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        Gatherings, Fundraisers and Fun >> Meetings and Gatherings >> Sin City
        
(Message started by: LasVegas on Oct 3^rd, 2003, 3:45pm)

Title: Sin City
Post by LasVegas on Oct 3^rd, 2003, 3:45pm

If anybody living in or planning a visit to Las Vegas would like to meet in person, let me know.
Gregg in Las Vegas
ghwieser@aol.com

Title: Re: Sin City
Post by LasVegas on Oct 24^th, 2003, 10:36pm

We will be holding our first CH support group meeting in Las Vegas this Tuesday, October 28th at 7pm at the Clark County Public Library located on East Flamingo, between Maryland Pkwy and Spencer.

Spouses and other supporters welcome. Neurologists, nurse practitoners and Emergency Room employees highly encouraged.

If you have not already confirmed your attendance or need more details, email me.
Gregg in Las Vegas

Title: Re: Sin City
Post by vig on Oct 28^th, 2003, 3:35pm

What happens there stays there!

Title: Re: Sin City
Post by LasVegas on Oct 28^th, 2003, 5:53pm

on 10/28/03 at 15:35:35, vig wrote:

What happens there stays there!

Sure Vig, agreed, that is how I am running this meeting. Anybody interested, the Las Vegas 1st meeting is tonight at the Clark County Public Library on East Flamingo at Maryland Pkwy (across from Starbucks and SavOn Drugs) at 7pm. Meet in the main lobby entrance off the back parking lot. About 8 people say they will show. Hope to see you there.
Gregg in Las Vegas

Title: Re: Sin City
Post by LasVegas on Oct 29^th, 2003, 12:40pm

It was so good to meet five other Cluster Sufferers last night at our first "Cluster Sufferer" Las Vegas meeting. We all introduced ourselves, discussed preventative and abortive meds, local doctors, discussion of hypothalymus gland and trigeminal nerve, triggers, potentially forming a local chapter of OUCH, exchanged phone numbers, a demo of the "Imitrex Tip", etc. Met for 2 and a half hours.

All six of us were male, four out of six are smokers, we all are overthinkers, we all are left sided sufferers, ages ranged from 32 to 56, five of us are episodic, one was chronic, we all have health insurance or VA medical assistance, two of the six are Vietnam Veterans, three of us are self employed, one service-related disabled and two are full time employees, two reported deviated septums on the left (Cluster) side-one of these two men had it fixed but did not cure CH's, one had a brain tumor removed-but did not cure CH's, one with history of two closed head injuries. Of the six of us, one has been PF for 4 days, one is chronic with an average of 1 or 2 daily, the other four haven't experienced a CH in 2, 3 and respectively 4 years. Reported initial onset of CH's began at age 11, 16, 24, 30 and mid-20's, mid-30s. Very productive first meeting with all of us understanding that we now have local contacts and are not alone.
Gregg in Las Vegas

Title: Re: Sin City
Post by LasVegas on Nov 30^th, 2003, 9:53pm

Anyone interested in Round Two, sometime early December?

Gregg in Las Vegas

Title: Re: Sin City
Post by Tiannia on Dec 1^st, 2003, 12:40pm

Sounds good, but will need to be a weekend, as during the week right now is a joke with the kids and such.

Tia