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        Gatherings, Fundraisers and Fun >> Meetings and Gatherings >> Cincinnati, Ohio,any, takers
        
(Message started by: zuesthedog on Mar 12^th, 2006, 10:42am)

Title: Cincinnati, Ohio,any, takers
Post by zuesthedog on Mar 12^th, 2006, 10:42am

Be willing to flip for dinner. Never met a CH face to face. Would love to meet and share Trigenial nerve stim. implant story., or just some basic support.

Title: Re: Cincinnati, Ohio,any, takers
Post by SIDMOORE on Mar 13^th, 2006, 12:02am

Hi I think my husband and I may be interested. What about a trip to Cedar Point?

Susan

Title: Re: Cincinnati, Ohio,any, takers
Post by zuesthedog on Mar 14^th, 2006, 5:44pm

Hi Susan, that could work. My son has been on me for years to take him up ther to cedar point amussment park. I used up most of my vacation time getting surgery,but still have a few days. Fill me in on some details, perferably once it gets a little warmer :) John

Title: Re: Cincinnati, Ohio,any, takers
Post by dmurp on Aug 14^th, 2006, 2:49pm

Hey all live in cincy area. What type of clusters do you suffer? How long? Any words of wisdom? Had these things for 9years.

Title: Re: Cincinnati, Ohio,any, takers
Post by zuesthedog on Aug 19^th, 2006, 9:36pm

Hey how cool to find someone here to share nightmare stories with. My clusters had been chronic left sided for about 12 years .Before that they where epsodic from the time I was 13, I,m 42 now. I had tried every med and therapy known , but nothing worked. Finally I had a trigenimal nerve implant in Feb 06. Been prety much PF since> Best thing I ever done. Would love to compare notes or just chat. Please get back to me it would be realy neat to meet someone else who fights the beast. BEST WISHES AND PF NIGHTS. JHN :) ;) :D ;;D [smiley=laugh.gif]