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        New Message Board Archives >> Medications, Treatments, Therapies 2005 >> need volunteer
        
(Message started by: jckgales on Nov 17^th, 2005, 8:09pm)

Title: need volunteer
Post by jckgales on Nov 17^th, 2005, 8:09pm

I had floridian check into this juice ive been taking and he said it was possible that it could be whats making my ha's go away but wasnt for sure. He posted some info on xanthones in his web site. I need someone out there to try it and post on how its working for them . I think its whats working for me.
Jackie Gales
jckgales11@charter.net

Title: Re: need volunteer
Post by Kris_in_SJ on Nov 17^th, 2005, 8:21pm

Hot Dog - another Beta Test.

Sorry I can't help - out of cycle now. I'll be anxious to hear about your results, though. Keep us informed.

Kris

Title: Re: need volunteer
Post by BobG on Nov 17^th, 2005, 8:22pm

Is it called noni juice?

Title: Re: need volunteer
Post by floridian on Nov 18^th, 2005, 10:30am

No, it is mangosteen juice. I did some digging and posted some preliminary thoughts at:

http://www.med-owl.com/clusterheadaches/tiki-index.php?page=Xanthones

Title: Re: need volunteer
Post by kcopelin on Nov 18^th, 2005, 1:03pm

I'am in cycle and totally game to try this. Grabbing keys, rushing out door to Health food store. Will e-mail and post results.
PFDAN y'all,
kathy

Title: Re: need volunteer
Post by kcopelin on Nov 18^th, 2005, 4:31pm

That is some expensive stuff!!! One qt bottle was 42.00-so I got the capsules at a more reasonable $17. Nothing yet.
kathy

Title: Re: need volunteer
Post by kayarr on Nov 19^th, 2005, 3:16am

Hi,
The juice is pricey. I did find costco.com to have 32 ounces for 17.98.
Do you think that the pills would do the same thing?

Title: Re: need volunteer
Post by kayarr on Nov 19^th, 2005, 3:18am

Oh, it says take one ounce. Is that the amount you are trying?

Title: Re: need volunteer
Post by jckgales on Nov 19^th, 2005, 10:11am

Its called Xango One bottle will last 2 to 3 wks I take 1 oz in morning 1oz at lunch and 2 to 3 oz in evening. It took about 3 wks to notice, dont know if it was cause i started taking more at night or if it just had to get into my system. I am a distributor to get it cheeper it costs 25.00 a blt plus shipping and there is 4 per case. I am not aware of any pill form. But some family members are telling me it helping their arthritis and my dads blood pressure is down? I did run out last weekend and had 2 ha's. Started back mon. and have had only one? It is expensive but if its working without nasty side effects im staying with it. My hits are about same time every night thats why i started taking more at night.
Jackie
Juicyrewards.com or the mangosteen site floridian posted has lots of info.

Title: Re: need volunteer
Post by jckgales on Nov 19^th, 2005, 10:13am

Also its only suppost to retail for 39.95 not 42.00 not much diff. but every dollar counts

Title: Re: need volunteer
Post by rextangle on Nov 21^st, 2005, 8:27pm

I had a friend who sold that Xango stuff...
He gave me a few bottles (for free), but it didn't do squat for CH. I liked the taste, but I think it's a hype.

But again people, I don't know anything and 99% of the stuff that's "supposed to help" doesn't help me.

$40 a bottle? Gee, I wish I knew that when I got them, I would have sold them on Ebay.

Title: Re: need volunteer
Post by BobG on Nov 21^st, 2005, 9:13pm

Hhmmm. That website link that floridian posted has some interesting things on it. Most interesting is on the left side titled Top Pages and Last Pages. Looks to me like the topics are all copied and pasted from clusterheadaches.com. Even the movie Pi is mentioned. Hhmmmm….

If it sounds to good to be true.............
Can you say pyramid scheme?
Quotes claimed at : (copied and pasted from)
http://www.mangosteen-juice.tv/

Xango Mangosteen is the premier dietary supplement full of Xanthones, an antioxidant more powerful than any vitamin!

Keep your body invigorated, rejuvenated, and energized

Also know as the queen fruit

contains xanthones, an incredibly potent antioxidant with many incredible health benefits ranging from immune system protection to positive mental support.

a heavenly delicious beverage

the new super star of liquid health

the most successful food supplement... EVER

sign-up as a Xango Distributor

Now, my 2 cents: LMAO! Give me a fuckin break. This stuff is just a joke, right?

Now to get real………..
Quotes copied and pasted from the Wise Geek at:
http://www.wisegeek.com/what-is-mangosteen-juice.htm

nutritionists have not tested the countless claims of mangosteen juice bottlers,

many companies profess that this "Queen of Fruit" can cure everything from cancer to dysentery to bacterial infections.

No major studies on humans have proven that drinking mangosteen juice on a
daily basis would offer significant improvement in illness.

mangosteen juice has no significant advantage over a healthy diet of fruits and vegetables rich in antioxidants,

a folk remedy
It’s unlikely that mangosteen juice offers cures, but it does make a sweet and tasty, if expensive, beverage.

