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Title: Card-carrying clusterhead Post by Linda_Howell on Jul 10th, 2003, 4:49pm One of the things we all dread is getting hit in public, and lately I seem to have had my share of that. No place to run or hide, and people staring at me or asking 20 questions. A friend sent me this after hearing about another rough week-end, and I have printed it out in a smaller format, and intend to have it laminated and keep it in my wallet for just those times. Tell me what you think. My name is--------- I suffer from a little known illness called cluster headaches that causes extreme pain. It is not life threatening, althought it may appear so. I am not on drugs or alcohol. I may need assistance in getting to my medicationor administering it. I will be O.K. in 1 to 2 hours. Please do not ask me questions or request I do anything until the pain has passed, as I cannot give you my full attention. The best assistance, is to do as I request, or leave me alone. Thank you for your understanding. Emergency contact-------------- Doctor------------------phone number------------ Medication I am taking------------------ LindaH |
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Title: Re: Card-carrying clusterhead Post by klp on Jul 10th, 2003, 4:53pm sorry your having a rough time of it linda. The card is a good idea. lets just hope you dont get much use of it. krista |
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Title: Re: Card-carrying clusterhead Post by FrankF on Jul 10th, 2003, 4:55pm I wish I had something like that the time my boss entered my office and found me screaming and thrashing around. :o |
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Title: Re: Card-carrying clusterhead Post by Roxy on Jul 10th, 2003, 5:13pm Linda, I'm sorry you are getting hit hard right now, especially in public. To me, there is something humiliating about people watching me....when there is no place to hide. The card sounds like a really good idea. Your friend sounds like a real good one to send you something like that. The written equivalent of a medical ID bracelet. Plus, it's another great way to spread the word about ch's.....seems that sometimes, the written word works better than trying to explain things verbally. |
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Title: Re: Card-carrying clusterhead Post by jonny on Jul 10th, 2003, 5:15pm I hope your wearing a sandwhich board with all that info, babe ;D ................................jonny |
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Title: Re: Card-carrying clusterhead Post by kim on Jul 10th, 2003, 6:30pm Linda, hope it gets betta soon. Card carrier.......dunno. Mebbee could try - i cling to my old rituals and prefer to escape being spied. Can't help it. Old habits die hard.... Laugh when it hurts - and then --- RUN AWAY :) PFDAN**** |
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Title: Re: Card-carrying clusterhead Post by jonny on Jul 10th, 2003, 6:34pm Can anyone point to the sentence where Linda is saying she is in pain in her post? ...........................jonny |
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Title: Re: Card-carrying clusterhead Post by kim on Jul 10th, 2003, 6:41pm Pointing is impolite. Could draw a picture ;D |
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Title: Re: Card-carrying clusterhead Post by taraann on Jul 10th, 2003, 7:16pm Linda I hope it gets better for you soon! Sounds like you have a very understanding friend to give you a suggestion like that. |
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Title: Re: Card-carrying clusterhead Post by Donna on Jul 10th, 2003, 7:23pm Sorry Linda........You're in my thoughts and prayers. Love ya Donna |
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Title: Re: Card-carrying clusterhead Post by jonny on Jul 10th, 2003, 7:43pm DUHHH!!! Unreal......................................jonny |
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Title: Re: Card-carrying clusterhead Post by kim on Jul 10th, 2003, 7:50pm Duh is a good word. As is "the bomb".........i shall forevor embrace the duh that resides within me. It's good. Really. Those that use the word "duh" in a way that implies stupidity or lack of comprehension, i feel sure need comprehensive assistance. :) PFDAN :)............dont give up.............DUH ;D |
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Title: Re: Card-carrying clusterhead Post by 2late on Jul 10th, 2003, 8:12pm sorry your gettin' hit so hard! get the fuck outta my face usually works for me, but the card is a good idea for some. ................Jack |
