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        New Message Board Archives >> Medications, Treatments, Therapies 2005 >> One Story of Many
        
(Message started by: Tom54 on Aug 10^th, 2005, 2:06am)

Title: One Story of Many
Post by Tom54 on Aug 10^th, 2005, 2:06am

History: Chronic for 5 years, previous episodic for decades. From Chicago area. Now live in southern california.
Diagnosis by Latest Nuerologist: Rebound Headaches

To say the least I was floored!
The story is, I wait for this special appointment over several months, as recommended by my primary care guru, because some left side & lower back parts aren't workin right. I figure its from my DVT/PE I survived 2 years back. "Nope" he says, but you should see Dr. so n so... My primary care guy is great! He understands the CH well...The Nuero person didn't!!!
She walks into the room and I limpididly move to a chair...cuz my body just doesn't respond as fast as it used to, along with a few critical joints. Her attitude is one of an unexpected, interrogation barrage with a twist of "I write nuerology periodicals, I'm a headache expert but never had one in my life" type attitude; as if, I'm an instant drug abuser and non-conformist.
I was clueless as to why the apparent "animosity" and general lack of care. She asks how many headaches do I get a day. I respond with 2-3, depending on circumstances. Without any expalantion or question of what these circumstances are...let alone why I was there to begin with, she unloads with a statement:
You're using way too much Imitrex, How did you get this? You know that Cluster means its periodic in months and very few people have 2-3/day! You are having rebound headaches...
Within a few seconds of her last "s", I state: We're done! Thank you...and left the building.
(Of course patient advocacy will certainly hear from me)

At any rate, has any one else experienced this phenomenon? I guess cluster isn't in her vocabulary???

So, back to my guru primary care guy...I'll give him an ear full as well.
My Point (I guess): 2 hour trip. Parking Fee. Arrive 1 hour early. See Neuorologist for 4 minutes. Invoice my insurance company. Prescription expires soon. Find another. Pay more money for more appointments just to get some relief !!!!!!!!
I'm about done with the whole mess
Tom

Title: Re: One Story of Many
Post by giffy76 on Aug 10^th, 2005, 5:35am

This happens every time I change neuros. I was diagnosed by my family doc. 12 years ago but every fricken neuro I go to thinks the last one mis-diagnosed me and we start at the beginning. It's complete B.S. and I think doctors suck!

Title: Re: One Story of Many
Post by E-Double on Aug 10^th, 2005, 6:52am

Rebeound headaches are actually called.......

Analgesic Rebound Headache.

Imitrex is not an analgesic!!!!!

I am going through rebound at the moment from withdrawing indomethacin from my system after a full yr.

It sucks to say the least in fact it HURTS but it certainly isn't CH!!!!!!

I hate docs like that.

Good luck

Eric

Title: Re: One Story of Many
Post by brainfreeze on Aug 10^th, 2005, 9:32am

Haven't located a good neuro yet. I just tolerate the one I have. I did have another neuro send me a letter stating we couldn't have a doctor-patient relationship and asked me to find another doc. I can't imagine where he got his attitude. My last visit with him involved with him saying, 'pain, what is pain?' Well, you can imagine my response. >:(

Title: Re: One Story of Many
Post by kimmeesue on Aug 10^th, 2005, 11:37pm

I'm beginning to think neuros are dealing with the wrong end of the body. In my experience they are all anal. This + this + this= CH. Period. No deviation allowed. And the thing that seems to upset them the worst is frequency and duration. Not to mention "shadows".
I was a 25 yo pregnant female when I was first diagnosed by a GP. Hardly a classic case. Luckily the doc was able to see the big picture. Most can't or won't.
Has anyone considered putting on a symposium...invite neuros to spend a week with a convention center full of clusterheads? Might open some eyes.

Kim

Title: Re: One Story of Many
Post by Frank_W on Aug 11^th, 2005, 7:59am

on 08/10/05 at 23:37:05, kimmeesue wrote:

I'm beginning to think neuros are dealing with the wrong end of the body. In my experience they are all anal.

You may be right, KimmeeSue. I told my last neuro to stick his Depakote, oral Imitrex, and "cluster migraines" diagnosis up his ass. >:( Suffice to say, we had a rather frank exchange of views.

Title: Re: One Story of Many
Post by seasonalboomer on Aug 11^th, 2005, 8:00am

on 08/11/05 at 07:59:30, Frank_W wrote:

Suffice to say, we had a rather frank exchange of views.

Wouldn't any exchange of views with you be a "frank" exchange of views?
;)