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Title: NYC ClusterHeads Post by t_h_b on Feb 10th, 2004, 6:46pm Anyone interested in getting together just to meet other people with clusters? There should be about 8,000 ClusterHeads in NYC at the rate of 1 per 1000, plus others in the metropolitan area. Surely there are three or four others who would like to meet another ClusterHead. Please post here or private message me. Thomas |
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Title: Re: NYC ClusterHeads Post by EL on Feb 29th, 2004, 8:43pm hey ya thomas, has anyone in nyc contacted you about this? I was interseted if some clusterheads was meet up once in a blue... i think its a great idea and since nyc has so many people im sure we are not the only ones.. For anyone else out there in NYC lets see some support.. ;;D |
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Title: Re: NYC ClusterHeads Post by TxBasslady on Mar 1st, 2004, 2:32am I'm not in NY.....but just wanted to say.....keep this thread going !!!!!! You will NEVER experience anything better than meeting a brother or sister CH sufferer or supporter. This board brings people together from all over the world. Friendships that will last a lifetime are right here. Good luck to you THB......keep up the good work, sweetie. This is a great start for the thrill of a lifetime! Best wishes to you..... PF vibes, Jean |
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Title: Re: NYC ClusterHeads Post by Peppermint on Mar 1st, 2004, 4:07pm ***'scuse me, oops, pardon me, ow, sorry*** HI. ;;D Just wanted to lend you a little help with some names of people in NYC who might want to get in on this: suzy617 kim justin cbolony Hmmm... I know there are more.. just have a bad memory, or I don't know 'em well. So, this is a little push. You all know this is a good thing. C'mon and get busy. Pep |
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Title: Re: NYC ClusterHeads Post by EL on Mar 1st, 2004, 5:40pm Thanx Peppermint..I would hope some of us can get together sometime. Im pretty new to this and Im sure there are some veterans that can help a newbie like myself and others out there. SO TO ALL THE NYC CLUSTERSHEADS "LETS JOIN FORCES AND WHIP THE BEASTS ASS!" [smiley=bigguns.gif] |
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Title: Re: NYC ClusterHeads Post by t_h_b on Mar 2nd, 2004, 11:15pm EL, this site is the only place I have ever encountered another ClusterHead. It was such a sense of relief--a very emotional moment--when I first found it. I wanted to go to the convention this year and last year but couldn't work it out. We should definitely get a group together and if we can't come up with any other ClusterHeads we could start with just the two of us. If there's no one else here out of the potential 8,000, maybe when the NJ/PA group meets we could hop a train. Also, if we do start a group for occasional get togethers I will see if my neuro would let some other ClusterHeads know about it. Don't think I've run into any of the posters Pep mentioned but I'll be on the lookout. And thanks for your encouragement, Jean. It really would mean a lot to me just to meet someone else in person who understands this. (No one but a ClusterHead could even understand that only a ClusterHead could understand.) EL, let's keep this going as Jean suggested and we should eventually pick up a couple of other locals. |
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Title: Re: NYC ClusterHeads Post by TxBasslady on Mar 2nd, 2004, 11:41pm t_h_b If you and El don't get any hits on your post....you 2 get together by all means. Get with Randy (Mr. Happy) or Ozzman....they head up the pa-nj chapter. They would be more than happy to have you guys meet up with them. Keep up the good work!!! :-* PF vibes, Jean |
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Title: Re: NYC ClusterHeads Post by EL on Mar 3rd, 2004, 10:44am Hey THB , sounds great.. I hope this post being on the t op of the list will have some other nyc lurkers to come forward and get together with others. I wouldnt mind taking a bus down to the nj group if the day is right. Also I wanted to ask you for a recommendation of a good neuro that deals with clusters in the nyc area. Any help would do.. |
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Title: Re: NYC ClusterHeads Post by t_h_b on Mar 3rd, 2004, 6:57pm Jean, ideally we should eventually be able to form a NYC or NY OUCH chapter. I'm thinking ten or twelve people would be sufficient. EL, I PM'd you about the neuro. |