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Title: Re: Card-carrying clusterhead Post by don on Jul 10th, 2003, 8:45pm I like Jacks method. I'm having card made up. My name is don I am in pain. I may kill you. Get the fuck outta my face. |
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Title: Re: Card-carrying clusterhead Post by 2late on Jul 10th, 2003, 8:51pm LMAO.........don .............Jack |
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Title: Re: Card-carrying clusterhead Post by OneEyeBlind on Jul 10th, 2003, 9:12pm Linda, sorry to hear you are getting whacked in public !!!!!! That's a good friend ya got !!!!!!! I like the idea of a card. I am truly greateful that I have never been hit full force in public. The pain is bad enough without having people watch !! |
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Title: Re: Card-carrying clusterhead Post by JDH on Jul 10th, 2003, 10:43pm on 07/10/03 at 19:43:43, jonny wrote:
LMAO!!! I hear you jonny. Linda, that's a good idea. I'd like to have a laminated one for most people and one of Jack's on the other side for idiots who insist on helping or play it down as "just a headache" Jim |
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Title: Re: Card-carrying clusterhead Post by paul_b on Jul 11th, 2003, 12:06am My card would say: LOOK AT MY EYES THAT'S PAIN YOU SEE NOW LEAVE MY ALONE I WILL BE FINE IN AN HOUR >:( |
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Title: Re: Card-carrying clusterhead Post by TerryS on Jul 11th, 2003, 2:24am Hey buddy sorry your having a cycle now. Like your idea about having a card to explain your situation, But I think Don's kind-a-says it all. Love ya and you are in my thoughts and prayers. Can't wait to see you again at the convention. TerryS |
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Title: Re: Card-carrying clusterhead Post by Charlie on Jul 11th, 2003, 3:59am I remember the card idea. The reason it's good is that it's a way to let ER types know you're not insane, a junkie or worse. Epileptics carrry them because if you're found having an attack and can't answer, it lets others know what's going on when the medics get there. So many of us, after a seizure cannot talk for a time and a card can make this so much easier. MDs, addresses and most importantly, a list of drugs and doses should be there. Family and friend's numbers are good too. Charlie |
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Title: Re: Card-carrying clusterhead Post by jmorgan52 on Jul 11th, 2003, 4:15am What about a card that says: My brain hurts. Fuck off and leave me alone. John |
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Title: Re: Card-carrying clusterhead Post by CLR on Jul 11th, 2003, 7:55am Yep, I like that idea Linda. That was nice of your friend. Heres wishing you no hits when your out having fun, keep smilin. Cindra that drives a gm product, lol |
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Title: Re: Card-carrying clusterhead Post by don on Jul 11th, 2003, 8:28am To the ER Staff I belong to a large CH family. We have your home address. Currently your home is surrounded by a gang of CHers. Treat me properly and with dignity or each of the CHers now gathered at your home will trigger CH attacks on your front lawn. Please bring in small children and pets as this will not be pretty. No one will be harmed but your neighbors will be pissed and your lawn ornaments endangered of being booted into orbit. Oxygen and imitrex please. |
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Title: Re: Card-carrying clusterhead Post by Leesa on Jul 11th, 2003, 8:54am Linda, honey Im so very sorry your having such a rough time right now and being hit so hard. I have you in my thoughts and prayers sis......I hope you dont mind but I printed this off for Dave so he can carry this with him at ALL times! This is an AWESOME idea!!!! With lots love, Leesa |
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Title: Re: Card-carrying clusterhead Post by Linda_Howell on Jul 11th, 2003, 9:31am Thanks everyone, but let me explain something. I don't have a cycle, I'm chronic, so it's inevitable that I am going to get hit in public at times, especially in the summer when I'm out and going places. While I totally agree that my very first thought is the same as most of yours....."leave me the fuck alone and get out of my face and stop asking me questions".....that's probably not the smarest thing I could do when confronted with a Highway Patrol guy standing in back of me in line for coffee last week. Tears were streaming down my face, head down, swaying back and forth a little, praying that the girl making my espresso would hurry the fuck up.......and this cop is giving me the LOOK.......The one that says, "I wonder if I should give her a breath-alizer"" So situations like that is what prompted this card thing. Also, it seems to me that if I were ever to go to the ER, it could be helpful there also, especially if it was signed by my DR. Love you all. Linda |