Title: Re: need volunteer
Post by floridian on Nov 22^nd, 2005, 2:29pm

on 11/21/05 at 21:13:03, BobG wrote:

LOL ... that is my website! While I admit to learning things from this board, I also do a fair dinkum of research and writing on my own. Not sure why the Pi page has stayed in the top 10 since the start of my site.

I won't argue that many of the people selling mangosteen juice are heavy on the hype - they obviously are. But the plant does contain some unusual compounds with interesting properties. Does it help with CH? Dunno, maybe, maybe not.

Title: Re: need volunteer
Post by jckgales on Nov 22^nd, 2005, 5:30pm

Not trying to make $ off this site, I just tried it cause i heard it was helping alot of people. and I,m about sick of all the crap I take .I spend 50 bucks for 6 zomig tablets 30$ for stadol and a deductible for 02 I'm sick of these friggin headaches and want something healthy. It didnt help me the first 3 weeks but then I just started getting better. I ran out of juice sat. Last night I got hit 3 times in the middle of the night. maybe it wont work for everybody but I its the only thing that Ive done different. I will send 2 blts. to someone who is serious and wants to give it a honest try. I really think its whats helping me.
Jackie

Title: Re: need volunteer
Post by BobG on Nov 22^nd, 2005, 8:03pm

on 11/22/05 at 14:29:22, floridian wrote:

LOL ... that is my website!

I did not realize it was your website. It sure has a lot of wonderful things to say about the queen fruit. So…….I have to ask, floridian, are you also a distributor?

on 11/17/05 at 20:09:34, jckgales wrote:

I had floridian check into this juice ive been taking

Jackie, in your opening post you say ask floridian to check into the juice.

Then you post:

on 11/19/05 at 10:11:59, jckgales wrote:

I am a distributor

So…….I have to ask, if you are a distributor, why did you ask floridian to research the juice? Did you not research it yourself before getting a distributorship? Or, do you not have any faith in your product? Or?

I’m confused. So, for now I’ll remain with my pyramid scheme/scam remark Please convince me otherwise.

Title: Re: need volunteer
Post by Jonny on Nov 22^nd, 2005, 8:11pm

on 11/22/05 at 20:03:49, BobG wrote:

So, for now I’ll remain with my pyramid scheme/scam remark Please convince me otherwise.

WTF?

This COULD be wrong on so many levels, but I will hold my tongue......but not for long ;;D

Title: Re: need volunteer
Post by vig on Nov 22^nd, 2005, 8:25pm

it wreaks of dishonesty...
he starts out and says he's taking the juice...
THEN he brings up that he's a distributor....

I'm with BobG on this one....

jck, dump your distributorship and we'll talk...
otherwise it's shameless profiteering....

Title: Re: need volunteer
Post by Kevin_M on Nov 22^nd, 2005, 9:02pm

Quote:

I need someone out there to try it and post on how its working for them . I think its whats working for me.
Jackie Gales
jckgales11@charter.net

on 11/19/05 at 10:11:59, jckgales wrote:

I am a distributor to get it cheeper it costs 25.00 a blt plus shipping and there is 4 per case. I am not aware of any pill form. But some family members are telling me it helping their arthritis and my dads blood pressure is down?

Juicyrewards.com or the mangosteen site floridian posted has lots of info.

Quote:

Also its only suppost to retail for 39.95 not 42.00 not much diff. but every dollar counts

Quote:

Not trying to make $ off this site,

Quote:

I will send 2 blts. to someone who is serious and wants to give it a honest try

Quote:

It didnt help me the first 3 weeks but then I just started getting better

I like BobG's questions.

The seller wants us to try it and leaves a e-mail addy for responses, then divulges being a distributor, cost, price, and samples, although says it takes three weeks for results. Where were we to buy the amount needed after the samples, hey, he's a distributor!

And in case you have family members with other ailments, good for arthritis and blood pressure too. Another selling point.

Quote:

some family members are telling me it helping their arthritis and my dads blood pressure is down?

Title: Re: need volunteer
Post by kissmyglass on Nov 22^nd, 2005, 9:50pm

on 11/22/05 at 17:30:32, jckgales wrote:

Not trying to make $ off this site, I just tried it cause i heard it was helping alot of people.
Jackie

Who & where are all these "a lot of people""?? Any real clusterhead who had some majic juice to stop clusters would pass it out to us all for free i'm sure. I know I would.
Kev

Title: Re: need volunteer
Post by floridian on Nov 22^nd, 2005, 10:02pm

on 11/22/05 at 20:03:49, BobG wrote:

I did not realize it was your website. It sure has a lot of wonderful things to say about the queen fruit. So…….I have to ask, floridian, are you also a distributor?

Nope. I am not a distributor of Xango or any mangosteen products, have never sold it, have never tried it. I just did some digging into the literature and wrote about it. In theory it might help, but I don't know if the amount present in the typical serving is enough to exert the calcium channel blocking, PKC inhibtion, or other properties that are mentioned in the scientific literature.

