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        New Message Board Archives >> Jul-Sep 2003 >> HELLO FROM SPAIN
        
(Message started by: Carmencita on Jul 17^th, 2003, 10:23am)

Title: HELLO FROM SPAIN
Post by Carmencita on Jul 17^th, 2003, 10:23am

Hello to everybody from this hot and warm land that I really love.
I writte from Spain; I am a Ch sufferer form 13 years ago. 4 years ago I came into this site for first time and it was a pleasure and some thing special for me to found people with the same illness. But life is some times hard, and during 2 years I did not have internet line, I change my address and I lose the contact with you. I was member of your great organization for one year. You can found my name (with a very old mail, that is not working now) in "Where we are" from your site. I visit every day to our italian brothers , and I hope I will do the same with you.
We have just founded in Spain our own Organization for CH sufferers, always thinking that we a part of the big OUCH. I will be in Rome next September, and meet some of you there. I wish this moment.
My best regards from this beautiful land

PS.- Zaira, also mine is beautiful!!!! :P ;)

Title: Re: HELLO FROM SPAIN
Post by ZAIRA on Jul 17^th, 2003, 10:35am

;D Ciao bella spagnola.... che bello leggerti anche qui..... Benvenuta ;D!!

Carmen is a very special girl.... and I am so happy to know her in Rome... 8)

Much love my friend.... Za :-* :-* :-*

Title: Re: HELLO FROM SPAIN
Post by Svenn on Jul 17^th, 2003, 10:38am

Hi there friend

Welcome to Clusterville

A BIG hello from the land of the vikings "Norway"

Here you are among the best friends EVER on this globe.

This is my coctail

Verapamil Retard 120mgX5-7/daily during cycle 3 weeks after last hit tapering down with 1 verap every 3/4 days until you are on 1 a day.1 a day for another 2 weeks you can decide to quit the verap or take 1 a day.Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few seconds after that you are almost painfree
Prednisolone in high doze for 10 days 80mg
then over a 3 weeks periode step down like 70-60-50-40-30-20-10-5mg every 3/4 day
This work fine for me

The very best from Svenn

Title: Re: HELLO FROM SPAIN
Post by Carmencita on Jul 17^th, 2003, 10:39am

Thanks Zaira, you are really special and "bella".... and I also will be very, very happy to meet (and know) you at Rome.

Much love also for you, my dear friend, ti voglio benissimo!!!!!

Title: Re: HELLO FROM SPAIN
Post by Bob P on Jul 17^th, 2003, 12:09pm

Tenga cuidado con Riccardo en Roma. ¡Nosotros no le llamamos el bandido que besa para nada!

Title: Re: HELLO FROM SPAIN
Post by Charlie on Jul 17^th, 2003, 4:27pm

Carmencita:

Welcome back to our madhouse and I'm glad you found us. Sorry you still have this horror but it looks like you've found your share of friends. If you haven't read this technique, here it is. It was very helpful to me.

Dr. Wright's Circulatory Technique

This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many.

When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.

This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate.

I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended.

This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.

When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.

I wish you the best of luck - Charlie Strand