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Title: Re: Card-carrying clusterhead Post by justagirl on Jul 11th, 2003, 10:00am That card would have came in handy when one afternoon I was in a shopping center parking lot banging my head against the steering wheel. The police tried to arrest me for Public Intoxication. :o |
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Title: Re: Card-carrying clusterhead Post by BruceD on Jul 11th, 2003, 12:53pm Dang, that's a good idea! If my wife & kids weren't with me I could have used a card like that a couple of days ago. We were on the shuttle bus on the way to the airport when I got hit 30 seconds after the bus doors closed. Luckily there weren't too many people on the bus with us and I just leaned forward in my seat and tried to hide out. 25 minutes later we arrived at the airport and I stumbled off the bus and slumped down in an airport chair. I can only imagine what I would have looked like if I had been traveling alone and airport security had gotten a good look at me. I'd probably still be in lockup somewhere. Later BruceD |
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Title: Re: Card-carrying clusterhead Post by MarkHW on Jul 11th, 2003, 5:32pm That is a wonderful idea... I'm flying to Arizona next weekend and am a little concerned about what to do when I'm on the plane if I get a CH... The card would be a lot easier to show a Flight Attendant then having to explain and shoot up without them understanding. Besides telling her to "fuck off" would probably get me arrested by an air marshall or something. "This is not a hijack attempt.... I am not threatening the flight crew with my syringe".... Mark |
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Title: Re: Card-carrying clusterhead Post by oringkid on Jul 11th, 2003, 7:49pm Good idea....but.... I can see me trying to find/get out that card now while being hit.... If I'm at a pain level that I can't talk, I will have a bit of trouble getting (or even deciding to attempt to get) a card out that explains it.... Maybe have it tattooed on my forehead? LOL J/k. Or, seriously, put it on a chain attached to my purse, or around my neck... easy access. Sherry |
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Title: Re: Card-carrying clusterhead Post by KingOfPain on Jul 11th, 2003, 8:14pm Thought we should all carry this one (card) too. http://tinyurl.com/gpdk ** If you are having a hard time reading it, it says: Your Story Has Touched My Heart! Never Before Have I Come Across A Person With More Trouble Than You. Please Accept This Card As A Token Of My Deepest Sympathy. Now Fuck Off And Annoy Someone Else To hand out to those folks that get in our face & say: "I've had a "headache" too." "I know all about them." "Want some asprin?" KingOfPain http://www.frinkian.com/images/smiles/new_usa.gif |
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Title: Re: Card-carrying clusterhead Post by nancyc on Jul 11th, 2003, 11:50pm Good idea, sis...i have often thought of having some type of bracelet made like diabetics wear...i think one of the hardest things about chs for me is getting hit in front of people..it is humiliating to have people see you in that much pain and not understand..i think the lack of understanding is what is so embarrassing though...love you sis, know you are in my prayers...smiles,nancyc |
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Title: Re: Card-carrying clusterhead Post by Dpactech on Jul 12th, 2003, 6:07pm Hello. After reading through this thread, I would like to suggest that it woulld be a good idea (exscpecialy for the chronic suffers) to look into getting a Medic Alert braclet. This comes with a wallet card with critical info on it and the bracelete will be there for the paramedics to see if neccasary. I have one of these for something else which is why I am suggesting it. I have had attacks while at work and it is no fun explaining to everyone who passes by what is going on. |