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Title: Re: NYC ClusterHeads Post by Peppermint on Mar 3rd, 2004, 11:06pm Hey people. Ok, I can get in touch with Kim and Suzy for sure. I'll give them the 411 and point them in your direction. So far, Suzy and I made the trip out to PA-NJ. Since NY is still small on participation (maybe now not for long :) ), you guys might just gather together for the next trip out to meet with the PA-NJ'ers. Atlantic City was interesting. ;;D Suzy and I drove over last time. If that happens again, you might not have to only hop the local MTA for the trip out, depending where you are in the city. Randy and Ozz are the ones to contact as Jean said. They can add you to the email listing and notify when the next meeting comes up. At the very least, you'll get some info on starting a chapter, at best, you'll meet other Ch'ers and well, get something happening here. Looks good all 'round. Pep ;) |
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Title: Re: NYC ClusterHeads Post by EL on Mar 5th, 2004, 11:26am Hey all again. Wanted to see if I can get a head count of all the nyers out there.. Maybe even a brief "get to know you".. Want to know more about my neighbors and what they are going threw.(whos in cycle, whos not,etc) |
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Title: Re: NYC ClusterHeads Post by t_h_b on Mar 5th, 2004, 6:54pm EL, I'm chronic, so I'm ALWAYS in cycle, always always always, but I've got them under control, at least for the time being. CH is sneaky so you can only be sure of the past and present and I never try to predict the future with CH. |
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Title: Re: NYC ClusterHeads Post by suzy617 on Mar 6th, 2004, 1:00pm Ok I'm a New Yorker. Staten Island. I'd be interested in a get together for sure. Also like Pep said, you might want to hop a ride for the next NJ/PA meeting. Yes Pep, AC was fun too. ;;D Suzy |
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Title: Re: NYC ClusterHeads Post by t_h_b on Mar 7th, 2004, 10:07am Suzy, that makes three of us--that would constitute a gathering. |
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Title: Re: NYC ClusterHeads Post by justin on Mar 7th, 2004, 1:26pm hey all, i'm down to meet up anytime anywhere. as some of you may know i am working on a documentary about people with clusterheadaches. i will be posting today in the general section more about the documentary. but i would love to meet some of you and talk about your experiences. if anyone is willing to talk on camera after that we could arrange something. but mostly it would be great to talk face to face. if you'd like me to arrange a meeting i could do that. email me at justin.ott@verizon.net. i'll put a message together with a compilation of everyones email and we can start suggesting times and places. be well and pain free all! j |
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Title: Re: NYC ClusterHeads Post by EL on Mar 8th, 2004, 1:08pm Hey There Justin, Sounds like a great idea.. Its good to have someone trying to educate the world on our lovely affiction.. You can count me in to any meeting and Im sure the people above wouoldnt mind either. Im still trying to get a consensus of all the NYC heads on the site. Thats the reason for the thread.I hope all of us will come out of the shadows. ;;D |
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Title: Re: NYC ClusterHeads Post by t_h_b on Mar 8th, 2004, 6:58pm on 03/08/04 at 13:08:50, EL wrote:
Ditto. |
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Title: Re: NYC ClusterHeads Post by suzy617 on Mar 10th, 2004, 7:13am Just a thought but you might want to start a thread about this on the general discussion board. I think alot more people will see it over there. C'mon New Yorkers...speak up... ;) Suzy |
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Title: Re: NYC ClusterHeads Post by justin on Mar 10th, 2004, 11:40am ok, i'm moving this disucussion over the general board under the same subject. j |
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Title: Re: NYC ClusterHeads Post by justin on Apr 2nd, 2004, 10:06am hey all nyc clusterheads keep emailing me so i can put a group email together. then we can all agree on a time and place to meet up in NYC. hopefully end of april or beginning of May. Justin jdo201@yahoo.com |
