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        New Message Board Archives >> Jul-Sep 2003 >> Rebounds from Prednisone
        
(Message started by: Live4Fun on Jul 2^nd, 2003, 1:31pm)

Title: Rebounds from Prednisone
Post by Live4Fun on Jul 2^nd, 2003, 1:31pm

Hey everyone! :) I am SURE this one has been discussed before, but as I am a lazy SOB, I will ask again. (Oh and I couldn't find anything in the search either :D )

Has anyone experienced major rebounds a day or two after stopping a Prednisone taper down routine?

Last Thursday was my last day on a taper down Pred routine (which kept the beast away for 8 days )... Friday was great too... and then Saturday I got hit about every two hours with KIP 8s and 9s. Since then, nothing.

I believe the Pred and increase in Verap may have clipped my cycle (wasn't due to end until late August). Here's hoping. But just wanted to know if anybody else experienced a rebound "day" like that or if I was just having a bad attack day.

Thanks all!! :D

Bryan

Title: Re: Rebounds from Prednisone
Post by Mark C on Jul 2^nd, 2003, 1:34pm

Not rebounds....the beast returns!

>:(

Title: Re: Rebounds from Prednisone
Post by Ueli on Jul 2^nd, 2003, 2:25pm

Quote:

(Oh and I couldn't find anything in the search either :D)

See my post: How To Stop The Frustrations About The Lack Of Results From The Search Engine, And How To Become An Expert In Its Use..... (click on the link below)

HTSTFATLORFTSE, AHTBAEIIU (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=general;action=display;num=1051750949)

PFNADs
Ueli

Title: Re: Rebounds from Prednisone
Post by klp on Jul 2^nd, 2003, 2:28pm

oh, mark. please dont say that. Im on cloud nine. this is my first time in 12 years using preventative meds (prednisone, verapamil, and melatonin) and i am now 4 days pain free. not even a shadow. I though this was suppose to break the cycle? Does the beast come back for everyone after the prednisone stops or do i still have hope?

Title: Re: Rebounds from Prednisone
Post by Live4Fun on Jul 2^nd, 2003, 2:35pm

Ueli,

Oops... yeah, I didn't use the 4th section (the old time search)... ah well... Now you all will have to answer the questions again! Muhahahahaha.... ;D ;D

Besides, since the last discussion (and this goes for all the discussions that have been repeated) there have been new members to the site who have a wealth of information never shared before. So nyah :P

Seriously though, thanks Ueli. I didn't know the 4th section had to be filled in. Off to search old posts now...

Bryan

Title: Re: Rebounds from Prednisone
Post by stuey on Jul 2^nd, 2003, 2:58pm

This is my thought on Prednisone. Three years ago when I was first diagnosed the doc started me on prednison taper (60 mg) then on down. It absolutely broke the cycle. This year I tried it again myself (my dog takes it every day so there was some in the house) at 60 and it stopped for maybe two days and then back it came just as bad as before. I then after some thought took it up to 90 and tapered from there. One day perhaps of relief but no more. I was absolutely devastated. So I can't say why it works sometimes and why not sometimes. But if you can get even one day i guess it's worth it. but many tend to get giddy on prednisone and you gotta take it early in the morning cause it can make it hard to sleep nights and it messed up my stomach as bad as heavy drinking does. i don't know if this has helped at all but that's what i have to tell about prednisone. a couple days relief then it broke through and came back with that vengeance. would i try it again? definitely cause ya never know. stuey

Title: Re: Rebounds from Prednisone
Post by don on Jul 2^nd, 2003, 4:29pm

Thats not a rebound, thats just returning to the cycle.

Typical when you reach the low doses. The only way I have prevented that is to get on high doses of a preventatiuve while, or preferably before, I begin to taper down.

Title: Re: Rebounds from Prednisone
Post by minnie on Jul 2^nd, 2003, 4:41pm

Bryan,
AS I UNDERSTAND IT-Prednisone is not realy meant/
able to "Break" a cycle,but is to be used as a temporary
relief when a cycle starts to allow the verapamil or other
preventitive to kick in.
I THINK the only things reported to be able to break
a cycle are hallucinagenics(sp?).What dose of Vera are
you taking?It is not effective for me until I reach 960mlg.
at 720mlg I still get shadows and sometimes a
breakthrough,witch I use O2 for.
Wishing you and all PFDAN,
BillyJ

Damn just realized I was signed in under my wifes name
Oh well I'm too lazy too retype this!

Title: Re: Rebounds from Prednisone
Post by eyes_afire on Jul 2^nd, 2003, 6:36pm

Sorry KLP, only in extremely rare cases does prednisone actually break a cycle. Billy is right on. Make sure you have a plan for when you have to stop the prednisone.

---Steve, one of many...

Title: Re: Rebounds from Prednisone
Post by BlackDog on Jul 2^nd, 2003, 7:28pm

Bryan,
I finnished my first ever prednisone-taper last Tuesday. Within two or three days the CH was back, although I have not had a k-9 or k-10 this week. It never really 'went away' completely on the prednisone, it just got a lot better. I have not been prescribed a classic preventative yet, my nuero is still playing around with my blood-pressure, heart and other meds. My only hope at this point is that according to my logs from last year, my cycle ended the first week in August ::).
I wish you good luck and PFDAN.
Darren

Title: Re: Rebounds from Prednisone
Post by Live4Fun on Jul 2^nd, 2003, 9:01pm

At the same time that I started on Pred I also went up from 120 to 240 on verap. Unfortunately this is all the higher verap I can take due to other conditions. Already on the 240 I feel my chest tightening so I am not sure how long I can stay on it.

I don't know guys, I think it might have worked, or at least the higher verap has worked, or I had a really short cycle (god willing) cause I have been pf since saturday and i am just taking Verap and Elavil. Crossing my fingers.

Thanks for all the feedback though. I appreciate it :)
Bryan

Title: Re: Rebounds from Prednisone
Post by gene on Jul 4^th, 2003, 2:24am

Pre. stopped my cycle!

I am episodic/typically every yr about now for 4 to 6 wks.

My first rx for pred. taper. 60 MG for 7 days then 10 less each day.

Worked!!

Gene

Title: Re: Rebounds from Prednisone
Post by iJun G4 on Jul 4^th, 2003, 2:45am

This is just my experience and observation about Prednisone.

Prednisone does offer me temporary relief.
But, more than with any other drug, Prednisone seems to make the beast bigger and stronger each time the effectiveness wears off. This is based on 18 years of episodic CH with and w/o Prednisone.

Certainly in my current cycle, the pain got worse *after* Prednisone than before, just a little bit, like an added "definition" or "edge" to the pain.

I'm beginning to feel that it's almost like a pact with the devil. Short term relief, long-term pain.

In the future, I think I'm going to avoid it altogether...