I did have a year off from CH in 2000, have written about it before on this board. I started taking St. Johns Wort (another rich source of xanthone pigments, among other things). I took a double dose twice daily, every day from early January 2000 to March 2001 due to an extreme crisis in my family. My usual July-August-September fun was cancelled that year. Was it the St. Johns wort? I don't know. If it was the SJW, was it the xanthones? Again, I don't know. I do know that others have taken SJW with no improvement, although I did start months before my usual cycle and took a heavy dose of the stuff. But one data point doesn't pin down an eel in muddy waters - with the seemingly random fluctuations in CH activity, the fact that I missed a year is not the same thing as firm evidence.

I am determined to find better treatements for CH, and have proposed all kinds of possibilities, from proven things like melatonin and magnesium, to (then) unknown things like kudzu, to 'officially unproven but finally on the scientific radar' treatements like clusterbusters, to still controversial and unproven things like changes in diet. I try to present things accurately, because I know the pain and I know I want people to give me accurate info.

Title: Re: need volunteer
Post by BobG on Nov 22^nd, 2005, 10:10pm

Thank you Floridian, my apologies for dragging your name through this thread.

Title: Re: need volunteer
Post by jon019 on Nov 22^nd, 2005, 10:34pm

Hi Jackie,

Note the high level of skepticism you have seen here? Wonder why? Consider the potions, poultices, pyramids,
and pullshit we have been subjected to.

I have no problem with a man trying to earn a living. If you believe in something, go for it. That said, at $40 a bottle, being a "volunteer" is an expensive proposition for people already spending ridiculous amounts for what science has come up with.

Speaking of science, since this is obviously a miracle cure, and you have an in as a distributor, why don't you convince your manufacturer to sponsor scientific studies of this juice? Anecdotal evidence is worthless. Give us some science. They can afford it. At $40+ a bottle they REALLY can afford it , and since it's so good, the results will bound to be incredible.

There are over 9000 of us here who are just itching to "volunteer". I do note that any scientific study I have ever heard of usually PAYS the subjects, or at least covers expenses. You don't BUY it, you risk your health to TRY it.

Looking forward to your announcement of clinical trials.

Regards

Jon

Title: Re: need volunteer
Post by clarence on Nov 22^nd, 2005, 11:21pm

on 11/22/05 at 22:02:38, floridian wrote:

I am determined to find better treatements for CH, and have proposed all kinds of possibilities, from proven things like melatonin and magnesium, to (then) unknown things like kudzu, to 'officially unproven but finally on the scientific radar' treatements like clusterbusters, to still controversial and unproven things like changes in diet. I try to present things accurately, because I know the pain and I know I want people to give me accurate info.

And I thank you for it my CH burdened friend.

Casey

Title: Re: need volunteer
Post by Mr. Happy on Nov 23^rd, 2005, 12:34am

on 11/22/05 at 22:02:38, floridian wrote:

I am determined to find better treatements for CH, and have proposed all kinds of possibilities

Fuckeneh. And I've got a Neti pot to prove it.
If Ms. Jackie is a shill/mole/plant, then she's been thoughtful enough to join last winter, and not start a Watts Riot until now.. Since I can't get the "Last 16 Posts" utility to work, I have No Idea about her history. Do you'se guys?

jon019 has a good point. Jackie, if you're not a schill, get the head honchos to donate a tub of this stuff for an acid test. They should be more than receptive to the idea, unless you were just lucky, and the new juice is a hoist job. Beta testing, CH.com style.....you go first.

NetiMasx. The next generation.
RJ

Title: Re: need volunteer
Post by Charlie on Nov 23^rd, 2005, 2:21am

As I read this; all I could think of is how it reminded of the shit from that larcenous Kevin Trudeau.........Still, if for some reason someone here thinks it works, I'm not one to give them a hard time.

Just use what's left of our pain-ridden heads.

Charlie http://www.netsync.net/users/charlies/gifs/pills.gif

Title: Re: need volunteer
Post by jckgales on Nov 23^rd, 2005, 7:02am

First, Sorry for dragging you (flordian) into this I thought you were studing to be a Dr. or something in the medical field and thought you could explain some of this to me. (which you did)
I posted about his findings because I thought that all of you would respect his input. My post about sending someone serious about trying this stuff was for free. I will send 2 blts. to someone to try and post. I dont give a crap where you by it. I have a real job. like i said i became a distributor to afford the stuff. Also think that it would be a good thing to put to the higher ups at Xango to offer it to test for ch suffers. I will let you know on that. Mr. Happy my history is - Going into my 3r yr chronic with 1 to 3 hits per day have been on indocin,imitrex,zomig,stadol,O2 and have been to the chriopractor. I think i found this site just in the spring and have seen posts from people trying to make a buck ,like the sinus buster, so i wasnt sure to post . all I want is to see if this will help.
Jackie