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Title: Re: NYC ClusterHeads Post by bang_my_head on Jun 14th, 2004, 10:19pm Hello it's nice to know im not the only one in n.y. that lives whith ch.I'm in a bad cycle now I hate it "scared of losing my job. gonna try prednisone again still moving Long island ny |
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Title: Re: NYC ClusterHeads Post by E-Double on Jun 26th, 2004, 11:31am Name the time and place! E |
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Title: Re: NYC ClusterHeads Post by dave_in_nj on Jul 13th, 2004, 8:48pm Sounds great...count me in. I work in midtown and live in NJ. I'm in the middle of a realy shitty cluster so bring your O2 tanks... ;) |
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Title: Re: NYC ClusterHeads Post by kimh on Jul 25th, 2004, 9:22am Checkin in from Centerport, Long Island. Sorry took so long to respond to this - was out of town, just getting caught up here. :) Count me in! |
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Title: Re: NYC ClusterHeads Post by Charlie M on Aug 2nd, 2004, 11:58am I'm very intrested in any meeting. I live on long island Merrick to be exact. hope to meet soon |
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Title: Re: NYC ClusterHeads Post by Shiraj on Mar 5th, 2005, 9:58pm omg suzy you live on staten island too! ill meet you sometime if you want. We can have non alcoholic drinks and pretend to be drunk! Actually ill meet anybody who wants to. Im on spring break right now and bored. [smiley=laugh.gif] |
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Title: Re: NYC ClusterHeads Post by cheNY on Jun 14th, 2005, 8:47pm I'm game...... just noticed listing, but work midtown. I'm always around. Please let me know if anything goes down in the future in NYC. ;;D |
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Title: Re: NYC ClusterHeads Post by birdman on Jun 17th, 2005, 12:39pm Just found link. Staten Islander here. Would definetly be intereseted in any get togethers. When is the next NJ/PA meeting? I am episodic and hopefully at the end of one now. Down to one a day and it is usually lite(k4). |
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Title: Re: NYC ClusterHeads Post by fat___pam on Jun 29th, 2005, 8:07pm Im from the Canadian part of ny.. kidding.. WAY upstate but never been to NYC area if someone can tell me where to go it would be cool to meet up.. I'm a suporter, bf has CH for about 20 years, never met anyone else with it. C |
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Title: Re: NYC ClusterHeads Post by E-Double on Dec 9th, 2005, 7:37am OH BOY!!!!! I'm seeing a lot of new NY peeps We NY'ers are so typically apathetic [smiley=huh.gif] ;) ;;Dsooooo....... Let's try again!!!!!!! After the holidays??? |
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Title: Re: NYC ClusterHeads Post by zwibbs/Scott on Dec 27th, 2005, 1:35am Hey "E" ---Let me know when and where all NYC Area Cluster Sufferers will meet.....Since my wife's company dinners in NYC three weekends ago I have been feeling like the cycle is ending---BUT--I am not getting cocky---still will stay off and far away from all the triggers....keep me updated, and I'll help in any way that I can be of assistance. |
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Title: Re: NYC ClusterHeads Post by E-Double on Dec 28th, 2005, 3:31pm Almost New Years...then let's do it! |
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Title: Re: NYC ClusterHeads Post by zwibbs/Scott on Dec 29th, 2005, 12:32am Im there dude |
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Title: Re: NYC ClusterHeads Post by E-Double on Dec 29th, 2005, 1:17am After holiday I will call ya and we'll set up a time and place. Then we'll call the troops! |
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Title: Re: NYC ClusterHeads Post by zwibbs/Scott on Dec 29th, 2005, 9:29am Sounds great--Have a Happy New Year brother |
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Title: Re: NYC ClusterHeads Post by zwibbs/Scott on Jan 5th, 2006, 1:13pm AND............I'M WAITING !!!!!!!!!!!!!!!!!!!!!!!!!!!! |
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Title: Re: NYC ClusterHeads Post by imnotbub on Feb 1st, 2006, 10:37am Hey, did this thread die? Let's go people. |
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Title: Re: NYC ClusterHeads Post by kissmyglass on Feb 1st, 2006, 8:58pm OK, Eric has a new kitchen....Lets all go over there & make sure it works... :) Kev |
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