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Title: Re: Card-carrying clusterhead Post by kellya408 on Jul 13th, 2003, 12:05am Linda: Thanks for posting what your friend has sent. I've had cycles in the past, and I'm terrified its becoming chronic (my doc and the info she gave me indicated it could happen). There's been many times I've had to pull over on the side of the road or a parking lot while driving and I am amazed that no one has ever called the cops or that one hasn't seen me. The card would be great to keep in my glovebox and purse. I tried to keep it from everyone at work - but I finally told those that had to know (management) and co-workers I interact with frequently. And as the case in offices it got out to EVERYONE. But the card will definitely come in handy when I'm out and about. Thank you. |
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Title: Re: Card-carrying clusterhead Post by brain_cramps on Jul 13th, 2003, 4:30am on 07/10/03 at 18:34:43, jonny wrote:
on 07/10/03 at 16:49:22, Linda_Howell wrote:
on 07/10/03 at 19:43:43, jonny wrote:
jonny: your grasp of the obvious is UNDERWHELMING!!!!!!!!!! un·der·whelm ( P ) Pronunciation Key (ndr-hwlm, -wlm) tr.v. un·der·whelmed, un·der·whelm·ing, un·der·whelms To fail to excite, stimulate, or impress: ""He is just as entitled to be underwhelmed by the prospect of reigning over a fourth-class nation as the rest of us are by the prospect of living in it"" (Peter Jay). |
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Title: Re: Card-carrying clusterhead Post by cathy on Jul 13th, 2003, 6:02am Linda...great idea!!! ;D Grant >:( :-X Cathy |
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Title: Re: Card-carrying clusterhead Post by jonny on Jul 13th, 2003, 6:40am Grant, Do you need a flash light to see with your head stuck so far up your ass? Its amazing how you come out of no where to attack me, me!!, your king. You shall be beheaded in the morning and your penis will be given to the goats, opps, make that chickens.....only a chicken would consume that little. Now bow to your King, first take your head out of your ass I dont need OSHA coming down on me. ..........................jonny http://uselessgraphics.com/violin.gifCan ya hear it? |
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Title: Re: Card-carrying clusterhead Post by brain_cramps on Jul 13th, 2003, 9:16am Linda: I've missed talking to you. Jonny: I HAVEN'T missed you at all. ;D I see that your spelling has improved a little in the last week. (I'll send you the Grade 3 spelling book next week. ;)) grant (who has NO king) 8) P.S. Who's playing who? http://uselessgraphics.com/violin.gif |
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Title: Re: Card-carrying clusterhead Post by cootie on Jul 13th, 2003, 10:03am OK boys....that'll be one time out.....go to your rooms.......ha-ha-ha.........jus jokein as usual....cuz me loves ya's ! Good idea Linda with the card deal esp for people that git hit so hard so fast. Harder faster Pam ;D |
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Title: Re: Card-carrying clusterhead Post by jonny on Jul 13th, 2003, 12:20pm Maybe you can explain why half of your posts are posts attacking me, Grant?, are you gay for me Grant and just dont want to show it? god knows your not man enough to email me directly. I always had respect for a man who stood in my face and told me what the problem was, you, your nothing but a pansy....LMMFAO!!!!! Pansy==No balls...buck buck buck....what a chicken shit...wont even email me....you chicken shit piece of....oppps ;D ......................YOUR KING http://uselessgraphics.com/violin.gif |
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Title: Re: Card-carrying clusterhead Post by forgetfulnot on Jul 13th, 2003, 12:43pm Quote:
The note from the Doctor deal works, takes the ER out of the diagnoses part and they can treat quickly, but it has to look official and fit in your wallet. I carried one for years until TREX came out. Don't go to the ER no mo Lee. |
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Title: Re: Card-carrying clusterhead Post by juvy on Jul 14th, 2003, 6:35am on 07/11/03 at 20:14:37, KingOfPain wrote:
The correct response to this is not to give them a card but to sever one of their limbs and say" Oh, you've cut yourself? want a bandaid?" ~a very evil Juvy |
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Title: Re: Card-carrying clusterhead Post by joke ten dam on Jul 14th, 2003, 7:16am :D ;)very good idea Linda. Many thanks to your friend. regards Joke |
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