phigure out who did wha to whomn an spl checkin fer us! ;D
Title: Re: Flaming supporters? WTF !
Post by TomM on Jul 22nd, 2003, 1:15pm
Excuse me. Can I butt in?
I happened to mention to the late Hopeful that on the left was the button "LiveChat" and suggested she invite others to chat before entering...’Otherwise you'll end up chatting with yourself.’
Then, after the many new threads started, Cathy noted that she was having a hard time keeping up with her and suggested she keep it in one thread to which Hopeful did not. I then got a gut feeling that something was weird about these posts.
Now...BobG...where's the Frisbee?

TomM
Title: Re: Flaming supporters? WTF !
Post by oringkid on Jul 22nd, 2003, 1:18pm
.... or maybe I should just be a translator...LOL!


Quote:
Tanks fr stppen n 2 help us phigure out who did wha to whomn an spl checkin fer us!


Thanks for stepping in to help us figure out who did what to whom and spell checking for us.

(oh com eon echo, yuo cn do bettre tha tat.  relly put yuor mine toi t ! LOL!)

Shrry (the Orange Kid - Gene I will never forget cuz I loved it!)
Title: Re: Flaming supporters? WTF !
Post by don on Jul 22nd, 2003, 1:21pm

Quote:
I volunteer to be the Spelling Police!!!


I will surrender under two conditions

1. You strip search me

2. You pat me down (slowly and for a long time)
Title: Re: Flaming supporters? WTF !
Post by oringkid on Jul 22nd, 2003, 1:24pm
Ok Don... but don't you think that the metal ruler that I will use to punish you would hurt more that way?


Sherry ;D
Title: Re: Flaming supporters? WTF !
Post by cootie on Jul 22nd, 2003, 1:24pm
Hey Don how's that harmonica.........Pam that called Don prez and hope he's not mad at me  ;D  
Title: Re: Flaming supporters? WTF !
Post by cathy on Jul 22nd, 2003, 1:26pm


Frank ... :P

Sherry....Sor  ;D

Don can I help sherry... ::)
Title: Re: Flaming supporters? WTF !
Post by echo on Jul 22nd, 2003, 1:29pm

on 07/22/03 at 13:26:10, cathy wrote:
Don can I help sherry... ::)


Can I be second in line for the search?
Title: Re: Flaming supporters? WTF !
Post by don on Jul 22nd, 2003, 2:37pm

Quote:
Hey Don how's that harmonica.........


Let you know after the pat down.


Quote:
hope he's not mad at me  


Might require a pat down


Quote:
Don can I help sherry


Two pat downs are better than one


Quote:
Can I be second in line for the search?


Just dont stand to close
Title: Re: Flaming supporters? WTF !
Post by hopefull on Jul 22nd, 2003, 3:21pm
Not that anybody care!....I just got back from the neuro quized him about clusters he assured me i have them he has no doubts he treat many with them...the all day/rebounds was talked about he told me in his experiences persons that have ha's for years seem to have losts of rebound ha's with what ever med they take...so he's starting out low and slow as to not add to the cycle of rebounds plus topral-xl has a side effect of depression and he doesn't want me to have a problem with that... he wants to get them managable first not make them worse....
Title: Re: Flaming supporters? WTF !
Post by echo on Jul 22nd, 2003, 3:27pm

on 07/22/03 at 15:21:35, hopefull wrote:
Not that anybody care!....... ....


We care.


on 07/22/03 at 15:21:35, hopefull wrote:
....... he wants to get them managable first not make them worse....


At least he has a plan.  Some of mine in the past throw so many drugs at CH at one time you tend to forget who you are and the side effects just plain kick your a ss.
Title: Re: Flaming supporters? WTF !
Post by hopefull on Jul 22nd, 2003, 3:31pm
He seems to care about the whole person not just making his money...I was having an attack last Friday while in his office he was very kind and concerned for my well being as well as the staff...they wanted to make sure i got home ok
Title: Re: Flaming supporters? WTF !
Post by Hooter on Jul 22nd, 2003, 3:33pm
Hey Frank

Feeling silly yet? Driven away? I should think not
Title: Re: Flaming supporters? WTF !
Post by hopefull on Jul 22nd, 2003, 3:38pm
sorry Frank about the heat your taking mean you no harm
Title: Re: Flaming supporters? WTF !
Post by taraann on Jul 22nd, 2003, 3:57pm
I just HAVE ;D to say 2 things...
#1 glad to hear you have a doc u like hopefull
#2 WOW to all this arguing!
Title: Re: Flaming supporters? WTF !
Post by FrankF on Jul 22nd, 2003, 4:05pm

on 07/22/03 at 15:57:38, taraann wrote:
I just HAVE ;D to say 2 things...
#1 glad to hear you have a doc u like hopefull
#2 WOW to all this arguing!

I think eleven pages is the flame-war record.
Title: Re: Flaming supporters? WTF !
Post by hopefull on Jul 22nd, 2003, 4:07pm
are you going for the record...or did you run out of gripe
Title: Re: Flaming supporters? WTF !
Post by OwieMan on Jul 22nd, 2003, 4:08pm
:o
Title: Re: Flaming supporters? WTF !
Post by hopefull on Jul 22nd, 2003, 4:17pm
I understand*smile*...that was ment for Don though...sorry Frank
Title: Re: Flaming supporters? WTF !
Post by TomM on Jul 23rd, 2003, 7:19am

on 07/22/03 at 16:05:47, FrankF wrote:
I think eleven pages is the flame-war record.

It's good to have goals, Frank. Congrats on your achievement. LOL  ;D
Tom


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