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        New Message Board Archives >> Jul-Sep 2003 >> Occipital Nerve Stimulation
        
(Message started by: MarkHW on Jul 11^th, 2003, 5:47pm)

Title: Occipital Nerve Stimulation
Post by MarkHW on Jul 11^th, 2003, 5:47pm

I know there is already a thread about Hypothalmus implants, but I didn't want to post there because the thread is getting really long and there are so many arguments that I didn't want to be in the middle of it...

The point of this post is what I have learned, so far, about Occipital Nerve Stimulation.

I am a chronic CH sufferer.... I have tried every med in the book with no success. I have not tried shrooms for various reasons, but it is on my "to try" list once I run out of some other options.

I read about the occipital nerve stimulation procedure and was intrigued. I searched the internet and found Dr. Dodick's email address. I emailed him and told him of my condition and asked about the procedure.

Dr. Dodick specifically told me that one particular patient was having 5 clusters a day while on many meds. He has now been cluster free for over 18 months.

He told me that he would be willing to see me and consider me for the procedure. I am flying out there next weekend and will go for an evaluation with him and 2 other Drs at the May Clinic, Scottsdale.

After that... I don't know.... Depends on whether I am suitable for the procedure and if I want to go ahead after I hear everything they have to say.

I will have a laptop with me on my trip. My appointments are on Tuesday, July 22nd. I don't fly home until Wednesday, so I will try to get on and post Tuesday night to let you know what happens.

Wish me luck!
Mark

Title: Re: Occipital Nerve Stimulation
Post by jonny on Jul 11^th, 2003, 5:54pm

Major FUCKING LUCK!!!

Did you expect less from me? ;D

Good luck Bro, hope like all hell it works for you.

......................................jonny

Title: Re: Occipital Nerve Stimulation
Post by MOBster on Jul 12^th, 2003, 2:23am

Good Luck Mark :)

I hope it works for you and you get PF !

Best Wishes,

Michael 8)

Title: Re: Occipital Nerve Stimulation
Post by Jayne on Jul 12^th, 2003, 2:21pm

Oh My Gosh Mark]
Good luck and keep us informed with lot's of detail please.

Love JAyne

Title: Re: Occipital Nerve Stimulation
Post by oringkid on Jul 12^th, 2003, 5:23pm

Good Luck Mark!! You will be only about 2 to 3 hundred miles from me! LOL... if you end up in Laughlin on any part of your trip, call me!

Sherry

Title: Re: Occipital Nerve Stimulation
Post by MarkHW on Jul 13^th, 2003, 8:29am

Thanks all!

And yes Johnny... I would have been disappointed with anything less...

I'll post as soon as I know more.

Mark